I have an update. My thyroid surgery will be next Thursday. I just got told today! I need pre op and covid test first. I have a large lump pushing on windpipe but also they need to check if cancerous too. I have hashimotos thyroiditis officially diagnosed. And I have been prescribed levothyroxine even though my TSH is not at 10. My GP listened to the private endocrinologist and the NHS surgeon who both advised due to my TSH being above 2 and with the lump and hashimotos that I need levothyroxine. Thank you group, I would not know about any of this if you hadn't educated me and advised that symptoms mean something! Even if the NHS drs are telling you ur fine. If I had listened to them I would have my first endocrinologist appointment in a year! And it wasn't even for thyroid issues. My previous GP would not consider tnyroid and said only a quack would prescribe levothyroxine for hashimotos. I am frightened but at least I know what is wrong and i am believed now.
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Sleepy101
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I had some NHS thyroid testing but not vitamins again. I am planning to have another full thyroid test after operation.
I've been using vitamin D spray by better you oral spray 3000 IU. Super B-complex and selenium 200ug daily. I need to add in a magnesium but I didnt know which one to buy.
I started Levothyroxine 50 2 days ago. I will have an NHS thyroid blood test and B12 test in 4 weeks.
I will order some B12 now to take to prepare. They haven't given me much time! Told today op is next week!
Yes I think that now too. But when TSH is not at 10 it is hard to get GPs to prescribe levo? thanks for linking me back to the comment about vitamins, I used this to pick my current supplements but I think i need more vit D and it does not say D3 on my bottle so need to look into that and magnesium.
I have found it quite overwhelming trying to learn about Hashimotos, fight for correct treatment, go to appointments etc and I work fulltime and I have symptoms (like most of us do) its been hard but this site has been the reason I am where I am. I am so glad I saw a private Endocrinologist from the list on here because it got me looked at by someone who knows about Thyroid. It started the process of my Thyroid being assessed properly. I just couldn't get the nhs drs to even think about my thyroid and it wasnt until i joined this forum that i got the knowledge and info and support i needed to challenge them. It worries me to think people might be being missed still. Because when a dr tells you its not thyroid, you want to be able to believe and trust them but unfortunately lots of people need to challenge this.
I also had pretty regular bloods through GP (because i asked for them to get to bottom of being ill) and I was told normal. I questioned it and asked for Levo about 2 months ago and was told only a quack would prescribe levo with my results and that i was normal. No one has told me I am currently hypo even now! I think they still want TSH to be at 10. But with hasi, lump and symptoms and that when i am healthier i want to try for a baby my GP agreed to prescribe Levo (new GP now) but she did not suggest levo herself until she got letter from my private endo and nhs surgeon suggesting it might help and that i have hashis.The nodule is THY3F apparently 15-20 % of cancer.
Goodness - I’m glad it was your previous doctor who said that - what utter rubbish.
Very best wishes for a speedy recovery after your operation. Isn’t it awful that being diagnosed with something horrible comes as a relief because it means your doctors actually believe you now.
Yes thank god my previous GP has retired. He should have been a lawyer or something like that, absolute joke. I said to him that he needed to put the symptoms together and look at the bigger picture, he didnt like that much but tbh his interaction with me couldnt have been any worse. I should hve just asked for a different GP, well I did but they said I needed an appointment to do that and I never booked an appointment to change GP. its a ploy i think to stop people changing. Yes its crazy that I would rather know this than carry on like before feeling ill but being told im normal no further action.
Goodness thank goodness he retired. Well done for telling him he needed to let ok at the bigger picture even if it didn’t get you anywhere. Bet it was a ploy - I imagine his patients were abandoning him in droves.
I know work in a Primary Care Network with GPs it is an eye opener. It really luck of the draw if you get a caring GP or not, and I bet the crap ones have less patients and even they try to leave! I am becoming an advocate for myself but i worry about the people out there who dont feel able.
Having just read of your thyroid journey I just want to wish you well and yes, the forum is amazing, and we'll be here afterwards to guide you through the build back to better health.
Keep us in the loop and best wishes for a speedy recovery :
I'm sorry it got to the point where you have to go through surgery now. The same thing happened to me 13 years ago. I had thyroid problems for years that were ignored until I got the large growth cutting into my windpipe. They performed a hemi and said if it was cancer they would need to go back in and take out the rest. Glad it wasn't cancer and hopefully it won't be for you.
Hey. Yes that is what they have said to me too. Because I have hashimotos thyroiditis it makes it harder operation to perform that on someone that does not have hashi. I just hope that my vocal cords are ok and the scar isn't too bad. I feel like im a different person than I used to be. A scar would have bothered me before. But with all the weight gain and swelling I've accepted that I don't look like I used to so having a scar bothers me less. I just hope it all goes ok and I don't have complications but im sure that's what everyone wants xx
Oh yes, I bloated up 10lbs with water retention and my face exploded with cystic acne. I felt so embarrassed by the acne. The ENT surgeon told me I was lucky at the time of the surgery. He said just 5 years prior the scar would have been quite large but he told me he would make the incision only large enough to remove it, about 2 inches, and place it in the natural neck fold. At the time I was 27 and couldn't imagine ever having neck wrinkles! I was up and moving about after the surgery and didn't need any pain meds, of course everyone is different so there's nothing wrong with needing them. When it was okay for me to remove the bandage I looked in the mirror and slowly peeled it off. The incision was jagged and I joked that people would ask if I had my throat slit. I kept myself from having thoughts about the scar. The surgeon was an odd duck but good at his craft because it is not visible today.
Oh wow that's a great result! Thank you for telling me about your experience its reassuring. Its funny what we get embarrassed about because I really doubt drs care but we all want to look our best and feel good. I've accepted some things and there are some things I hope to change. I would like to be less puffy. X
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Thyroid surgery 
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