My sweat just started smelling like pee

[Xstressedx]

Hi I was diagnosed with hyperthyroidism in November last year but think I had it a while after realising what the symptoms are now, my levels have always remained high, as a mum of 5 I’ve never felt so drained and useless my thiyroyd specialist appointment was at beginning of lockdown and had phone conversation might just be me but she doesn’t seem to help me google has explained everything she just says take tablets I’ve also finally been diagnosed with Graves’ disease

[RedApple Administrator]

Xstressedx, Welcome to the forum. What tablets have you been prescribed and what dose?

[helvella Administrator Thyroid UK in reply to RedApple]

Very important to know that before making suggestions - could be vital.

Different people might have different ideas as to what sort of smell was meant! I did a quick search which came up with several possibilities - but they are likened to a number of different smells. Maybe a read of some would help in narrowing down the range?

google.com/search?client=fi...

Also, is it just you who can identify a smell? Or can others? Many years ago, I had been on some antibiotics for a high-dose, fairly lengthy treatment. To me, my sweat had a distinct and strong smell. But others didn't know what I was going on about.

[RedApple Administrator in reply to helvella]

Good points. Both phantosmia and parosmia can occur when thyroid hormone levels are off kilter.

[Xstressedx in reply to helvella]

I’m waiting to have kidney function testing, I can smell things easily due to having sinus migraines but my partner and mum say they can smell my sweat more now x

[Xstressedx in reply to RedApple]

I’m on carbimozole and propranolol was on 40mg a day now down to 20mg

[pennyannie]

Hello Xstressed

It's very hard saying anything of any sense with this little information.

Have you any blood test results you can share wit us ?

Have you the medical evidence of positive, over range TSI or TRab antibodies which are the medical evidence of Graves Disease, and what your level of medication is based on ?

If you want to read up some more - when you have the time, if you have any time, I found the Elaine Moore Graves Disease Foundation website very useful. There is also open forum where you post questions for advice from the world wide Graves community.

You are entitled to copies of your medical records and would suggest this the first step as we can explain what the numbers and ranges actually mean in layman's terms to help you get a handle on your current health issues.

I have Graves and am post RAI thyroid ablation in 2005 - a treatment I deeply regret - and now manage lingering Graves, thyroid eye disease and hypothyroidism. I don't remember having this self same symptoms, but Graves seems to be pretty unique to each patient.