Fatigue on T3 only meds?: Hi all, I'm just... - Thyroid UK

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Fatigue on T3 only meds?

Nessynu profile image
18 Replies

Hi all, I'm just wondering do those of you on T3 only medication still have lots of fatigue daily?

I'm due ti do my bloods again next week but this fatigue has been going on for a while now. Im trying to avoid the thyroid tunnel vision that I've been in since my diagnosis of hypothyroidism and hashimoto's but some last bloods showed low platelets and high TIBC. My dose if T3 hasn't changed but my fatigue has.

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Nessynu
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18 Replies
heathermr profile image
heathermr

Have you thought about having your cortisol levels checked as this can cause fatigue and nausea if low.Heather

Nessynu profile image
Nessynu in reply toheathermr

Thank you heathermr. I've had the four point saliva test recently and its not bad at all.

shaws profile image
shawsAdministrator

I take T3 only and have no fatique and I feel well and am symptom-free. That's not to say everyone who takes T3 will have the same experience.

Maybe you need a small increase of T3. Have you had a recent blood test? If not I would request one and I think you know always to get the earliest test, fasting and allow a gap of 24 hours between last dose and test?

Nessynu profile image
Nessynu in reply toshaws

Thanks shaws. Im due bloods next week so hopefully I can get to the bottom of my fatigue.

shaws profile image
shawsAdministrator in reply toNessynu

I hope they check your Free T3 and Free T4 and I'm not sure the medical professionals are aware that T3 is the active thyroid hormone needed in our millions of T3 receptor cells.

Nessynu profile image
Nessynu in reply toshaws

My last test showed my free t4 is very low at 0.5 (12-22) and my free t3 was 5.2 (3.1-6.8).

shaws profile image
shawsAdministrator in reply toNessynu

As you are not taking levothyroxine, your T4 will be low. As you are taking T3 alone, I would think it should be nearer the upper part of the ranges. I will also state I'm not medically qualified but have treated myself for a long time. I now have a new GP who I hope is helpful.

Nessynu profile image
Nessynu in reply toshaws

Yes I probably need an increase in t3 to push it into the upper range. Thanks again shaws. Di you take all of your t3 in one dose? I'm currently taking 50 t3 in 3 split doses but im wondering if taking it in one dose might flood my body to get it into my cells better. Have you tried this?

shaws profile image
shawsAdministrator in reply toNessynu

I follow the method that Dr John Lowe recommended. He was a doctor/scientist/researcher and an expert in the use of T3. He was also an Adviser to TUK.

He himself took a large dose of T3 in the middle of the night when he awoke to go to the toilet.

He stated that one dose of T3 saturated all of the T3 receptor cells and its effect could last between one to three days. I trialled this and took my one daily dose, took none on day two and three. I felt the same which is symptom-free and well. I have recently reduced my dose of T3 and stll feel well.

web.archive.org/web/2010103...

Nessynu profile image
Nessynu in reply toshaws

Thats amazing to hear! I currently take 50 split 3 times a day but I was afraid that if I take it in one go that my heart would start racing etc due to too much at one time. Can this happen? Or if I'm already taking 50 a day it won't as my body is used to it?

shaws profile image
shawsAdministrator in reply toNessynu

There's no need to be nervous, I believe Dr Lowe took 150 mcg of T3. as he had 'thyroid hormone resistance' and he was an 'authority' in prescribing T3 or NDT for his patients. He would never, ever prescribe levothyroxine.

I had very severe palpitations but T3 resolved them and my heart calmed.

Nessynu profile image
Nessynu in reply toshaws

Thats very reassuring to hear shaws. Thank you. I like you have regular palps until starting t3. I think ill bite the bullet tomorrow morning and take my t3 in one dose!

JAmanda profile image
JAmanda

My energy levels are tons better bow my T3 is high in range for sure.

Nessynu profile image
Nessynu in reply toJAmanda

That's great JAmanda. My entry was great for a while but im feeling quite fatigued the last 2 months without changing my dose.

JAmanda profile image
JAmanda in reply toNessynu

Yeah I had to keep raising my T3 dose to get over 6. My Endo isn’t happy with me but it’s made a huge difference. I’m now able and willing to make plans to go out in the evening when for years I just didn’t have the energy.

Nessynu profile image
Nessynu in reply toJAmanda

Thats my life currently, I don't make plans as I don't have the energy to go out. Im thinking I may need to up my dose. Can I ask how much t3 your taking and do you split the doses or take it in one go?

JAmanda profile image
JAmanda in reply toNessynu

I take 100-125 Levo when I wake with 12.5 lio then wait an hour to eat etc then take 20 lio in the afternoon about 2-3 o’c.

Nessynu profile image
Nessynu in reply toJAmanda

Thanks JAmanda. Im wondering if I need some t4 to balance it all out! Its frustrating trying to feel well again. I see a private doc every 3 months but feeling unwell in-between appointments is not very nice.

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