Fancy asking Simon Pearce some questions? Now’s... - Thyroid UK

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Fancy asking Simon Pearce some questions? Now’s your chance!

TSH110 profile image
24 Replies

A chance to ask Simon Pearce questions at the Thyroid Trust on- line two part talk he is doing for them.

This is their blurb:

If you haven’t already booked a place for our online Information Event with Professor Simon Pearce’s next week it’s not too late

The talk is about Getting the Best Treatment for Hypothyroidism

7th July

6pm- 7:30pm

This talk is now going to be spread across two dates, as when Simon prepared his presentation there was more than would fit in a single session and we want to do our best to allow lots of time for questions and discussion.

So next week is now Part One and Part Two will take place on 15th September, at the same time.

Here is the Eventbrite booking link for Part One eventbrite.com/e/getting-th...

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TSH110 profile image
TSH110
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24 Replies
shaws profile image
shawsAdministrator

Thanks for posting TSH110 and am sure members will be interested

knitwitty profile image
knitwitty

Thank you for posting, I have booked, it might be enlightening.

Buddy195 profile image
Buddy195Administrator

Thanks TSH110…. I’m booked on 👍

humanbean profile image
humanbean

For those who know nothing about this man, this thread may be of interest :

healthunlocked.com/thyroidu...

And these links :

healthunlocked.com/thyroidu...

patient.info/news-and-featu...

And this link has a list of his publications :

ncl.ac.uk/medical-sciences/...

Gingernut44 profile image
Gingernut44 in reply tohumanbean

I can’t tell you what I’d like to do to him and his crony Kristien Boelaert - I’d be arrested 🤬

Gingernut44 profile image
Gingernut44

I’ve just come up with a cunning plan, aka Baldrick. As all these so called experts keep telling us “there’s no evidence that T3 works”and as SP thinks Levothyroxine is a placebo, why don’t we suggest that they take a high enough dose of Carbimazole to stop their thyroid production (block) and make them wait until their TSH reaches the magic number. Only after two consecutive high TSH results, three months apart are they allowed to have Levothyroxine (replace) and then only 50 mcg per day for 6/8 weeks - you get the drift ….. then let’s see if they still think being hypo is just being a bit tired and losing a few eyebrow hairs.

knitwitty profile image
knitwitty in reply toGingernut44

Oh heck am I going to regret signing up to listen to this ?I listened to another talk last evening which was on the thyroid Trust site given by a female doctor who needs T3 to be well, but even she had problems convincing her GP that she required it, it doesn't bode too well for us mere mortals, but her suggestions were good.

TaraJR profile image
TaraJR in reply toknitwitty

That was Dr Renee Hoenderkamp? She is brilliant. And she keeps fighting as well.

Don't regret signing up - get a question in and keep fighting!

Lorraine Williams at the Thyroid Trust is good at chairing meetings and webinars and letting challenging questions through

knitwitty profile image
knitwitty in reply toTaraJR

Thank you, I'm definitely not giving up. :)

TaraJR profile image
TaraJR in reply toknitwitty

Great stuff! Are you on Facebook? If so, join us on ITT Improve Thyroid Treatment group! We're fighting hard there

knitwitty profile image
knitwitty in reply toTaraJR

Thanks for the heads up ! :)

Gingernut44 profile image
Gingernut44 in reply toTaraJR

I’m on the Hub too

Gingernut44 profile image
Gingernut44 in reply toknitwitty

I would love to know how it goes. I couldn’t possibly attend, I’m way too emotional at the moment about the way I’ve been treated (or, more to the point, not been treated) by the NHS Endos and my GP, I would probably lose it. I’m a wreck 🤪

Buddy195 profile image
Buddy195Administrator

I’m currently listening to the webinar but he says he’s not discussing combination therapy until the second session…..

TSH110 profile image
TSH110 in reply toBuddy195

My internet is all down so can’t get on to it 😬😬😬 please keep me posted

ElephantShrew profile image
ElephantShrew in reply toTSH110

i'm not sure how many questions are going to get asked, there's a huge list.

I'd thought a lot of his talk was ok but he's just said that hypo doesn't affect weight, so i think he's lost me.

The session should go on youtube afterwards so should be available for all.

TSH110 profile image
TSH110 in reply toElephantShrew

He’s talking codswallop how can it NOT affect weight it’s the metabolic foot pedal for goddsake! Why do hyperthyroid people generally become thin and hypos generally become fat - pure coincidence? It’s tommyrot

ElephantShrew profile image
ElephantShrew in reply toTSH110

yes. And he sounded so confident! it's just middleage spread apparently. Argh!!

TSH110 profile image
TSH110 in reply toElephantShrew

How come T3 miraculously removes “middle aged spread”but t4 monotherapy does not it must be somatosomic (or whatever that stupid word is for supposed imaginary symptoms that require being drugged up to eyeballs with antidepressants 😠😡🤬) weight loss like all our other lingering symptoms. Absolutely nothing to do with being undermedicated of course….🙄

Buddy195 profile image
Buddy195Administrator

I’m not a fan from what I’ve heard so far (currently in session 1). He can’t see merits of testing T3 & (to me) appears to say ‘my way or the highway!’ The links posted by humanbean are worth a look!

TSH110 profile image
TSH110 in reply toBuddy195

He can’t really understand the area he’s supposed to be expert in his head is stuck inside an archaic out of date model of how the thyroid and body function and what the real purpose of the thyroid hormones are. He’s nothing more than a clever fool but a very dangerous fool keeping thousands of us ill and causing unnecessary suffering and early death by promulgating his incorrect and deeply flawed theories

TSH110 profile image
TSH110

His attitude to older women is downright misogynistic and ageist I was hoping some would make it hot for him and put him right on the spot. I personally despise the man and think he’s totally unfit for purpose he shouldn’t be within a million miles of dealing with women’s health in my view, young or old!

Buddy195 profile image
Buddy195Administrator

He’s going to talk about his view of combination therapy in the next session on 15th September 2021. I hope this might offer more chance for debate!

TSH110 profile image
TSH110

I doubt he’s open to debate but I hope people ask some awkward questions to put him on the spot.

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