Erectile dysfunction/premature ejaculation on l... - Thyroid UK

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Erectile dysfunction/premature ejaculation on levothyroxine

Johnljc profile image
24 Replies

Hi , question for the males on here , currently suffering with the above and hoping for some advice/information.

I believe my medication is having a major effect on me and I'm mentally all over the place

I was on teva for a couple of years and decided to come off it because of the side effects I was having .... everything improved .

I was then told after 6 month's on nothing (had blood test) I had to re start medication.

Reluctantly after discussion with endo I started eltroxin. Now been on for 6 months.

Now the above plus over side effects have started all over again and Its making me very down

Any advice would be greatly appreciated

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Johnljc
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24 Replies
SlowDragon profile image
SlowDragonAdministrator

How much levothyroxine are you currently taking?

Do you always get same brand

Which brand

When were vitamin D, folate, ferritin and B12 last tested

What vitamin supplements are you currently taking

Please add most recent test results and ranges

For full Thyroid evaluation you need TSH, FT4 and FT3

As you have Hashimoto’s are you on strictly gluten free diet, or have you tried it?

Being male important to test testosterone too

thyroidpharmacist.com/artic...

Johnljc profile image
Johnljc in reply to SlowDragon

Hi , the last 6 months I have been on eltroxin 50/25 alternative days.Vitamin d , b12 and testosterone have all been tested this year ..... all were in range b12 was at the lower end tho.

Next bloods are next week ...with endo appointment end of month.

Not got my last bloods .... they were taken in june

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Jesus wept ....that’s a minuscule dose....surprised your functioning at all

Standard starter dose of levothyroxine is 50mcg-100mcg

guidelines on dose levothyroxine by weight

Even if we don’t start on full replacement dose, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until on, or near, full replacement dose

NICE guidelines on full replacement dose

nice.org.uk/guidance/ng145/...

1.3.6

Consider starting levothyroxine at a dosage of 1.6 micrograms per kilogram of body weight per day (rounded to the nearest 25 micrograms) for adults under 65 with primary hypothyroidism and no history of cardiovascular disease.

Also here

cks.nice.org.uk/topics/hypo...

gp-update.co.uk/Latest-Upda...

Traditionally we have tended to start patients on a low dose of levothyroxine and titrate it up over a period of months.

RCT evidence suggests that for the majority of patients this is not necessary and may waste resources.

For patients aged >60y or with ischaemic heart disease, start levothyroxine at 25–50μg daily and titrate up every 3 to 6 weeks as tolerated.

For ALL other patients start at full replacement dose. For most this will equate to 1.6 μg/kg/day (approximately 100μg for a 60kg woman and 125μg for a 75kg man).

If you are starting treatment for subclinical hypothyroidism, this article advises starting at a dose close to the full treatment dose on the basis that it is difficult to assess symptom response unless a therapeutic dose has been trialled.

A small Dutch double-blind cross-over study (ArchIntMed 2010;170:1996) demonstrated that night time rather than morning dosing improved TSH suppression and free T4 measurements, but made no difference to subjective wellbeing. It is reasonable to take levothyroxine at night rather than in the morning, especially for individuals who do not eat late at night.

BMJ also clear on dose required

bmj.com/content/368/bmj.m41

bestpractice.bmj.com/topics...

What dose of levothyroxine were you on before stopping?

If been left under medicated for long time it can be difficult (but necessary) to SLOWLY increase dose levothyroxine

Johnljc profile image
Johnljc in reply to SlowDragon

When I came off after Xmas, I was on 50/75 alternative days .... I did go up to 75 previously but that made me really ill as in hyperthyroidism symptoms

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

But this was Teva brand?

Johnljc profile image
Johnljc in reply to SlowDragon

Yes it was teva

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

Far too often only TSH is tested which is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.

Also EXTREMELY important to regularly test vitamin D, folate, ferritin and B12

Strongly recommend getting FULL thyroid and vitamin testing done

Low vitamin levels are extremely common, especially as you have Hashimoto’s

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you did your last tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Come back with new post once you get results

SlowDragon profile image
SlowDragonAdministrator

Looking at previous posts you were always woefully under medicated

Johnljc profile image
Johnljc in reply to SlowDragon

Maybe thats the problem, but I've been on higher .... 75 daily but made me really ill

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Which brand of levothyroxine was this

Which other brands have you tried?

It can be EXTREMELY difficult to increase if been left under medicated far too long

Vitamin levels MUST be optimal. This make it easier to utilise levothyroxine

What time of day do you take levothyroxine?

Many find it better to take levothyroxine at bedtime (must be on empty stomach - at least 2 hours after eating)

When were vitamin D, folate, ferritin and B12 tested

Add most recent results

What vitamin supplements are you currently taking

Johnljc profile image
Johnljc in reply to SlowDragon

First time around it was teva ..... then I come off meds for 6months and felt pretty good...... had a blood test and endo encouraged me to try eltroxin which I'm currently taking.Vitamin test was done in June.

Plus I always take first thing in the morning fasted.

Johnljc profile image
Johnljc in reply to SlowDragon

Not currently taking any vitamins but have ordered some zinc , magnesium b6 multi vit ..... and b12 and a vitamin a,b,c,d multi

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Never recommended on here to take multivitamins Most contain too little of what we need plus lots we don’t want like iodine

Test first

Then only supplementing what’s required

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Only ever add one supplement at a time and wait at least 2 weeks to assess any changes before adding another

Perhaps start with magnesium, as testing is unreliable

Meanwhile getting vitamin D,folate, ferritin and B12 tested

Come back with new post when get results

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

What dose were you on when test was done in June?

So how long have you been on 50/25mcg

Strongly recommend getting thyroid levels retested now

Johnljc profile image
Johnljc in reply to SlowDragon

Been on this dose for 6 months ...... Next bloods next week ..... then endo appointment end of the month

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

So test must be done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test

TSH, Ft4 and Ft3

Essential to test vitamin D, folate, ferritin and B12 too

Johnljc profile image
Johnljc in reply to SlowDragon

Yes I take my test fasted

SlowDragon profile image
SlowDragonAdministrator

You are legally entitled to printed copies of your blood test results and ranges.

The best way to get access to current and historic blood test results is to register for online access to your medical record and blood test results

UK GP practices are supposed to offer everyone online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

Link re access

healthunlocked.com/thyroidu...

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up.

Important to see exactly what has been tested and equally important what hasn’t been tested yet

For full Thyroid evaluation you need TSH, FT4 and FT3 tested.

Also EXTREMELY important to regularly test vitamin D, folate, ferritin and B12

GP can’t manage this....You have to take control and always get copies of your results

Self supplementing vitamins to maintain OPTIMAL vitamin levels

NHS only tests and treats deficiencies

Majority of members forced to test privately

Looking for vitamin D at minimum of 80nmol and 100mnol may be better

Folate at least half way through range

Ferritin at least half way through range

B12 at least over 500

Johnljc profile image
Johnljc in reply to SlowDragon

Maybe your right i should get a private test done

SlowDragon profile image
SlowDragonAdministrator in reply to Johnljc

Ask GP to include vitamins next week

If can’t/won’t then test privately

Johnljc profile image
Johnljc

Bloods booked for next week not sure vitamins are getting tested..... lipids are tho

Wired123 profile image
Wired123

Have you had your testosterone and SHBG checked. If you’re hypo these can be significantly impacted.

You can push your GP to check this or if not get an endo to check. You can google symptoms of low testosterone and see which ones you have, make a note of them and then push for testing. This will show up if indeed you have issues.

You could of course get a full Sex hormone profile done privately with one of the online services which is easier and costs around £100-£150 depending on number of things you check.

If you are going private also add in Estrogen, LH, FSH and DHEAS.

If these are out of range or even close to the end of range you have enough evidence to push for further treatment.

Johnljc profile image
Johnljc in reply to Wired123

Had testosterone tested it Dr said it was good in the low 20s .... not sure what shbg is tho

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