Hi ive been prescribed liquid thyroxine. I had the gp put on the prescription Teva brand as ive had a some positive comments from others on here that Teva liquid is not like the Teva tablets and were doing well on it. I spoke to the pharmacist and was told she would order it in but can not guarantee that it will be Teva. I said i dont want to have whatever comes in and be on different brands all the time just like how it was getting with the tablets. Everytime i picked my prescription up they would try and give me something else and say Wockehart and soon so will Mercury Pharma be hard to get. I refuse to accept other brands and they put another order in and get them but why not make sure its what i want in the beginning.
I give up.
Do i have to accept this is how it is everywhere or can i insist on one brand of liquid thyroxine or is it time to find a new pharmacy?
I pick my prescription up tomorrow would be grateful for any advice before i go there.
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Odinil
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I’m on liquid Levothyroxine medication. I get Ten Pharma brand. I use to prefer Wockhardt brand but it was withdrawn due to an issue with it. Like you I really didn’t want to change brands. However, I accepted the Ten Pharma brand and have done so now for at least a year. I always get Ten Pharma and have no issues with it thankfully. So there seems to be no supply issues with it if you’d like a constant brand available. I don’t like changing brands either only as my system doesn’t seem to like changes.
My pharmacist always tries to get me the brand I’m on. I always order my prescription well in advance in case there’s an issue to make sure I never run out. If they can’t get the brand I need straight away I can wait then until I do. Wockhardt carry a safety stock, so if your pharmacist calls Wockhardt in Wrexham North Wales they will send out for next day. I’ve done this in the past. Some pharmacist are a bit lazy. So I just do it then they can’t argue or put you off. After all it’s your body snd you know what you feel best on.
Hi,I tried for months requesting Wockhardt 50mcg liquid Levothyroxine. My pharmacy couldn’t source it. I phoned Wockhardt up several times and they kept saying it was withdrawn and have to go through safety checks etc also. In the end I gave up and continued on with Ten Pharma liquid. My prescription still says only supply Wockhardt for myself and I still only get Ten Pharma.
If you hear to the contrary please could you let me know.
I’ve just phoned Wockhardt. The 50mcg has just come back into stock. I’ve just put through a prescription which indicates I must have Wockhardt only. I’ve also phoned my pharmacy and they’re going to try and get it for me. Thank you very much for this information.
Hi PammyDo you not want to continue on Ten Pharma. Have you tried Wockehart then as you seem to want to change to that brand? Any advice would be appreciated. Im picking my prescription up this morning not sure what they are going to give me. It states Teva liquid on prescription but who knows i dont know enough about it so will have to accept whatever it is i suppose until i can educate myself more.
I started Levo liquid on the Wockhardt brand and had no issues at all. Then some months into it Wockhardt withdrew the 50mcg due to something was wrong with it. I take 75mcg per day ( I take it in two doses of 37mcg each time... long story). I then had no alternative but to switch to Ten Pharma, that’s been ok but I still preferred Wockhardt brand. I’ve learnt today that this week they are supplying it again. I called Wockhardt themselves to make sure. So I’ve put in a prescription this morning snd hope to be dispensed Wockhardt from my pharmacy. I called them also as my prescription had always stated I must have Wockhardt brand. Let’s hope hey.
If you’re starting liquid Levothyroxine I’d suggest you try Wockhardt or Ten Pharma if you can’t get what you normally have.
Great thing about the liquid Levothyroxine is that as it’s in liquid form you can draw up into the syringe exactly how much you need to take to get your level right. Once you’ve had a blood test for T4 you can lower slightly or increase if you need to as you don’t have to go up or down in 25mcg’s like with the tablet form. It’s much better at getting your individual dose correct just for yourself.
HiI cant believe the timing ive been on Actavis 50mg and Wockehart 25mg split in half so 62mg since my thyroid removal was doing ok with it until Actavis was taken over by Accord been a nightmare since last year stopped Accord started Mercury Pharma and Wockehart that didnt agree with me either so been taking all my 62.5mg with Wockehart still not right seems to be making my eyes blurred although that could be the after effect of MP and Accord. I ve also noticed that Wockehart makes me put on weight. Because i didnt know what brand to ask my gp to put on my prescription i went with some comments on here that Teva is working well for some. I got Teva now so i'll give it a try and see how i get on i know i cant tolerate the Teva pills but apparently the liquid doesnt have any of the nasties in it like the pills. If i dont get on with Teva maybe i'll ask for Wockehart next time.
Im keeping my fingers crossed as ive fought hard for the liquid i personally think i need some T3 as im a poor converter, wish me luck x
When you say your eyes are blurry and putting on weight that certainly sounds like you are under medicated. I use to get blurred vision and even double vision occasionally. I also piled on loads of weight. I’ve since found out I’m a poor converter of Levothyroxine T4 to active T3. T3 is the most important hormone. Without good levels you will feel all sorts of bad symptoms. Has your Dr checked your T3 lately. Do you know if you are a poor converter or not. There is a gene test called DIO2. This can be checked through Regenerus Laboratories, it’s promoted on here. I did it a couple of years ago. Mine came back positive,which means I converter very poorly. I’m now also on T3 Liothyronine alonfg side T4 Levothyroxine. I went private and that made a huge difference to my treatment and being diagnosed properly. Since starting T3 Liothyronine 2 years ago I feel 20 years younger and also lost 4st without even trying to. I got over weight being under medicated for over a decade and no matter what I tried I couldn’t shift it. I ended up in a real bad way 2018:19 snd was hospitalised a few times but they never diagnosed me.I’d suggest you get your T3 levels checked if you haven’t already. If your Dr won’t do it you can get it checked privately by post.
HiYes ive had loads of blood tests. Gp wont do T3 but the hospital do. They can see im a poor converter for the past 6 years since my op but because i wasnt made aware of T3 now i know why! I had appointment two weeks ago with my nhs consultant even now with it so evident i need T3 its still not being admitted. My T3 is always the low end of range and T4 always high in range. My B12 is is low and my folate too. Im trying to increase with oral spray.
The consultant said she wouldnt put me on T3 because she wants my TSH to go down and get my thyroxine sorted. She then muttered under her breath maybe then i will give you some T3.
I dont know the system only the battle to get T3 if she says i need it does my gp have to fund it? if he doesnt agree is that when i have to go private and get a private prescription and source it myself. I really dont want to do that as i want to be under the hospital and supervised. I have yearly check ups because of the cancer. Im at the stage of trying liquid thyroxine tomorrow morning for the first time. Hopefully i get on with it but if not should i then be thinking of going private because if i need T3 im never going to be ok on just T4.
I went on a trial of T3 for 3 months through my private only Endocrinologist. I say private ‘only’ as he had no connection with the NHS. It was a huge success for me. I cannot explain how much better I became so quickly. I paid £60 for x200 20mcg T3 tablets which I sourced from Germany. Sadly we can’t get them from Germany post Brexit but we can get them from the U.K. at £1 per tablet currently. My NHS Endo still refused to prescribe T3 even though it was completely evident I needed it. Suddenly on my next consultation with my NHS Endo he wrote out a T3 prescription to my utter surprise. I questioned this with my GP a couple of weeks later. He told me that my very senior private only Endocrinologist intervened and the NHS Endo was reprimanded!! I do get along well with my current GP. He had been trying to fight my corner. You do need T3 I’d definitely say. My sister who also had thyroid cancer is in a very similar situation to yourself. They won’t give her T3 either. Just swamp her with Levo to keep the TSH suppressed to keep the cancer from returning. She’s piled on many stones since. Her T3 is low too. There’s no way they’ll give her T3. I’ve said go private but she still hasn’t. Honestly in two consultations I was diagnosed snd given T3. Soon after that the NHS prescribed it too. You need someone with clout behind them. Someone who they can’t argue with. This person is my endocrinologist. You can google him and find out about him. He is the leading Endocrinologist in the U.K. and probably Europe. He also does telephone consultations once diagnosed at £100 per consultation. He answers emails too. I rarely need to speak with him now. You can still see your NHS Endo along side any private Endo too. All you need is a GP referral letter to see my private Endocrinologist. I’ll give you his details in a private message as I can’t on here.
The NHS wasted too many years of my life. I trusted them but soon found out when I really needed their help they hadn’t got a clue about the thyroid. I was shocked to be honest. I thought they’d help people like me but they failed on every level. If I hadn’t have gone private I don’t know where I’d be today. Possibly dead, without being too dramatic. I’ve messaged you privately. So just let me know if you’d like his details. I wish I could show you photos of what I was like before being properly treated and what I’m like today. My family and friends are amazed at my turnaround.
I travelled a 400 mile round trip going private but it was worth every mile and penny.
Well done for getting where you are today.I did say to my consultant, so if i need T3, after her telling me that gp's and nhs consultants have been told they cannot prescribe T3 on nhs, i will have to see a private consultant is that right, thats when she said i can give you a private prescription. I didnt know what that entailed at the time but later she said maybe she would give me some T3 once i settle down on liquid and tsh goes down. So does she mean she'll give it to me on a trail basis and if it works is that when she will refer me back to my gp to fund it because she wrote to him re liquid thyroxine suggesting that he funds it as Addensbrooke is a trust and will not fund it. So if she gives me a private prescription does that mean i still need to see a private endo?
Sorry im trying to get my head round this so forgive me if i keep going over the same thing.
Basically if my consultant agrees to let me have some T3 and it works will they carry on giving it to me on nhs?
If she gives me a private prescription does that mean i wont get it on nhs and must pay for it?
If thats the case is it still beneficial to see a private endo?
My understanding is that the NHS can prescribe T3 if it is proven you need it. And the way they prove it is by giving you blood tests for TSH, T4 and T3. They check if your T4 is high snd if your T3 is still too low. It’s not that they cannot prescribe under any circumstances. They can when proven you need it. Your Endo needs to prescribe you T3 and supply it on the NHS. They should just prescribe and supply as any other medication. Your GP cannot prescribe T3, mine cannot although I do get my liquid Levothyroxine by prescription off my GP. I get my liothyronine T3 off my NHS Endo and collect it from the hospital pharmacy.
If they can only give you a private prescription for T3 Liothyronine then you’ll have to fund it. It costs £1 per tablet of 20mcg here in the U.K. privately. So, it’ll depend on your dose how much it’ll cost you if you it’s to be private.
For sure seeing a private Endocrinologist is the quickest route to get T3 but if it’s already been offered by your NHS Endo then I’d go for that saving private Endo consultation costs. Like you said earlier that if you need T3 you just need T3 prescribed. Plus you’ll need the Levo too. Most important is getting on the correct dose. I was advised to take my dose twice a day and that works well for you myself.
Thats what i dont understand the endo must know i need it but says my blood tests are all normal. I tell her that my T3 is too low it should be at least mid way in range i quote its T3 that gives you the symptoms not T4 but she says she has been told she cannot prescribe it. A couple of years ago i had a different endo at Addensbrooke and she said she would bring my case up at a meeting to see if i could be given a three month trial of T3 she said before she did that they would write to my gp asking if he would be prepared to continue funding it after the trial period, she got no reply from my gp at the time, ive changed my gp since, it was also turned down by the panel they wouldnt agree to put me on a three month trial. At the time i didnt fully understand what the procedure was i just accepted it i know different now. It seems to me that the battle is between the gp and endos who's goingto fund it so we are caught up in the middle.Im sure i would benefit having T3 but how can i convince the endo to give it to me. I know she hinted at it two weeks ago but how much longer have i got to be strung along with them telling me my blood results for T4 and T3 are normal. It seems they are hoping i just put up with not feeling well on T4 only.
Im just so worn out by it all i dont want to wait until my next appointment to see endo in December. I told my endo all the symptoms i was experiencing even saying i feel like giving up so shes knows how desparate i am she now wants me to have blood tests for all sorts i suppose its a good thing to get it all checked out but im running on empty. If i do need T3 which my blood results seem to prove i would benefit i cant see me any better on the liquid thyroxine.
I never felt any better on the liquid Levothyroxine. I keep taking it as I take slightly less than my prescribed amount of 75 a day. I take about 65 as this gets me right where I need to be. So I just continue with the liquid. It’s much more expensive than the tablet form. It’s your local CCG that has ruled no T3 to be prescribed. But there is an NHS document I was sent by Slowdragon ages ago saying they can prescribe under certain conditions. The condition is that you prove you need it. Snd the issue is cost. The NHS contract with their supplies of T3 has increased dramatically cost wise. But elsewhere in the world it’s cheap. It looks like you’ve gone down the path to try and get T3 off your NHS but they still refuse. Why don’t you go private now. At least that way you can get a 3 month trial of T3, see how you improve and let your Endo and GP know. Have you done the DIO2 gene test? You can get this done through Regenerus Laboratories which is promoted on here. I did it and when it came back positive meaning I struggle to convert I took a copy to my GP. He was pleased I brought it and scanned it onto my NHS file. It’s all proof you need T3. My Endo is recognised by all the NHS Endo’s. He’s written many books and was the lead Endocrine Professor in the country until he stepped back from the NHS snd now just works private only in his elderly years. He attends Parliament for giving advise too. He is pro T3 medication and combined treatment. He is not expensive. I know you said you have a list of T3 friendly Endo’s in your area but you could just go straight to the top and get it sorted quickly. I’m not pushing you. I’ve lived through getting nowhere with the NHS even though I was collapsing every other day from lack of energy due to not converting. A number of people on here have had success like myself with my Private Endo. Thing is he has clout with the NHS. I paid privately for my T3 but now get it on the NHS too. I’m trying to help you not push you into anything you don’t want to do.
I think you need to consider how you feel currently and where you’d like to be and how you want to feel in say 6 months time, still chasing the NHS or finally been given a T3 trial.
One thing is clear you’ll never convert well if your still not with your Levo T4 over range. Pushed over range deliberately to keep your TSH suppressed due to previous cancer. My argument with these Drs is why not lower the Levo T4 to within range and give T3 which naturally lowers the TSH. Most people on here who take T3 battle with their Endo’s as taking T3 suppresses your TSH. My NHS Endo told me at first that if my TSH goes suppressed he will stop prescribing T3 to me. Threatening or what. So I make sure my TSH is not suppressed. I’ve reported this threat to my local MP and GP also. Then my sister goes for her consultation and they tell her that her TSH must be suppressed and don’t explain any of the issues having too high T4 Levothyroxine can cause or suppressed TSH can cause. The complete opposite to my consultation. Anyways I digress.
I’ll leave it up to you as we are going a bit round in circles here now. All I’d say is that it’s likely you’ll get nowhere with the NHS. That’s the experience of most sufferers.
What a mess having to fight for what we need to be well i cant believe it. Thank you for helping me. I'll look the blood test up you mentioned to see if im a non converter and if you can message the details of your endo i would greatly appreciate it thank you. One question was your B12 low? As i know how that can affect levo from working well.
Hi just been reading your comments again which were so helpful.Ive been taking Teva 50micrograms/5ml liquid now since 17th April my dose on tablets was 62.5mg my gp said take 75 5ml plus 2.5ml when i started it but on this dose i felt it was too high so dropped it to 70 still felt it was too high i didnt feel well. I m gradually going down now on 50 plus 0.5. Since on it i have gained a stone in 2 months my stomach is swollen and aches and so uncomfortable im going to put the dose back up to see if i can steady the weight gain. Ive got an appointment to speak to my consultant in july to discuss my blood tests results that i will have had tsh t3 and t4. My last one my tsh had gone up to 5.1 i wasnt on liquid then just a change over of brand tablets she wants to get my tsh down because of the cancer returning. She sort of mutted under her breath that maybe she would give me a little t3 but first must get my tsh down.
I was doing so well on actavis and wockehart it all went to pot when i started on accord last september down hill ever since.
I thought i was going to be so much better on liquid form but i think my system is all over the place and im so confused to know what to do next. I can feel my legs burning like i have water retention my stomach is heavy and aches and my body doesnt feel it belongs to me and im not normally overweight. My eyesight has been the most worrying thing blurred vision never been right since coming off actavis tried taking all dosage on wockehart but put on weight aches and pains in hands arms feet blurred vision vision better when tried MP but terrible palpatations and pains. Every tablet i have tried since actavis has given me horrible side effects. Im going to see what my consultant does in july if im still not happy i will see Professor Wass hopefully face to face not over the phone. In fact im going to ring next week and get all the info from his secretary see what my consultant says then decide. Ive had enough.
Not sure whether to try another liquid brand maybe Teva isnt good for me its lactose free i havent got a lactose problem so i dont need it to be lactose free.
I’m not surprised you’re at your wits end. I’d say blurred vision is definitely under medicated. This also happened to me before I finally was prescribed T3 Liothyronine along with Levothyroxine T4. It definitely sounds as though you are under medicated. You need blood tests to determine this though. I take Wockhardt Levothyroxine liquid and also did well on Ten Pharma brand liquid Levothyroxine too.
Next step is those blood tests and go from there. You might well need an increase. Be interesting to see how well you are converting as you may need Liothyronine T3 too. Unfortunately it all takes time. And during this time we feel bloody awful. Even mentioning prof Wass’s name to your consultant will make them re think their treatment for you. All NHS Endo’s have heard of Prof Wass and have him on a pedestal, deservedly.
Thanks for your advice again.When i started taking all my dosage 62.5mg with Wockeharte tablets i saw an increase in my weight pains in hands and arms with the blurred vision i was ok when i was taking it with the actavis so i wondered how i would be taking Wockeharte liquid. I'll have my bloods done a week before my telephone consultation in July see what they show up and go from there.
I hate doing over the phone shes hard to understand at the best of times. If i mention Professor Wass and that im seeing him privately will that go against me with her in other words am i saying im questioning her treatment of me because i need to keep under Addensbrooke for my yearly check ups.
You can choose to see whomever you wish medically. It’s your body. Saying you are starting to seek further help from a private only Endocrinologist and that you’re paying also should come across that you are still suffering and need help desperately as the NHS see to be failing you. They certainly failed me. I was diagnosed in 2 consultations and prescribed T3 trial. Within days I was so so much better. I could barely walk or sit up at that point. Next thing I’m walking normally and could virtually do anything. It was quite incredible. It was also quite criminal of the NHS to refuse me a T3 trial as I’m a poor converter. Just be honest I’d say. Tell her you’re struggling and want expert help if she can’t help to get you well. The first words Proff Wass said to me was that it was his job to get me well and he did, quite rapidly.
Your health and your NHS records belong to you. It’s down to each individual to obtain the best treatment they can. And if you can afford to I’d go private. I only think this due to my own unbelievable experiences and being abandoned by the NHS. All I needed was T3.
Thanks again.I rang Proffessor Wass's secretary had to leave a voicemail.
My plan is to get bloods done before my appointment in July see what the consultant says if im still unhappy with the conversation i'll let her know i intend to see Proffessor Wass and in the meantime get all the info i need to make plans to see him.
I meant to ask you this when you started on liquid did you reduce your dosage ive read that because its absorbed better then tablets you may need to reduce slightly.
No I didn’t reduce my dose when starting liquid Levothyroxine. We kept itthe same. It’s always within range and I’ve never changed it from 75 when on tablet form. I didn’t put anymore weight on. I’d already piled on 4st by being completely under medicated not having T3. Now with T3 added ive lost 4st and feel years younger, full of energy and my mood is very good too. T3 was my answer. Good you’ve contacted his Secretary. Ge your bloods and go from there.
Thats good you deserve to feel good now after all you've done to get there.My gp who is the endocrine doctor at my surgery who i havent seen as ive just joined them when speaking on the phone told me to take 75 i said im on 62.5mg tablet anything higher and i get horrible smpytoms heart palpatations pins and needles pains in hands and arms blurry eyes brain fog he said no take 75 i did as i was told and i got all the smpytoms so i took myself down to 65 and the weight has piled on so went down to 62.5 and my legs are stinging ive got water retention in my legs around my knees and stomach so now i dont know what to do. I struggled getting out of bed this morning and finding it hard to keep my job down as its full on. Im going to ask my gp for blood tests tsh and t4 he wont do t3. Also my b12 and folate is low borderline looking up the smpytoms of b12 deficiency they seem the same. I started taking b12 drops and a b complex tablet but felt worst tried just the drops seem to ache even more. If i get tsh and t4 together with b12 and folate done by the gp again as it was only done about two months ago even though my consultant told him to do the tests in 6 to 8 weeks after starting the liquid they havent got in touch with me.
Next i will have the ones done at addensbrooke which will include t3 and b12 that way i will have two blood tests results to show Proffessor Wass if no joy from my consultant. Ive just been to the pharmacy i get my prescription from and told her i dont want Teva again on my next prescription felt she thought i was being a pain their ok giving all this medicine out but dont want the trouble of finding an alternative to help.
Sorry to go on and hope im making sense im trying to get it out without making it an assay lol. Its good to know im telling someone who understands x
You definitely sound under medicated. The quicker you get your bloods done the better really. Then your medication can be adjusted. All what you are saying are hypothyroidism symptoms meaning your levels are too low. Good idea to have a few blood tests to show Prof W. Or at least post them along with your GP referral letter. Prof W needs a GP referral letter to get your first consultation.
You can request through the medication practice manager that you stick to one certain brand that suits you. This is what I did. My prescription always states ‘Wockhardt’ only.
I have tried Ten Pharma also which worked ok too.
Yes also check all your vitamins B12, ferritin, D and folate. They all need to be optimal not just scraping in the bottom of the ranges. I get B12 injections now plus Ferris Fumerate on repeat prescription. I had low results but now both good.
I have Teva liquid on my prescription and thats what the pharmacy gave me. I was recommended to it by someone on here it worked for them i didnt know what brands there were in liquid. When it came to order again i asked the pharmacist's advice telling her i wanted to try a different brand as i have put so much weight on she said she couldnt recommend another brand and stick to Teva. I mentioned Wockehart but she said she couldnt get it. I believe Teva is one of the cheapest.Soon i will have MY blood tests results from the gp and hospital and will discuss them with my consultant which wont be easy over the phone getting my point over.
The blood tests thats been recommended on here are D102 gene test, adrenal stress test and a PA test but it will be very expensive especially if i pay private to see a private consultant too. Isnt it a terrible situation that you cant get the treatment you obviously need.
My last B12 and folate results were borderline low my gp said that was fine grrr!
You need to speak to or email your GP practise medicine manager. Explain the Teva problem and ask them to put Wockhardt on your prescription that way the pharmacy must adhere. This is what I did. Then the pharmacy can phone Wockhardt in Wrexham north Wales who will deliver direct to your pharmacy. My pharmacy initially said they couldn’t get Wockhardt. I phoned Wockhardt Cust service myself and found out they deliver direct if requested. Phone your Surgery Medication manager today and see what they say.
You can get good vitamin B12 supplements yourself to boost that if they won’t give you the quarterly injections.
Do you think Wockehart is better than Teva?Ive spoken to 7 pharmacists all independent when they look up Wockehart they say its not available. One said they dont have to take notice what brand is on a prescription anymore been that way now for two years. I will speak to the surgery like you suggested they will probably give me a hard time when they see how expensive it is and ask why that brand if you havent had it before in liquid form.
If my consultant agrees to give me T3 thats if my tsh has gone down ive been told theres only three nhs brands to choose from morningside teva and mercury pharma are these brands if for T3?
I have Mayne Pharma 5mcg brand from the NHS. I find it’s very similar to Thybon Henning which come in 20mcg and then I cut easily into quarter. The pharmacies you use probably just get their stock from a specific supplier who may not supply Wockhardt. They can phone Wockhardt in Wrexham and they will deliver directly to the pharmacist, this is the service I have. It’s all doable easily. Please remember that the NHS is owned by the general public and if we genuinely need help and a good service then we should get that. The money supporting the NHS is funded by all of us.
Ive just got my blood test results back from gp.Receptionist: yes all fine!
This was suppose to be for TSH T4, T3 and B12.
T4 : 22.0 its always high never any lower
TSH; 0.7 thats gone down from 5.49
No T3 or B12 result
I asked why not i t was on my blood test form because i rang the surgery beforehand to make sure it was on there and asked the woman who took the blood just to make sure.
I said to the receptionist T3 was not done because if it was to show i needed it the doctor wont prescribe it same with my B12. I told her i will be sending in a complaint.
Yesterday i went to addensbrooke hospital to have a 24 hour heart monitor fitted
because of the palpatations and breathlessness i had when taking the tablets which i havent had since being on liquid. While there i had another blood test this was for TSH T3 and B12 no T4 not sure why T4 wasnt included.
This was done because i asked for it to be done, so between the two of them at least i will have what i need no thanks to the gp.
My consultant will be calling me on the 22nd will be interesting to see what she says because she sort of hinted she may give me a small amount of T3 but only if my TSH is lower. Well it is but not holding my breath!
I went to pick my Teva liquid up from the pharmacy i told them just give me one bottle of Teva dont order any more as i want to try another brand they gave me my one bottle and from no where produced some other make i hadnt heard of to try when i went to open it the expiry date was june 21.
I took it back i was treated like it was my fault being reminded how expensive it is and they have to pay for it i said it was you that gave it to me i never asked you for it i told you to wait until i looked up the other brands available and come back to them i was told you have to have whatever the suppliers send us i was told the same thing when i rang other pharmacies, she said you can still take it three months after the expiry date i said no thanks i have enough trouble as it is without taking out of date meds and it states clearly on the leaflet inside not to take after expiry date. Obviously a spare bottle of liquid that they had been left with!!!
So now ive got to pick up tomorrow a brand that their supplier sends them.
This is a nightmare.
Gp's, consultants and bloody pharmanices. Like you say we have paid our dues to the nhs, for years i never went to the doctors now when i need them im being let down and made to feel im being a nuisance. Id be happy not to have to deal with any of them and look after myself if i could.
I dont trust any of them!
I dont think i have had one truthful answer since my op 6 years ago its disgusting and corrupt denying people the right to have the treatment they need and have paid for 10 fold over the years.
Ive had my moan sorry lol.
If i get no joy on the 22nd i have no choice but to go private.
Just to add when i supplemented with B12 i had terrible pains in my hands wrists fingers and lower arms tingling and numbness achey body. As soon as i stopped it it went.
I was taking B12 better you drops stopped that then Igennus super B complex one tablet stopped that then B12 drops nature provides gave them all a chance but couldnt stand the pains.
I think im just ultra sensitive to all meds. Never taking anything until my op. You are probably right about me being under medicated but its no good me upping my dosage because i get get so many side effects and its not converting to T3 being a poor convertor. So T3 does seem the obvious answer. Maybe that wont suit me who knows its another tablet???
Can you help me please.Since ive been having Teva liquid i have put on so much weight a stone since May not all over just around my middle i look pregnant. Teva is lastose free. I had a word with my pharmacist and told her i dont want anything sugar free as i think its making me pile on the weight and causing stomach discomfort. It has maltitol sorry i dont think ive spelt it right, in it i looked it up and it does cause weight gain that you cant shift and cause gastric problems. I never have anything sugar free as i dont want any artificial sweeteners as a substitute.
Im up against the pharmacist now not just gp and consultant. They told me that i have to have whatever the supplier sends i said right but i dont want sugar free. What did i get when i picked it up yesterday Wockehart sugar free. I give up!
I dont want to come off the liquid as i dont get palpations with it like i did on tablets so thats good but the heaviness and swollen stomach is really getting me down its so uncomfortable. I know you said you have Wockehart do you have sugar free?
Can you get it without it being sugar free?
Im going to take it back tomorrow they wont be happy with me all they keep saying is how expensive it is. I have to bite ny tongue i want to say ive been paying into the national health all my working life never went to the doctors until now i think the nhs owe me that. Grrrr!
Your help would be appreciated this is sending me crazy 😤
Hi. I’m sorry to hear what you are going through. The only liquid Levothyroxine I’ve had and felt fine on are Ten Pharma brand or Wockhardt brand. You could look up Ten Pharma and see if that is sugar free. I know Wockhardt is definitely sugar and colouring free. It is expensive I’ve read. The pharmacy can’t do anything with it once a bottle has been dispensed. It’ll go in the bin. They’ll see that as a huge waste. But if you aren’t happy on that brand then I’d try Ten Pharma. I used this for about a year and was fine on it. Do you have any gut issues to give you a swollen stomach. I’ve never suffered with this myself. Or is there any other issues causing this.
No not that i know of. It's only since i started the liquid. Its so noticable around my midriff im very conscious of it.Was suppose to have a call booked on Thursday with my consultant to discuss my blood test results tsh and t3 24 hour heart monitor and neurogy results didnt get the call apparently the cancellation letter was done but never sent out. Great hey!
I complained and now shes calling me tomorrow.
I will see what she has to say and if im still not satisfied i'll do what i have to do.
I'll put my results up when i get them. Also having a face to face appointment with an endocrine gp ever seen him before in two weeks time be interesting to see what he has to say especially about t3.
Your gp needs to specify the brand on the prescription. Luckily you check beforehand but this is a bit arduous and no doubt stressful. Some pharmacies only use one supply company for certain meds. Do you have a Boots (bigger selection) or Lloyds (usually stick with the same supply chain and good with alternatives)
Apparently one independent pharmacist told me they dont have to prescribe a brand thats on a prescription anymore been that way for the past two years.True, i doubt it, i dont know anymore.
Every pharmacist i have spoken to chain and independent have all said the same that its whatever the suppliers send them also that they dont have to supply what your gp puts on your prescription, thats been like that for about two years. Whether thats true or not it does seem to be a big problem reading some of the comments on here. I was picking up my prescription yesterday and in the queue was a woman complaining that she was given the wrong sleeping pills she said every time i collect myprescription you give me some other brand even though i tell you i can only tolerate one certain brand. It does seem to be a common problem.
Current NHS England SPS advice about generic vs. brand name prescribing.
As I read it, there is the potential for brand name prescribing of levothyroxine on grounds of bioavailability and important differences in formulation. Surely, intolerance of an ingredient is an important difference?
Which medicines should be considered for brand-name prescribing in primary care?
Karoline Brennan, Senior Medicines Information Pharmacist, North West Medicines Information Centre · Published 14 November 2020
Topics: Primary Care
This Q&A is being updated and is due to be published Autumn 2021.
Prescribing medicines by generic rather than brand name can improve cost-effectiveness and is encouraged. However, there are some circumstances in which continuity of the same product is important for patient safety and prescribing a specific manufacturer’s product (brand or generic) is preferred. This Medicines Q&A describes such situations and lists medicines that may be considered for brand-name prescribing in primary care.
These include:
• Where there is a difference in bioavailability between brands of the same medicine, particularly if the medicine has a narrow therapeutic index.
• Where modified-release preparations are not interchangeable.
• Where there are important differences in formulation between brands of the same medicine.
• Where administration devices (e.g. inhaler or self-injection) have different instructions for use and patient familiarity with one product is important.
• Where the product is a biological rather than chemical entity.
• Where products contain multiple ingredients and brand-name prescribing aids identification.
• Where there are differences in licensed indications.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
And that was partly because I wanted to update my medicines document if Wockhardt had dropped the product.
Prescription from private endo
T3 on private prescription
Pharmacist blocking prescription
NDT private prescription 
Private prescription for Armour
