Ceoliac test , anyone got any ideas?: Hi all not... - Thyroid UK

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Ceoliac test , anyone got any ideas?

ianskelly profile image
5 Replies

Hi all not sure if anyone can help me on this subject , I have hashimotos and have recently had an nhs Coeliac test , I won't be able to speak to a DR until next week but my results have come back classed as abnormal on my nhs app , it shows normal at 0.80-2.80gl and mine has come back a little bit higher (3.38gl) does anyone if this means I have ceoliac ? or as it is only slightly above is this a sign I should cut down rather than cease gluten? or is it just possibly connected due to inflamtion from the hashis?

thanks as always ,Ian

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ianskelly
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SlowDragon profile image
SlowDragonAdministrator

Above range presumably means positive for coeliac

Next step is to get endoscopy to confirm

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but a further 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal

If you test positive for coeliac, will need to remain on gluten rich diet until endoscopy (officially 6 weeks wait)

After endoscopy even if test is considered negative….can consider trialing strictly gluten free diet for 3-6 months. Likely to see benefits. Can take many months for brain fog to lift.

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

ncbi.nlm.nih.gov/pubmed/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

…..gluten free diet does need to be strictly gluten free to be effective

ianskelly profile image
ianskelly in reply to SlowDragon

Hi SlowDragon thanks for the response , I really do hope I don’t have to give up gluten, I love it !! I decided on the back of the hashimotos protocol book to give gluten free a go ( I did it for almost 6 mths then thought as I was abroad on holiday and struggling to find gf options I would reintroduce, I can’t say I noticed a positive effect giving up nor a negative effect when I started again so I assumed I couldn’t have a problem with it) I found it really hard and always said that if I was told I only had 6 months to live I would go gluten free again as it felt like a life time !

SlowDragon profile image
SlowDragonAdministrator in reply to ianskelly

I have always found everyone so helpful abroad

Have a card in local Language available….see here

celiactravel.com/cards/

Most difficult is always the plane home (bag of peanuts and an apple for emergency supply)

Loads of great gluten free options available these days

Eating out usually a doddle…but always check menu etc before you go

Take aways are tricky/impossible and eating at friends can be a challenge!

Rocky profile image
Rocky

I have just been diagnosed with celiac disease in December after having a gastroscopy as I am over 55. Don't stop eating gluten or change your diet until you have spoken to your Doctor. I had to carry on eating gluten until I had the results of my gastroscopy

ianskelly profile image
ianskelly

Thanks Rocky

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