Sorry could some please advise further regarfin... - Thyroid UK

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Sorry could some please advise further regarfing NDT or t4/t3 combo

Shredder profile image
8 Replies

Sorry I have been on here a lot recently but im falling back in tbe well again. I have always struggled on levo but found NDT and it was a life saver. Just over a year ago I was on Armour and felt brilliant but my Nhs trust would no longer provide it. I soldiered on back on levo but adding some NP NDT I had left over from a while ago which worked until NP ran out. I again tried Levo alone but felt awful but then tried adding synthetic t3 again with no discernible improvement. I stupidly bought W.P when this appeared again but it doesnt work at all. I stupidly followed this up by buying Armour but this has changed too. I have a quantity of Thiroid here that works from Thailand but I react badly to its fillers and it gives me horrific insomnia. Before I spend more money on Thyreogland from Germany as my last resort would taking an anti histsmine alongside Thiroid stop the reaction to it. Does anyone please know. I am running out of options. I have also tried Metavive with no positive improvement. I sm a different person from last year where I lost several stone and was a regular gym goer. Now I look like a pregnant woman and get breathless tieing my laces!

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8 Replies
Hashihouseman profile image
Hashihouseman

From my own experience which may or may not be appropriate for you..... split levothyroxine doses into at least 2 maybe 3, pressurise your nhs for a trial of levothyroxine AND liothyronine- I get 5mcg liothyronine plus 100-125 mcg levothyroxine every day (split dosing of both) it’s the only regime that works and yet I still have to vary the levothyroxine +/- 25mcg every few days. Some of us are horribly sensitive to levothyroxine but it is essential. I have also argued successfully with my GP that so is liothyronine - in physiologically normal proportions with levothyroxine. Starting a trial would benefit from monthly or bi-monthly blood tests and a daily symptom diary For 3 months, then see......

Shredder profile image
Shredder in reply toHashihouseman

Thank you. I hsvevtried liothyronine alongside but didnt really find it thst helpful. I gained awful weight and it gave me bad insomnia. I was on 100 Levo snd 25 lio split in two doses.

Hashihouseman profile image
Hashihouseman in reply toShredder

Not surprised you had a bad experience!..... that liothyronine dose was 4 or even 5 times too much. I take 5 mcg liothyronine split into three. It makes a huge difference because it's very powerful compared to levothyroxine and yet we need both. The healthy thyroid gland gives about 100 levothyroxine and 5-8 liothyronine.

hipolion profile image
hipolion

Maybe an option would be to try the new Thai ndt (Tru-Thyroid) or thyrovanz(bovine). Thyroid-S is currently on backorder.

Shredder profile image
Shredder in reply tohipolion

Thanks forcresponding I have tried Metavive with no success snd have heard that Thyrovanz isnt that good?

Celestialbeing profile image
Celestialbeing

When you say NP, do you mean NP by Acella? If so, in the USA there was a recall on the product.

Shredder profile image
Shredder in reply toCelestialbeing

Yes but I had some of the old N.P left not the current variant.

reliablerebel profile image
reliablerebel

Just wondering how you are getting on?? What ndt did you decide to try? I actually did very well on thiroyd, until they stopped making it any more. And now seem to be making the same mistakes as you looking for something that actually works!!

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