Diagnosed with hypothyroidism approx 8 years ago after symptoms of fatigue, muscle aches, coldness, low mood, etc, you know the score. I started on Levo 125mg but even though my bloods are 'fine', I still have all the symptoms. I can't and don't want to live like this anymore. My GP is dismissive and said I need to look privately. I've gone from being a marathon runner to struggling to walk up a flight of stairs in 8 years. I can't manage my young family and am desperate to be well.
I have downloaded the lists from Thyroid UK for private Drs and the private and NHS list.
AXA will hopefully cover some of the consultation and test fees but the resources are finite so I am conscious of trying to make the right choice in who I see.
Also, what sort of cost am I looking at for monthly medications if I am prescribed NDT and/or liothyronine?
Advice will be gratefully received.
Written by
MrsT79
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Before offering any suggestions, it would be a good idea if you were to post your latest results so that we can give meaningful comments. Just saying blood are "fine" just tells us they are somewhere within the range, but it's where in the range that's important, and having optimal nutrient levels is essential for thyroid hormone to work properly and low levels bring their own symptoms.
Can you post your results, including the reference ranges (as these vary from lab to lab) for:
First step is to get FULL thyroid and vitamin testing done
Do you know if you have autoimmune thyroid disease
Do you always get same brand levothyroxine at each prescription
What vitamin supplements are you currently taking
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially with autoimmune thyroid disease (Hashimoto’s or Ord’s thyroiditis)
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Is this how you do your tests?
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
If TPO or TG thyroid antibodies are high this is usually due to Hashimoto’s (commonly known in UK as autoimmune thyroid disease).
About 90% of all primary hypothyroidism in Uk is due to Hashimoto’s. Low vitamin levels are particularly common with Hashimoto’s. Gluten intolerance is often a hidden issue to.
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Worried as trying for a baby 
GP wants to reduce my 137.5mcg of Levothyroxine
Help with diagnosis in the UK
Still undiagnosed thyroid issues!
