Still in the gutter!: Starting a new post ... I... - Thyroid UK

Thyroid UK

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Still in the gutter!

BetterDayzAhead profile image
2 Replies

Starting a new post ...

I've ordered a testing kit online thank you SlowDragon for recommending it's an advanced thyroid testing and vitamins.

GP results;

So my GP said "normal normal your thyroid is normal" I said, really, what's my free thyroxine, "oh the lab doesnt test it if TSH is normal range. "

So shes emailing the lab as FT4 as was requested by other GP.

My question is why over three years wd my FT4 be dropping under range to 10.3 (12-22) this is the 1st thing in the morning reading, no food etc)

Are they ever going to treat someone who's FT4 is low then scraping into their "normal" range of 12 to 13?

Am I just better paying Privately with these results I've ordered to see an endocrine specialist?

I feel for 3.5 years my symptoms have demonstrated must be going under in FT4 often as Ive been having symptoms all this time.

Yet they said normal on previous bloods solely in an in range TSH?

I spent over £4000 private insurance investigating neurological symptoms to make sure it wasnt neurological Like ALS, motor neurons or pinched nerves in my spine!

It's crazy that all along this could be a lack of free thyroxine in me.

3.5 years and I dont think I have to tell you folk how awful I've been feeling. Like something scraped off the floor!

Thank you

Katie x

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BetterDayzAhead
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SlowDragon profile image
SlowDragonAdministrator

What vitamin supplements are you currently taking

Make sure you stop any supplements that contain biotin a week before test

Only test early Monday or Tuesday morning and post back by tracked postal service

Test as early as possible in morning before eating or drinking anything apart from water

Come back with new post once you get results

Buddy195 profile image
Buddy195Administrator

I too had lots of symptoms investigated that actually turned out to be thyroid related (eg carpal tunnel, gastritis, leg pain and ‘health anxiety’) If you can afford, see a private endo on the TUK recommended list after you’ve had your bloods tested using Medichecks (or similar). This is far cheaper than having bloods tested at a private hospital.

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