Hi everyone. I hope you are all staying safe & keeping well. I’m sorry but I’m unsure how to find my way around this site to find the relevant information. I’ve been hypothyroid for three years & was ok until last August. I had a ‘flare up’ & haven’t felt right since. I had bloods done again November & noticed I needed an increase of Levo. All was well until my bp become very high in December & was under GP. All good until few days ago. I began having palpitations, very dry mouth & sleepless nights. I checked bp yesterday & the number increased throughout the day. Last night I ended up in A&E with 215/100. Not sure why it would go this high. Has anyone experienced anything similar & if so, identified the cause. Am very concerned about it & am sure it’s thyroid related. Thanks in advance.
A&E with high blood pressure: Hi everyone. I hope... - Thyroid UK
A&E with high blood pressure
Winniepoo15
What did they say in A & E?
Were you given any medication?
Are you to follow up with GP?
What's your normal BP?
Hi seasidesusie. I remained in a&e for three hours & once my bp began to make a noticeable decrease, I was discharge with no meds & told to see GP. My normal bp is usually around 131/80 or a little higher. I’m in the process of changing my GP. I’m sure i have Hashimotos but GP will not have it because it doesn’t show on paper. I’m also concerned i could be type 2 diabetes. Thanks.
Winniepoo15
I think you should follow up with GP then. I expect they will want you to keep a record of your BP for a week or so, I had to do this a couple of years ago (I get white syndrome so it was more accurate to do it at home) and I ended up on a low dose BP medication.
I will try for an appointment this week as it needs urgent attention. My meds probably need adjusting. I’m going to ask for diabetes testing too because of some of my symptoms. Thanks seasidesusie.
Winniepoo15
I think if you ring your surgery tomorrow and tell them you had to go to A&E on Saturday night and they have told you to make an appointment with your GP ASAP then hopefully they will give you an appointment.
Hi SeasideSuzie. I spoke to Gp this morning & he’d already received all information from a&e. He’s said my meds probably too high & should reduce a little. He’s now testing my thyroid & diabetes. Must admit, it scared me.
Hi Winniepoo15I hope you are feeling a little better.
Did you increase your Levo recently? I find my BP fluctuates a few days after an increase. It always settles down though.
Do you know why you have high BP normally?
Stay safe
Hello. I increased my Levo dose early December, but not by a great deal. Haven’t felt great since August when I had this ‘flare up’. Sorry it’s the only way I can describe it. Bp went very high just before Christmas & dropped back down again. Now same has happened again but bp extremely high. Just spoken to GP. Checking bloods for thyroid & diabetes & has increased my bp meds. Watch this space!
My BP went up to 191/100 with a heart rate of 92. I was overdosed but thought it was stress. What are your diabetes symptoms
Hi. It could be my increase of levo. I was on 50mcg 4 days & 75mcg for 3. I increased the 50 to 75 & 75 to 87.5. Could be this little increase. I do get stressed from time to time but never had bp like this. This past week I’ve had very dry mouth, palpitations & high bp. Been so restless too. How much were you overdosed by Jodypody? Do you get other symptoms of hypo too? X
I wouldn’t say that was a very low increase. I upped my thyroxine beginning of sept last year from 75mcg every day to 100 twice a week and 75 the other 5 days. I would say that was a small amount.
Since having a blood test and speaking to my GP I’m now increasing my thyroxine to 100mcg x 4 days and 75 the other 3.
I probably should have done that in the first place, but prefer to do very slow increases.
Hi. I’m thinking you could be right. I didn’t think it was very much but once it’s in your system, if a tad too much, can cause havoc. Maybe this is what’s happened with me.
We’re all different, but maybe if you reduce to 75mcg every day, or even 5 days @ 75 and 2 @ 50? 🤷♀️I hope you feel better soon
Hi I was definitely overdosed. I’ve had to start from the beginning again. I was up ton4.25 grains now 2 grains but have put a fair amount of weight on. I hadn’t slept properly for over a year and now I am slightly under I prefer it.
Isn’t it a nuisance? That’s what I shall do if thyroid test shows I’m over. I’m only on Lev. Was you on levo initially? Is your t3 privately prescribed or are you lucky enough to have an understanding endo? I’ve never had a consultants appointment. I rarely sleep well & it’s awful.
I tried Levo only but after reading extensively on the subject I decided NDT is what I wanted. Thankfully I turned out to be a poor converter and I persuaded my endocrinologist to prescribe NDT. I now finance my own (Thai stuff was cheap) and the endo agreed to monitor me. There’s a reason why NDT costs more.
" I was on 50mcg 4 days & 75mcg for 3. I increased the 50 to 75 & 75 to 87.5. "I work this out to be 60mcg /day increased to 80mcg /day . so a 20mcg/day increase .
Perhaps that was too much of an increase in one go for you to tolerate ?
The most i would change my dose by nowadays is 12.5mcg/day at a time , and i'm starting to suspect that even that might be too much.
Hello sorry you ended up in A&E. I had similar and diagnosed with Myxedema though I also had partial paralysis. I was treated for stroke initially & hospitalised after three days it was clear it wasn't strokes so Myxedema diagnosed. I have had hypothyroidism symptoms for six years & always refused treatment as bloods read 'normal' hence Myxedema.
Silly question but does myxedema make the skin on the stomach feel uncomfortable/painful?
Yes, my upper arms and sometimes thighs x
I tried to do a 25 minute cardio workout and by stomach skin hurt (I’ve been a regular exerciser for years) I feel like Harry Seacombe since I’ve reduced my dose and calf pain comes quickly when I do any cardio too x??
I am so sorry and I get very painful joints which give out plus muscle pain in calf - I ran out of my preferred T3 and I rapidly went downhill. Taken a while to find one that works for me
I’m sorry to hear you ended up in hosp. What an awful experience thinking you’d had a stroke. I hope you’re now keeping well & properly monitored.
Thank you and no-one is monitoring me I feel totally abandoned and trying to keep myself alive and save my kidney transplant 🙏
This is really heart breaking.
Thank you means a lot as NHS do not care x
Chin up!That's right, fight for yourself!!
NHS is at its wits end.
If there are follow ups by phone in the mean time, please avail yourself of them.
When the situation's better, please make sure to see the doctor.
I read the UK covid situation has some improvement as in the case numbers have come down some. But of course, the new more infectious variants are a big headache. I'm not sure if I read u correctly, if u've had recent kidney transplant, of course, the safest place to be right now is home. So please keep yourself safe.
Best wishes.
Thank you and I have been shielding since March last year. My kidney transplant is nearly five years ago and being harmed by Myxedema. I begged Nephrologist and Endocrinologist to work together to save my life and they refuse to talk to one another! I keep safe and have the very occasional phone consultation however the ignorance of Myxedema is astounding. Please keep well x
THOSE PIGS!!
I know of myxedema from readings on the thyroid but my understanding is limited. If it's not too much trouble, could u tell me the connection between myxedema and your transplanted kidney?
Thank you
Myxedema causes fluid to go into the space around cells where is becomes a jelly like substance Mucin. I need fluid to remain in blood stream and pass through my transplant to keep it healthy - this is basic description
I really do feel for you. After everything you’ve been through with your health in the past, you had the gift of a new kidney, survived a lot of stress & worry & now being treated appallingly. Would the transplant team be able to support you in any way with referrals to the appropriate professionals? Might be worth chatting to your team. ❤️
Thank you 🙏 I have begged them to help and I was bullied relentlessly so much so I moved as they refused to believe me and the bloating was so severe I had a bladder prolapse - extremely dangerous for a kidney transplant patient. Writing to MP as it's a desperate situation
All the very best to you Mermaidblue. I hope you find the knowledgeable & caring professionals that you deserve. ❤️
I’m trying a new brand so I guess it’ll take a while to settle. Good job for lockdown as I’m down to one pair of jeans I can get my belly in to 😂
I checked bp yesterday & the number increased throughout the day.
Obviously if the rise is very pronounced that isn't good, but every healthy person has a BP which varies throughout the day :
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