What are the side effect effects of RAI treatment for Hyperthyroidism?
Does this effect on brain? Again specially,does this effect on fertility? If so,how is the percentage? 
I am just 20 years old.if RAI effects on fertility, I won't be able to tackle this situation. I am in a relationship. I don't want to ruin her life,her joys marrying her(if there is any problem)
Please,someone assure me, Does RAI effect on brain & "FERTILITY"? 😢😢
Hello AbJamil:
On researching RAI, you might like to dip into the Elaine Moore Graves Disease Foundation ;
I found Elaine's website the most well rounded research tool as she also researches the auto immune aspect of Graves which mainstream medical do not have any answers on.
Elaine has Graves Disease and went through RAI and finding no help with her continued ill health started researching this poorly understood and badly treated AI disease herself.
She has now several books published and is well respected and considered a leading spokes person on Graves.
I too had RAI when aged 58 and deeply regret this treatment as I found hyperthyroidism easier to live with than the lingering Graves, thyroid eye disease and hypothyroidism that I now have to manage.
Radioactive iodine has been used to treat hyperthyroid conditions since the early 1940s.
The iodine is concentrated in the thyroid, and the radiation destroys the cells in the thyroid gland & reducing the amount of thyroxine that can be made.
Data is not clear but there does appear to be an small increased risk of cancer after treatment with radioactive iodine but doctors believe treating the overactive thyroid gland outweighs that risk.
It does not go to the brain, you will not lose any hair. It does not affect fertility but males are advised to avoid fathering a child for at least four months following treatment. (Women should avoid conceiving for at least six months)
Do you have any eye issues? If you have thyroid eye disease you should not have the treatment. (Pregnant/breastfeeding women can not have the treatment), nor should patients with vomiting or incontinence issues.
The recognised side affects are in the short term are that the thyroid can be tended after treatment. longer term it is that the thyroid gland becomes permanently under active.
Your treatment will take place in a hospital but you will not need to be admitted to hospital as an inpatient. The treatment is taken as a single dose as pill or drink.
The gland has to be working for the treatment to work so antithyroid tablets should be stopped at least one week before the treatment.
After treatment you may be asked to avoid close contact with other people. Especially children and pregnant women for up to two or three weeks.
The information leaflets says there no reason to worry about the exposure to a pets (but I wouldn’t want to expose my pets)
Airports sensors are very sensitive and you will set them off for up to four months after treatment. If you should have a letter from hospital explaining about treatment. If you work with radioactive substances you will need further advice.
Where are you located? In the UK the doses are not calculated on a case by case basis. From what I’ve read there is no clear guidelines regarding what determines the dose given. Only that an authorised specialist decides on the appropriate dose and most hospitals have 3 pre fixed levels, eg low, medium & high to choose from.
Over two-thirds will develop hypothyroidism within a year. About 10% of patients need a further dose. Doctors state there are no additional problems associated with having further doses.
There are studies showing a lower quality of life after RAI compared to either surgical or long term antithyroid
Some who have had the treatment say their hypothyroidism appears more difficult to treat, and report new issues like joint pains and continued low nutrients as well as other ailments which doctor often dismiss as not being related.
To give a balanced view there are many who undergo treatments & do not experience unexpected complications. They are living their lives without the need to seek help from a forum & there isn’t the data to show by what majority completely recover & the percentage may have some struggles.
Young males (your group) do generally respond very well to treatment. It’s older ladies (my group) which struggle more.
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Thank you very much for these details informations. I am grateful to you. You deserve a clap.
I don't have thyroid eye disease. My problem is -I started taking Carbimazole but on the 17th day,drug reaction started in my body with allergy & fever. After contacting doctor,he said I had to do RAI.
That's why asking here the effects of RAI
I replied on that post too. before considering RAI see if you can try the alternative anti thyroid Propylthiouracil (PTU).
Your Doctor is misinformed to say if you react to carbimazole the same will happen with PTU. Chemically they are very different. I think they may say this as they have very little experience with it.
As high thyroid levels can be very dangerous if not controlled Doctors are often eager to recommend permanent treatments early on. Surgery should also be an option if you were very uncomfortable with RAI.
Your doctor will always promote RAI over surgery as it’s easily administered treatment at an out patient appointment.
You can ultimately decide how to proceed. Doctors like to imply you don’t have a choice but that is not the case.
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