By way of an update to my over active thyroid Posts.

[Billyboy2u]

As quite a few may have been following my treatment and appointments.

I had my Video appointment as to if I had made up my mind and go along with the endo and have my thyroid removed.

I explained, I hadn’t changed my mind and didn’t want to go ahead with the operation.

“REALLY” he said in a raised voice.

I continued with. I’m not really satisfied it is needed at the moment. After all. I’ve only relapsed once after 2 years. Furthermore, my relapse made my feel a bit unwell for a few days, nothing much just all washed out. Granted my bloods showed I had relapsed but caught it very early on so the medication worked well. So as said I only had a few days not feeling very well. If I had been seriously ill like my first time when I was diagnosed then I might, have considered the operation, but just now, feel it’s not the time to have the operation.

Again in a raised voice “REALLY, I SUPOSE THIS IS ALL OFF THE INTERNET. ? Without waiting for my reply, SOMETIMES I WONDER IF I WAISTED MY TIME STUDYING TO BECOME AN ENDO, BUT IT IS YOUR CHOICE, SO HAVE SOME FURTHER BLOODS TAKEN AND ILL TAKE IT FROM THERE. OK , BYE. “.

The screen went blank. I was a bit taken back but felt he didn’t like me ignoring his advice.

[Steamruss]

Amazing- how unprofessional

[ling]

Sounds like he's under a lot of stress. More likely he needs help.

[tattybogle]

Did he waste his time training to be an Endo ?

in any profession, it 's not just about what you learned when you were training.. it's about whether you keep up with developments afterwards.

Shame he hasn't wasted a bit more time reading research 'on the internet'.. and conversing intelligently with his patients if they have different views based on their own research ...... he might have learned something useful.

If the rest of us went about our professional business like he does we'd soon be 'out of business.'

[NIKEGIRL]

Well what an shit day u had.

Firstly. He has broken rule number one. He made some assumptions. He is not a mind reader so he set himself up to fail.

Secondly. He used an aggressive style of communication. With aggressive communication no one gets their needs met. Neither u nor him so it’s a lose lose for both parties.

I agree with Ling. You were the last piece to his shit workload and issues maybe personally he is dealing with. He took his frustration out on you. Ah not ok.

Now. You can train the be a medical professional but he needs to learn some personal skills on how to deal with people.

This is your life. Your thyroid. Your choice.

I think it is a collaboration of your experiences over the last few years and his opinion but ultimately this is about you.

He is a very angry man. How do u work with that? You make a complaint if u have the energy, will or want.

I feel for you.

[Billyboy2u]

Thanks…. At my last face to face appointment he was clearly not happy that I’d already made up my mind about not going ahead. That’s why he give me extra time to think about it.

There is nothing wrong with my thyroid. In the sense of nodules or cancer. It goes over active with my Graves.

I fully understand as NF he thinks he is right and I’m going against his advice but until he gives me a good enough reason for taking out my thyroid it won’t be happening. After all I’m prepared to put up with my thyroid making me feel unwell for a few days ever couple of years. That’s the part I can’t understand. If I was very ill for months on end or every few month I could understand. But at the moment. I can’t.

[greygoose in reply to Billyboy2u]

And you'd probably have a lot more days feeling unwell if he takes your thyroid out, and then doesn't understand about thyroid hormone replacement and how to dose it - which I doubt he does! He just wants to get rid of you as a patient, that's all. You're too much work for him, poor old soul. Work he doesn't really understand. He knows he's out of his depth so he wants to be able to discharge you back to your GP - which he will as soon as your thyroid has done - his job will be done! He's not the one that has to suffer the consequences of his actions, you are. Make him sweat!

[Billyboy2u in reply to greygoose]

Exactly.

[NIKEGIRL in reply to Billyboy2u]

I am like you. I have Graves. I’m not having my thyroid out. If u can manage on AT drugs that’s a valid choice for treatment.

[pennyannie]

Hey there :

I'm so sorry you experienced this :

Is this same endo who has followed your progress throughout from your initial diagnosis ?

It does seem the hospitals are under extreme pressure to clear and reduce outpatient waiting list times.

But that isn't your problem and medics are meant to work in a collaborative way with their patients which clearly wasn't on this endo's agenda.

It's ironic really as this sort of action can, in itself, simply exacerbate your symptoms, so use this forum to vent out and share your feelings and then let it go :

Sending a couple of hugs :

[Billyboy2u in reply to pennyannie]

I had no intention of taking it further for the reasons you mention. This is a new guy I’d not seen him before so think he’s just read my notes. The end bit. Take it out.

[pennyannie in reply to Billyboy2u]

Oh well then - no need to loose any sleep there ;

He's likely been given the chore of just going through the O/P waiting list of people and trying to meet his target % of people actively being processed out of the system, by fair means or foul.

Yes, I too found trying to get the appropriate medication after RAI for my Graves simply exacerbated my symptoms and having been knocked back once, making myself more unwell I decided to self medicate and now 3 years in and much improved on full supplement thyroid hormone replacement.

Let it go :

[Billyboy2u in reply to pennyannie]

That’s my thoughts too. If I keep my thyroid because it’s not it’s fault it’s going over active it’s the Graves. I somehow need to convince the endo that. Lol.

[pennyannie in reply to Billyboy2u]

Realistically, I don't know that you can ;

They work to guidelines and since there is currently no cure for Graves and it's considered " life threatening ' if not treated, the thinking is to remove the target of the AI attack the best option, thereby solving their problem, but not necessarily yours.

If happy to stay on the AT medication it has to be the best option, as you know what you are managing, and have done so for a few years, so what's another few ?

Keeping your options open suits you, but not the hospital as they want O/P waiting times reduced not extended and you over your allocated period of time for processing through the system.

There was an interesting paper on here the other month and I think it talked about Graves settling and people more able to find remission, within a 4-7 or 11 year window and not the 15/18 month window allocated by the NHS.

Think it was Ling who found the research.

[Billyboy2u in reply to pennyannie]

Yeh I read it. Promising news.

[pennyannie in reply to Billyboy2u]

Oh good - "cause I'm no good doing the cut and paste or links - if I even found it !!!