Thyroid blood results received today: Would... - Thyroid UK

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Thyroid blood results received today

jacobite33 profile image
46 Replies

Would deeply appreciate it if any of you lovely people could please comment/advise me on my results I received earlier?

Just recently changed my levothyroxine brand and also upped my dosage.I am now taking 125mcg for five days then 100mcg for the remaining two days on a weekly basis

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46 Replies
Lalatoot profile image
Lalatoot

Did you stop b12 complex at least a week before the blood test? The biotin in the complex plays havoc with the test.

jacobite33 profile image
jacobite33 in reply to Lalatoot

Thanks for replying Lalaloot....Stopped taking the Ingennus Methylated Vitamin B complex with folate a week before and also liquid vitamin B12.Just starting taking them again Monday morning

Lalatoot profile image
Lalatoot in reply to jacobite33

Well that puts paid to my theory of rogue result then!!

jacobite33 profile image
jacobite33 in reply to Lalatoot

Och at least you tried to help and from the heart I really appreciate that thank you!

Lalatoot profile image
Lalatoot

Are you supplementing vit d as it is low? Usually best around 100.

jacobite33 profile image
jacobite33 in reply to Lalatoot

Yes I am with D3000 with K2 spray

Lalatoot profile image
Lalatoot in reply to jacobite33

Fandabidozi!

jacobite33 profile image
jacobite33 in reply to Lalatoot

ha ha ha That puts me in mind of Nicola Sturgeon as she is quite similar to the Krankies

Lalatoot profile image
Lalatoot in reply to jacobite33

Is she no just . The krankies were grand back in the day. But then we were easily amused.

jacobite33 profile image
jacobite33 in reply to Lalatoot

I still am easily amused! ha ha So you mentioned rogue results? I have one red L and two red H’s.Old saying that springs to mind is three strikes and your out.Getting concerned now

Lalatoot profile image
Lalatoot in reply to jacobite33

Maybe better not start reading a novel. Just stick to short stories in the meantime. 😂

jacobite33 profile image
jacobite33 in reply to Lalatoot

Prefer a comic with pictures myself 😂

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Are you also supplementing magnesium?

jacobite33 profile image
jacobite33 in reply to SlowDragon

Not supplementing magnesium no

Heloise profile image
Heloise

Many of those look excellent. I'm curious as to how many days you were on the higher dose and what time did you take your lab test....early? If so, excellent cortisol. When did you take your dose of T4? If close to your medication would account for being on the high side but why is the total T4 so different from FT4. Maybe someone else can explain. Very good CRP.With a FT4 over range you expect the FT3 to be high (which it is) but do you FEEL good? Labs can be deceptive but if you feel well and your temperature is normal I think I would be happy with those results.

jacobite33 profile image
jacobite33 in reply to Heloise

Heloise I honestly have no idea as to why.I gradually upped my dose the past eight weeks roughly.Changed brands too.Been on these new brands past couple of weeks.I took my test at 5.30am and last does was 100mcg Aristo 24 hours previous.No I feel rotten with dizziness fatigue jitters and uneasy.Headaches aches and pains and chest pain regular.After I eat I feel nauseous weak and jittery.I have no idea about my temperature but before Xmas my temperature was always low being tested at work each day

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Which brand of levothyroxine were you on before

Which brand now?

Teva brand upsets many people

jacobite33 profile image
jacobite33 in reply to SlowDragon

Hi slow thanks for you reply! Just trying to catch up with messages here at the moment.I was on Teva and Accord previously before I changed to Aristo 100mcg and Wockhardt 25mcg

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Are you lactose intolerant?

Teva and Aristo are lactose free

But wockhart isnt

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test.

..if yes then your either taking too much levothyroxine....or having Hashimoto’s flare

Folate and vitamin D need improving

Are you on strictly gluten free

jacobite33 profile image
jacobite33 in reply to SlowDragon

Never been lactose intolerant before so I shouldn’t think so.Only started going lactose and gluten free as of the those Hashimotos tests that’s all.I’ve felt this bad from away last year so that’s some flare up.Test was done at 5.30am before eating drinking and last was 24 hours earlier.I have been taking the Vit D with K2 advised on here.Got seven bottles the week after my first post and I started my fifth bottle today so I don’t understand why that’s low.As for the folate I was on Ingennus advised here too but stopped that a week before my test and B12 liquid......

Heloise profile image
Heloise

Well now I'm thinking you are overdosing. You must have felt you needed to increase but you may have overdone it. Obviously your FT3 is not getting into your cells which is often a problem. Lately I feel that estrogen dominance is common. There is something that blocks receptors. It's helpful to know if there is a high reverse t3 going on. Sometimes adrenals are still weak. It gets complicated and conventional doctors don't seem to understand. Your antibodies are not that high but your symptoms are terrible. Do you feel different symptoms than you did prior to the raise? Sometimes low blood sugar can be a big problem. Something is definitely wrong. I'm a big believer in vinegar and digestive enzymes. If you can tolerate a couple of teaspoons of the fermented vinegar with larger meals it accomplishes quite a few thing to help digestion, block starch and adds probiotics.

If I come up with something I'll get back to you.

jacobite33 profile image
jacobite33 in reply to Heloise

Heloise first things first let me thank yourself for replying and being helpful.I never thanked you last nigh and I apologise! Yes I feel more agitated and buzzy since I raised.I upped my dose as blood results were showing my T4was 80% through the range and T3 41% through the range in my first post two months or more back.Those results were done in October.Doctor said my results were right in the middle of range and good.I was initially on 125mcg for around eight years and was never tested yearly as I never knew you needed to be.I was very buzzy and agitated for a long time then3”even ended up in hospital.Doctors were telling me back then until my results were fine.I have just had an extremely difficult time with my mental health but feel that’s pick up a lot.Could that possibly have been the vitamin D as apparently is was in my boots (level) one doctor told me this time 2019 along with folate.Was taking the fermented vinegar a few months back there but stopped.Stopped eating meat and dairy fully on Monday and taking other supplements.I capsule of seaweed spirulina and macca power in oat milk

Heloise profile image
Heloise in reply to jacobite33

Oh, no thanks necessary. I've been here on TUK for eight years because it has been so vital to me. The past few years, though, it has become clear we must have more of a holistic view of autoimmune conditions. The microbiome to the mitochondria I think of as life to death. The microbiome contains most of the signaling to the brain producing neurotransmitters. Your gut sends more messages to your brain than vice versa; 8:2 I've heard. The vagus nerve is very involved. Your adrenal glands have control over your hormones and it uses cholesterol to control them; sex hormones, corticoids and naturally cortisol. Your dizzy frazzle could be adrenaline which, of course, is also produced by adrenals. You must look up John Bergman on you tube. He has a complete understanding of the adrenal/thyroid connection. When thyroid function is low, cortisol will be high. When the adrenals are forced to continue producing cortisol it uses massive amounts of vitamin C, magnesium and progesterone. I guess that's even true for males so will you be alarmed if your progesterone is low? haha This must be addressed as fight or flight is a killer.

See PM

jacobite33 profile image
jacobite33 in reply to Heloise

Heloise your sweet too thank you again!

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

capsule of seaweed spirulina and macca power in oat milk

Spirulina contains iodine, not recommended for anyone with Hashimoto’s

healthunlocked.com/search/p...

Meat is usually fine with Hashimoto’s

Gluten intolerance very common

jacobite33 profile image
jacobite33 in reply to SlowDragon

I never had gluten or dairy trouble before.I’ve stopped eating meat dairy and gluten foods altogether now.I take the spirulina powder with Almond milk now.There is no iodine in the ingredients list of spirulina.Don’t think that should be a problem from what I gather although I might be wrong

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Why would you stop meat?Many Hashimoto’s patients need protein rich diet

Ferritin likely high due to inflammation of Hashimoto’s

GP should do full iron panel test to check if iron is high

jacobite33 profile image
jacobite33 in reply to SlowDragon

I stopped eating meat as I just don’t enjoy it anymore to be truthful.I eat lots of nuts and teff..... I will skip going to my gp as I’ve had enough of them with all due respect! All these tests were supposed to have been done before.I’ve had bad stomach issues from last year so I am going to go back on a months course of Elixa probiotics as those really helped before.Hoping that will also resolve the poor nutrients absorption.Will get my iron panel done private.I assumed after those tests that my absorption of levothyroxine had improved.As I take them early every morning before anything and my nutrients and vitamins were up.

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Poor gut function with Hashimoto’s is extremely common, especially if under medicated or poor conversion

Vitamin D

Suggest you try increasing dose to 5000iu daily

Low folate.

Are you taking one Igennus B complex

You might need separate folate supplement 2-3 times week and especially in the week before blood testing when you need to stop vitamin B complex

Jarrow Folate is good quality option

Your high thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s and gluten and dairy intolerance are common as result

jacobite33 profile image
jacobite33 in reply to SlowDragon

I upped my dose to 10000iu since last week.Yes taking one Ingennus B complex should I up it to two? Could you advice me on medication as those results are off and I’m over medicated? I thought my thyroid anti bodies weren’t to high apparently from what I gathered before?

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

I would add separate folate rather than increase Igennus

How long before test did you stop vitamin B complex?

In week before test replace vitamin B complex with separate folate and separate B12

TPO antibodies confirms autoimmune thyroid disease also called hashimoto's

Results suggest you are taking slightly too much levothyroxine

(It could possibly be excess iodine in spirulina causing issues)

Suggest you reduce levothyroxine by 12.5mcg daily. Retest in 6-8 weeks ..

Always test as early as possible in morning before eating or drinking anything apart from water and last dose levothyroxine 24 hours before test

jacobite33 profile image
jacobite33 in reply to SlowDragon

Morning Slowdragon I appreciate your reply! As I’ve said I stopped taking the ingenious and b12 a week before the test.As for the spirulina I only started taking that after the test and there is no iodine disclosed on the ingredients list.How can spirulina have excess iodine if it doesn’t contain it?

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

Goggle shows many links saying spirulina does contain iodine......and many saying it doesn’t

Only you can decide if it’s worth trying

helvella profile image
helvellaAdministratorThyroid UK in reply to SlowDragon

Absolutely true.

I think that some is grown in definitely extremely low iodine solutions. But some has significant iodine either because it just happens, or because it is purposely added.

Further, there appears to be a widespread assumption that spirulina is some sort of seaweed.

You can only go by the product you buy and what it lists. But you need to trust their information. Which I find difficult as it always comes from the producer -> distributor -> retailer who are by no means disinterested parties.

jacobite33 profile image
jacobite33 in reply to SlowDragon

Indeed Slowdragon.The brand i’m taking is grown in fresh water.I just received an email from them stating they don’t test for iodine as it’s not a significant value and this is why it’s not listed in the nutritional content.No doubt there are traces of iodine as its naturally present in soil and water.That shouldn’t be enough to impact your health as other foods contain it and I think the benefits out way this.Well that’s my verdict.Besides it takes 3-6 weeks to be grown fresh in a small tank and along with your own home grown vegetables you defiantly know there’s nothing added.Thanks again for replying!

Miffie profile image
Miffie

I noticed you say you have been increasing levo dose over the last eight weeks, does this mean you were not on the same dose for 6-8 weeks prior to this test? Sadly it’s very likely not a true result if so, dose should be constant for at least six weeks before test.

Those thyroid results suggest you are possibly over medicated. Vit D is too low and I think you need to improve that before adding more levo. Low vit D mimics symptoms of hypothyroidism. I know I felt grim when vitamin D deficient and need to be 100+ at a minimum.

I wonder why you have added seaweed spirulina as I thought it was thought unsuitable for those with any autoimmune conditions? From your raised antibodies I assumed you had Hashimotos. I know some people with thyroid conditions like to avoid maca as it contains goitrogens. However I have eaten goitrogens in vegetables all my life as part of a balanced diet and suffered no ill effects. I have had hypothyroidism since childhood and cannot relate to any dietary causes of changes in thyroid health.

jacobite33 profile image
jacobite33

I upped my dose as I was to low going by my October blood results I got from the doctor.I started taking 5000iu of vitamin D with K2 this morning to try up my vitamin D.Will improve my Vitamin D but won’t take any extra levothyroxine.I was initially taking 125mcg per day till last year.I added a seaweed capsule spirulina and the maca as I am just trying to become healthier and I have stomach issues and trying to resolve them.I don’t have Hashimotos or so I have been told and those results are all new to me l to which it’s made things even more baffling.So I haven’t a clue where to start again to be truthful but thank you so much for replying that is sweet!

Miffie profile image
Miffie in reply to jacobite33

I obviously completely misunderstood your comment, “I gradually upped my dose the past eight weeks roughly.Changed brands too.Been on these new brands past couple of weeks”, which is why I wondered if you had tested too soon.

To be honest I must have some serious brain fog going on as I have been unable to find the October bloods, I can’t follow the levo doses either. I thought you had increased to 125mcg for 5 days and 100mcg for 2 days. However I see you were actually on 125 mcg daily until last year. Apologies for being a bit odd in my comments. Hopefully normal service will resume any day now. 🙂

Sorry I suggested you had Hashimotos based on raised antibodies. I just assumed as so many have Hashi, perhaps you have Graves.

I wish you all the best on your journey with the supplements you have chosen.

jacobite33 profile image
jacobite33 in reply to Miffie

Not a problem Miffie I completely misunderstand things quite regular to be truthful and I totally get the brain fog too! I don’t know about the normal as I’m not your typical definition of normal 😂 Thanks for your reply and help anyway! Hashimotos and Graves? It’s getting more complicated.You stay safe and take care!

SlowDragon profile image
SlowDragonAdministrator in reply to jacobite33

You certainly do have Hashimoto’s

Gut issues are frequently linked to low stomach acid and gluten intolerance

Low stomach acid can be a common hypothyroid issue

Thousands of posts on here about low stomach acid

healthunlocked.com/search/p...

Web links re low stomach acid and reflux and hypothyroidism

nutritionjersey.com/high-or...

articles.mercola.com/sites/...

thyroidpharmacist.com/artic...

stopthethyroidmadness.com/s...

healthygut.com/articles/3-t...

naturalendocrinesolutions.c...

meraki-nutrition.co.uk/indi...

huffingtonpost.co.uk/laura-...

lispine.com/blog/10-telling...

Protect your teeth if using ACV with mother

healthunlocked.com/thyroidu...

But you have high antibodies so I think that means it’s autoimmune and therefore Hashimotos? Someone with proper knowledge may correct me though! I’m sorry you’re feeling rubbish! x

jacobite33 profile image
jacobite33 in reply to Josephineinamachine

No idea josephineinamachine as those results have just confuzzled me more! Thank you for replying! Take care and stay safe

Josephineinamachine profile image
Josephineinamachine in reply to jacobite33

Can you get to see an Endo jacobite33 especially as you’re feeling so unwell at the moment?

jacobite33 profile image
jacobite33 in reply to Josephineinamachine

Morning Josephineinamachine.I eventually got my doctor to refer me to one about six weeks ago although he said he wouldn’t see me as my bloods were all ok.Anyhow with the current COVID is just the waiting to see if I get an appointment to see one.Since I might be over medicated again I’m wondering if that’s possibly causing the high Anti-Thyroidperoxidase? If you could possibly maybe advise me there that would be fantastic! Stay safe and take care!

Josephineinamachine profile image
Josephineinamachine in reply to jacobite33

Morning jacobite33 I’m going to ask SlowDragon if she can advise on the high antibodies here as I’m very new to all of this myself and wouldn’t want to give you my thoughts in case they’re completely batty. Well, they usually are, especially with brain fog. Last thing you need is batty advice. SlowDragon gives grand advice 😊 Take care x

SlowDragon profile image
SlowDragonAdministrator

High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s.....did you know cause of your hypothyroidism is autoimmune thyroid disease?

Presumably your Male looking at range on ferritin

How much approx do you weigh in kilo

Was this test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

Which brand of levothyroxine are you currently taking

Bloods should be retested a minimum of 6-8 weeks after an6 dose or brand change in levothyroxine

So you tested too soon after dose and brand change

Vitamin D is too low

Are you currently taking any vitamin D supplements?

Folate is also way too low

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.

This can help keep all B vitamins in balance and will help improve B12 levels too

Difference between folate and folic acid

chriskresser.com/folate-vs-...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)

Or Thorne Basic B is another option that contain folate, but is large capsule

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

Personally, in that week of stopping vitamin B complex before blood tests, I then supplement separate folate and separate B12 (both by Jarrow)

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