I recently began experiencing weird symptoms, so extreme they looked like a stroke but a and e said not, referred to neurology waiting on tests. My bloods showed low b12 so have had loading injections, I was also severely vit d deficient earlier in the year but that is now in range. I have had borderline thyroid hormones for years, females in my family all hypothyroid and treated but I am always told it’s not low enough. The neurologist was interested as hypothyroid might contribute to the muscle cramps, weakness, tingling, nerve pain etc I am experiencing on daily basis, but it all gets confused with b12, and a long list of possible causes they are working through very slowly. I am interested to hear if neurological symptoms are common in hypothyroidism and also whether more in depth testing of thyroid might reveal more. So far have only had nhs tests, no antibodies or genetic testing.
So far b12 has made no impact on my symptoms which are impacting daily life, can’t work.
Thanks for reading
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Mag999
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Extremely common for patients who start of getting low B12 diagnosed and treated to find that actually hypothyroidism is under lying reason
Please add most recent results and ranges on any thyroid tests you have had done
Literally thousands of U.K. patients need to test privately to make progress
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test folate and ferritin levels
Or test privately
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
All of the above are common in people with low nutrients. And low nutrients are common in people who are hypothyroid and under-treated, or who have waited a long time for treatment and are still waiting.
Regarding cramp, you might find this reply I wrote for someone else to be useful :
Ultimately, to get rid of the symptoms you've listed above you need to find out what level of thyroid hormones you have and get treated adequately if you need treatment.
But irrespective of your thyroid hormones, if they are okay, then you can still end up low in nutrients for all sorts of reasons, and so anyone with your symptoms needs to find out and optimise their levels.
As you have B12 injections it’s recommended also to supplement a good quality daily vitamin B complex, one with folate in (not folic acid) may be beneficial.
This can help keep all B vitamins in balance and will help improve B12 levels too
Igennus Super B is good quality and cheap vitamin B complex. Contains folate. Full dose is two tablets per day. Many/most people may only need one tablet per day. Certainly only start on one per day (or even half tablet per day for first couple of weeks)
Or Thorne Basic B is another option that contain folate, but is large capsule
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
My vit d was 20, now up to 250 so I stopped supplement and should be tested again next week, I regularly become deficient looking back, I always assumed I was ok as I worked outdoors. I plan to take a high strength dose twice a week through the winter, I understand too much vit d is potentially harmful as it’s isnt a water soluble vitamin.? I did a finger prick thyroid screen with thriva and my Tsh was 4.9 I think, but when I went to gp and they did blood it was normal range, 2.5 ish. They said finger prick inaccurate method? So they are going to do another thyroid screen as my symptoms are getting worse, and include tpo, not sure they do all the antibody tests. Will post those once I get them. Also looking into all mineral supplements as I have been low in calcium as well and am ostepaenic. Thanks for your help, much appreciated and very clear!
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