Hi, i'm so worried and need some advice my sons TSH is alover the place he started off with 25mcg then bloods done then 50mcg then bloods again up to 75mcg then came the problem he was so ill depressed and suicidal so they dropped it back to 50mcg that lasted for a bit after another blood test its gone from 5 to 7 so they've given him an inbetween dose of Levothyroxine 50 plus 12.5.
We are out of our minds with worry he is so angry depressed sleeps a lot says the doc talks over him and wont listen to what he's saying what on earth can we do to help him he is having more bloods in 4 weeks.
Thank you.
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Benadrove5
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I can only say I totally sympathise with yourself and your son.. I my self have had nothing but crap off my endos and GPS. I lost my thyroid in 2019 due to me telling my gp I had hyperthyroidism but because my so called levels were so called normal I was left.. Actually my TSH.. Was 0.08..with a normal T3 which is subclinical hyperthyroidism 😠 no treatment given tho... Its unacceptable for doctor or endo to use us as Guineapigs when dosing us with thyroid drugs... Your son needs to be treated with dignity and as a human being.. He is clearly suffering and the endos or GPS should be looking in to this more in depth.. I can also believe him when he says the doctor talks over him mine also does that cuts me off in mid conversation very bad mannered because the only way a doctor can diagnose you is by listening to you.. Also gp and endos are bound by regulations which in its self is bad for the patient.. Go back and if you get nowhere go back again that's the only way I got anywhere with my condition demand printouts of the results has he had T3 T4 done vitamin and minerals thyroglobin antibody test.. Slowdragon has excellent knowledge on this subject hopefully she will respond to you.. 👍
Do you have any of his blood test results to share please? It's not possible to say much without them. If he doesn't have them ask him to request a print out of all his tests from the receptionist (not the doctor) at his surgery, then post them here along with their reference ranges and tell us what dose of Levo he was on at the time of the test and what dose it was changed to based on the result.
What brand of Levo is he taking? Is it always the same brand?
Many people find Levothyroxine brands are not interchangeable.
Once he finds a brand that suits him, best to make sure to only get that one at each prescription.
Watch out for brand change when dose is increased or at repeat prescription.
Many patients do NOT get on well with Teva brand of Levothyroxine. Teva contains mannitol as a filler, which seems to be possible cause of problems. Teva is the only brand that makes 75mcg tablet. So if avoiding Teva for 75mcg dose ask for 25mcg to add to 50mcg or just extra 50mcg tablets to cut in half
Teva, Aristo and Glenmark are the only lactose free tablets
Physicians should: 1) alert patients that preparations may be switched at the pharmacy; 2) encourage patients to ask to remain on the same preparation at every pharmacy refill; and 3) make sure patients understand the need to have their TSH retested and the potential for dosing readjusted every time their LT4 preparation is switched (18).
Levothyroxine is an extremely fussy hormone and should always be taken on an empty stomach and then nothing apart from water for at least an hour after
Many people take Levothyroxine soon after waking, but it may be more convenient and perhaps more effective taken at bedtime
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap. Some like iron, calcium, magnesium, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
What vitamin supplements is he taking
For full Thyroid evaluation he needs TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies
Ask GP to test vitamin levels
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or thyroid antibodies or all relevant vitamins
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THS of 96.22 with 350mcg levothyroxine a day.
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My son's TSH results are normal but could this still be a thyroid problem?
