Fibromyalgia and thyroid

[Sleepyachy]

Does anyone have fibromyalgia and under active thyroid?

I asked doc about it and he said rule out everything else before think its fibromyalgia.

[tattybogle]

Fibromyalgia is the name for a collection of symptoms specifically with pain as a major factor, Chronic Fatigue Syndrome is the name for a collection of the same symptoms but without pain as the major factor,

neither of them are diagnosable conditions , they are simply a diagnosis of exclusion , ie ; rule out every other possible cause for the symptoms first and if the problem is still there give it one or other of these labels.

In my opinion , if you already have an acknowledged thyroid disease ,then that is the place to look first for the answer to Fibro / CFS symptoms. Modern medicine has an appalling record of not paying proper attention to thyroid treatment, not listening to or believing patient 's experience, and not trying all available thyroid hormone replacement options, before declaring the thyroid hormone problem 'all fixed and normal now' and then doling out other vague 'cluster diagnosis' to explain away any remaining symptoms , which they swear are not thyroid related..... but until they have been open minded enough to try all the available thyroid hormone replacements , how can they possibly be so sure?

So your doctor is correct , you should rule out every thing else first , starting with optimal thyroid treatment, ie 'normal' results may not be good enough.

[posthinking01]

Here is something that might help - in my opinion they are linked.

fmsni.org.uk/index.php/73-i...

[SlowDragon Administrator]

Fibromyalgia is frequently undiagnosed or under medicated hypothyroidism, especially if Hashimoto’s

Few links about fibromyalgia


healthrising.org/blog/2019/...


thyroiduk.org/tuk/research/...



stopthethyroidmadness.com/f...


prohealth.com/library/new-t...


chriskresser.com/low-t3-syn...


holtorfmed.com/download/chr...

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin levels

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Is this how you do your tests?

Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins

List of private testing options

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus vitamins including folate (private blood draw required)

medichecks.com/products/thy...

Thriva Thyroid plus antibodies and vitamins By DIY fingerpick test

thriva.co/tests/thyroid-test

Thriva also offer just vitamin testing

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins by DIY fingerprick test

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/thyr...

Previous post shows you were extremely under medicated

Recent dose increase in levothyroxine to 100mcg will take 2-3 months to have effect

All four vitamins need to be regularly retested and supplement to bring to optimal levels

Vitamin D was very low

healthunlocked.com/thyroidu...

If you have high thyroid antibodies, aka Hashimoto’s, then frequently strictly gluten free diet helps or is absolutely essential

[shaws Administrator]

One of TUK's Advisors (now deceased through an accident) was an expert in the use of T3. The information is in the following link. He himself took T3 alone, in the middle of the night so that nothing interfered with its uptake.

drlowe.com/thyroidscience/c...

[jrbarnes]

I commented this on another thread already but my GP told me that my symptoms sounded like fibromyalgia even though I have half a thyroid, take levothyroxine and my T3 levels had significantly dropped with my T4 levels over a three year period. Did he ever compare my labs results for changes? It is astounding that in the face of obvious hypo symptoms, raised LDL and rising blood fasting glucose that he continued to use fibro as an excuse and did no further investigations into my thyroid. I consider that negligence. I don't doubt fibro exists but I consider it a dangerous excuse and diagnosis for undertreated thyroid patients.