Adrenal non functions mass and Hashimotos

[Jn1ce35]

I am a newby diagnosed with Autoimmune Thyroid Disease from abnormal TPO level and have multiple nodule but normal TSH. So no meds .(all symptoms and chronic neck inflammation and nodes enlarged which lead to the diagnosis) I also have 1.3 mass on my right adrenal which was tested over three years which I say loosely as it was an arrays of blood tests on one day and a weeks supply of urine for two weeks. On a year for three years. My results were that it is non productive which is great and better still not cancerous however could it be linked if cyclical to my development of Hashimotos or put a strain on my thyroid? I have read links about adrenal health.

[SlowDragon Administrator]

Welcome to the forum

Please add most recent thyroid and vitamin results

Have you had coeliac blood test done

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Very important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)

Low vitamin levels common as we get older too

Low vitamin levels tend to lower TSH

Just testing TSH is completely inadequate

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

NHS easy postal kit vitamin D test £29 via

vitamindtest.org.uk

If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

List of hypothyroid symptoms

thyroiduk.org/if-you-are-un...

[Jn1ce35 in reply to SlowDragon]

Hi and thank you for your response. I have B12 shots and take Vit D. As I was previously Vit D deficient. I am due another test in a few weeks and my GP is testing my T3 this time as not previously done. My TSH was

[SlowDragon Administrator in reply to Jn1ce35]

Vitamins are low BECAUSE of Hashimoto’s

Getting all four vitamins tested and maintain at OPTIMAL levels can help increase TSH, so that you can get started on low

Optimal vitamin levels are

Vitamin D at least around 80nmol and around 100nmol maybe better

Folate and ferritin at least half way through range

Serum B12 at least over 500

How often are you getting B12 injections

Are you currently taking daily vitamin B complex

As you have B12 injections it’s recommended also to supplement a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial. This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B is a recommended option that contains folate, but is large capsule. You can tip powder out if can’t swallow capsule

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

How much vitamin D are you currently taking

Vitamin D should be tested twice year when supplementing, especially early on when working out how much you need as maintenance dose

Test twice yearly via NHS private testing service when supplementing

vitamindtest.org.uk

Vitamin D mouth spray by Better You is very effective as it avoids poor gut function. There’s a version made that also contains vitamin K2 Mk7

amazon.co.uk/BetterYou-Dlux...

It’s trial and error what dose we need, with hashimoto’s we frequently need higher dose than average

Vitamin D and thyroid disease

grassrootshealth.net/blog/t...

Web links about taking important cofactors - magnesium and Vit K2-MK7

Magnesium best taken in the afternoon or evening, but must be four hours away from levothyroxine

betterbones.com/bone-nutrit...

medicalnewstoday.com/articl...

livescience.com/61866-magne...

sciencedaily.com/releases/2...

Vitamin K2 mk7

betterbones.com/bone-nutrit...

healthline.com/nutrition/vi...

[Jn1ce35 in reply to SlowDragon]

Thank you so much, I take the following:

B12 injections privately every three monthsB12 5000 mcg ( if a gap before the jab)

Folate 400 ug

Vit D3 100ug

Magnesium high potency

Selenium 200ug

Bio cult live bacteria - just started - bad reflux!

Are these ok please? and I need B complex and will do the tests as you have recommended. I have gone gluten, dairy and alcohol free - as I have known for some time that I am intolerant to alcohol as well as (Chillies and night shades plus dark chocolate cripple me with reflux and over heating)

A lot of great info thank you so much I will make some notes and get the relevant tests that you have outlined

[SlowDragon Administrator in reply to Jn1ce35]

Reflux is common hypothyroid symptom due to LOW stomach acid

Rather than just taking folate….look at taking a good quality daily vitamin B complex

Vitamin D 100ug unlikely high enough dose

Vitamin D mouth spray by Better You often works well as avoids poor gut function

You might need 2000iu daily…..or higher

Often with Hashimoto’s we need 4-5000iu daily

Especially if under medicated/not currently on levothyroxine

What are your most recent results and ranges

TSH

Ft4

Ft3

Vitamin D

Folate

Ferritin

B12

[Jn1ce35 in reply to SlowDragon]

Thank you, I have ordered the mouth spray on your advise. Will order a B complex later today. (Insomnia my other friend!)

My TSH is 1.611 mU/L

FT4 is 9.1 pmol/L

Ft3 tbc at the end of Oct

Vit D not checked since 2017 it was 44.2 and abnormal

Folate N/K

Ferritin 87ug/L

B12 N/K (I sought the jabs in order to improve Trigeminal Neuralgia - it works somewhat and some general health improvement) GP just said most people feel better taking B12 and that was it - no test

I will find these absent ranges privately and get to optimal hopefully. I really appreciate your help. I hate that I have to just wait for my thyroid to be destroyed, and feeling the symptoms but no meds. On a positive I am noticing a difference already without gluten and dairy, not as constipated (soz if tmi) albeit could be the magnesium.

[SlowDragon Administrator]

Adrenal testing via Regenerus

regeneruslabs.com/products/...

cdn.shopify.com/s/files/1/0...

[Jn1ce35 in reply to SlowDragon]

Thank you so much

[Hidden]

Many people have an incidental adenoma some where in their body which isn't doing anything. It's good that yours is a non functioning one. I presume that you were tested for Cushing's syndrome, Conns & a Phoechromocytoma? Are you experiencing any symptoms of high cortisol? I think that would be the only condition that could be cyclical. You are right in that cortisol needs to be optimal to balance the thyroid. So if you are cyclical then you will have periods when you feel relatively well but have difficulty sleeping although tired, you may gain weight, have reflux. If you are in a low, then you may lose weight, you may sleep a lot & generally feel unwell. The only way to work this out is to keep a diary of all of your symptoms. Cycles can be several days, months or even years between them. Do you know how big the adenoma was & what the test results were?

[sunsation1 in reply to Hidden]

Following as being tested

[Jn1ce35 in reply to Hidden]

Thank you Pauline, the mass is 1.3cm and I can relate to the symptom you listed. Any stress or a busy schedule and I am man down! I was tested for Cushings, addisons and a pheo’ And yes very relieved non of the listed. I will check my cortisol levels and yes it was an incidental find when looking at fibroids (gone how - hysterectomy) thank you for your response