Possible Wrong diagnosis due to keto acidosis. ... - Thyroid UK

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Possible Wrong diagnosis due to keto acidosis. any advice. Help needed

5 Replies

Hello

Has anyone been diagnosed with overactive thyroid as a result of keto acidosis?

My son went into keto acidosis at the end of July and was told he had type 1 diabetes and it couldn’t be anything else. Yet his antibody bloods came back as negative for diabetes and now I’ve discovered that keto acidosis can also be a symptom of an over active thyroid. Along with weight loss and urticaria. He also suffered with palpitations. All of which are symptoms of an over active thyroid and he has suffered with since the beginning of the year. Due to Covid drs have been reluctant to help with the urticaria and have not seen him face to face.

He got admitted to A&e with the palpitations which is when we got told about the diabetes.

He has been having some issues with blood sugar readings due to the amount of insulin that’s going into his body and had had it reduced but it’s still not helping.

If anyone has any experience of this can you Please Share as right now I’m concerned I could be allowing my son to inject himself for no reason

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5 Replies

He does have insulin and we have a fab diabetic nurse. They are now saying they cannot confirm that he definitely has diabetes because of the negative antibody results.

MMaud profile image
MMaud in reply to

Haywire, something like 20% of those with T1 diabetes do not have antibodies. The absence of antibodies proves nothing, except that antibodies are not present.

It is common to have C-Peptide levels tested, in the diagnostic process for T1 diabetes. Did your son have this?

I would agree with diogenes that the T1 is more likely to cause the thyroid issues, rather than the other way around.

When those newly diagnosed with T1 start supporting with injected insulin, their "performance" often improves; sometimes quite dramatically, causing the sort of dilemma you are experiencing.

Frustratingly, over time, this apparent recovery fades, and the Ned for injected insulin increases again.

I wish you and your son well on this journey. It's a lot to take on board, but there are thousands and thousands living good, healthy lives with diabetes of all sorts.

Bearing in mind your concerns and feelings, it is likely worthwhile having a candid chat with team looking after your son, and his diabetes. You need your mind put to rest,

humanbean profile image
humanbean

You should ask on a diabetes forum as well as this one.

The best one in the UK is this one :

diabetes.co.uk/

and they have a very busy forum :

diabetes.co.uk/forum/

I would suggest ignoring the following site - it gives out advice intended to boost the profits of big business and big pharma rather than advice which helps patients :

diabetes.org.uk/

diogenes profile image
diogenesRemembering

Ketoacidosis can initiate a phenomenon called thyroid storm, where the thyroid temporarily goes into overdrive. Therefore it is more likely that the ketoacidosis caused thyroid problems rather than the other way around.

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