First time here and learning a lot already - Thyroid UK

Thyroid UK

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First time here and learning a lot already

Gunning4it profile image
11 Replies

Hello all. I joined this site following a stroke and hearing some confusing things about statins and levothyroxine. I've been hypothryroid for close to three years and have never really felt any better, the GP says the same as many others 'Tests all OK". What I noted was that last year I took the tablet last thing at night simply because I got lazy with taking it in the morning! And I noticed improvements fairly quickly, for example, less tired during the day and feeling a bit livelier. All that ended following some nagging from others! Saw the suggestion about taking the meds last thing at night and I will revert to that now. There's no doubt that there are some questions that the NHS has to answer about treatment for this miserable condition. I talk too much but would just wish all sufferers better health as soon as possible.

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Gunning4it
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SlowDragon profile image
SlowDragonAdministrator

Welcome to the forum

Yes many people find it more convenient and possibly more effective taking levothyroxine at bedtime

Do you always get same brand of levothyroxine at each prescription?

SlowDragon profile image
SlowDragonAdministrator

verywellhealth.com/best-tim...

No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.

Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away

(Time gap doesn't apply to Vitamin D mouth spray)

Are you currently taking any vitamin supplements?

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

Gunning4it profile image
Gunning4it in reply to SlowDragon

Thank you. I am taking D3, Coq10 and omega3. Advice noted with thanks

SlowDragon profile image
SlowDragonAdministrator in reply to Gunning4it

How much levothyroxine are you currently taking?

Does GP test TSH, Ft4 and ft3

Gunning4it profile image
Gunning4it in reply to SlowDragon

50mcg, and as for testing, I have no idea!! However I am seeing GP on Monday next and will ask questions, when I know I will reply! Thanks again

SlowDragon profile image
SlowDragonAdministrator in reply to Gunning4it

50mcg is only a starter dose

How long you been left on this dose

High cholesterol levels linked to being under medicated for thyroid

Gunning4it profile image
Gunning4it in reply to SlowDragon

From the beginning. The odd thing is that I had been diagnosed as pre-diabetic in 2019 but my cholesterol has always- until now I suspect- been fine. I have always had to phone for test results until the new online site came on line and I have just registered for it. I feel somewhat deflated, I thought the GP was OK but clearly I have been let down a bit. Many thanks for your guidance, I will make best use of it that I can.

SlowDragon profile image
SlowDragonAdministrator in reply to Gunning4it

There’s over 118,000 members on here, vast majority from U.K.

We see thousands of U.K. patients left on starter dose, or 75mcg for years/decades

Gunning4it profile image
Gunning4it in reply to SlowDragon

That should shock me but I've seen more than enough elsewhere not to be surprised by this statistic. Thank you

SlowDragon profile image
SlowDragonAdministrator in reply to Gunning4it

Are you male or female (please add to your profile) ...and presumably in the U.K.

9 out of 10 thyroid patients are female.

SlowDragon profile image
SlowDragonAdministrator in reply to Gunning4it

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12 at least annually

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

About 90% of primary hypothyroidism is autoimmune thyroid disease

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

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