Muscle pain: I was diagnosed with hashimotos. I'm... - Thyroid UK

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Muscle pain

KateCora profile image
16 Replies

I was diagnosed with hashimotos. I'm not on anything at the moment but I have chronic muscle pains and food reactions. I was prescribed 30 of armour but when I take it, I feel depressed, so I stopped. Any advice? Thanks

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KateCora profile image
KateCora
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16 Replies
fuchsia-pink profile image
fuchsia-pink

Do you have any recent blood tests to share? If you are hypo and with hashi's, it isn't really safe to stop your meds completely, but it sounds as if you haven't found your sweet spot yet. It may help if you can say how you have changed your dose - your post a year ago suggested you were on T3

KateCora profile image
KateCora in reply tofuchsia-pink

Hiya my TSH :2.82, T4:13.7, T3: 2. 74, Vit D:34, Ferratin:38.7

I was told I had a conversion issue before.

Any advice appreciated 🙏

fuchsia-pink profile image
fuchsia-pink in reply toKateCora

Can you add ranges, please - and say when you had the test done? These vary from lab to lab [you can edit your reply above using the "more" button on the right]

Your TSH would be too high for me to feel well ... but other than muscle pain, how do you feel? Do you have other typical hypo symptoms?

pennyannie profile image
pennyannie in reply toKateCora

Hey there KateCora

Just to say both your ferritin and vitamin D are way too low for any thyroid hormone replacement to work.

Both these need to be nearer 100 just to feel well.

What about B12 and Folate ?

Check out SeasideSusie replies to people, I see her as our own, very own, all dancing, vitamin queen

KateCora profile image
KateCora in reply topennyannie

This is fascinating. My GP said everything was "normal". 😳

pennyannie profile image
pennyannie in reply toKateCora

Well, the issue is, if you fall into the NHS range you're considered ok -

then when you look more closely some ranges are very wide, for example the ferritin range is generally about 13-200 - with the differential being too wide to really be of any value especially if someone is showing symptoms and has a thyroid issue.

The reality is, if anywhere in the range the NHS will not support the prescribing so, you have to supplement and DI for Yourself.

SeasideSusie profile image
SeasideSusieRemembering in reply toKateCora

KateCora

Are you in the UK?

Can you please add the reference ranges for your results, and please say if those are Free T4 and Free T3 or Total T4 and Total T3.

What is the unit of measurement of Vit D - nmol/L or ng/ml?

Your ferritin is low, it should be half way through range and your level wont be any where near half way through any range we see on here. Thyroid hormone can't work if nutrient levels aren't optimal, and ferritin in particular needs to be a decent level for conversion of T4 to T3.

KateCora profile image
KateCora in reply toSeasideSusie

I'm in Republic of Ireland at the moment.. So I'll have to find out. Thank you for responding

HashiFedUp profile image
HashiFedUp

Are you gluten free? Helped me massively. Can you Try a different sort of NDT? I’m on ERFA and no side effects.

Re muscle pain - I take Celebrex for global pain and it is amazing. I am pretty much pain free and can even run / exercise. Well normally anyway.... obviously difficult at the moment ggrrrr!

KateCora profile image
KateCora in reply toHashiFedUp

Hey, do you get Erfa from your GP? I am gluten free. It's the only way! Thanks

HLAB35 profile image
HLAB35

Gluten / dairy intolerance are common in Hashi's. I still eat butter as it's virtually lactose and casein free, but all other dairy and gluten is out of the picture. I suspect if I'd ignored my symptoms for longer the damage to my gut would have been hard to fix.

Make sure you are getting enough b vitamins if your gut absorption is bad. B12 deficiency is common. B5 can help with bowel transit and is also very good for stressful situations. Magnesium is the best mineral for muscle pain, applied topically to aching muscles (Epsom salt baths are also good) or via a supplement (not Oxide). Most of us could do with more Magnesium. I also recommend p5p and zinc as these work with magnesium for nerve and cognitive function - together they also make a great combination to fight fatigue (see Igennus website for Neurobalance).

If you are not taking any thyroid support due to a bad reaction, it could be that you need to simultaneously support your adrenals (often low vitamin D is behind adrenal issues), or go for t3 only? The problem is unlikely to resolve itself without help.

B5 deficiency symptoms..

healthline.com/health/vitam...

KateCora profile image
KateCora in reply toHLAB35

Thanks for this really in depth response. I have started zinc, b6, b12 and b1..I'll look into b5! I find vit D makes me feel worse but will try again. Used to take magnesium, so I'll add it back in.. 🙏

HLAB35 profile image
HLAB35 in reply toKateCora

If you need vitamin D it is best to get a cheap test done (by post) to check your levels and ask on here for appropriate dosage. Intolerance of Vitamin D supplementation goes hand in hand with low Magnesium, so you'll need to take more Magnesium while increasing your vitamin D.

Link explains the Magnesium Vitamin D relationship...

betteryou.com/health-hub/ma...

vocalEK profile image
vocalEK in reply toHLAB35

Link talks about calcium levels too high, but doesn't address the fact that the common Rx for treating/preventing osteoporosis is vitamin D plus calcium! The doctors don't even bother to check blood calcium levels, and the fact is that most folks get enough calcium from their diets, even if they never drink milk. So before taking calcium, get the levels checked. Also, taking Vitamin K2-MK7 along with vitamin D helps the D route your dietary calcium where it is needed -- bones and teeth -- instead of into soft tissues causing such problems as kidney stones, blocked arteries, and breasts filled with micro-calcifications. (I have learned a ton of good dietary information from this site!)

KateCora profile image
KateCora in reply tovocalEK

Ah yeah, I have kidney issues, like oxalate sensitivity etc now, so you might be onto something.

Wolfiesmom08 profile image
Wolfiesmom08

I have Hashimoto’s and get muscle pains just before the end of my cycle. I think a person with Hashimoto’s is much more sensitive to changes in the body. I would not stop taking medication you may just need to switch brands? I could not tolerate the high level of T3 in armor/naturthroid. So I eventually switch to the Levoxyl T4 with added T3 daily. When I first got diagnosed with Hashimoto’s and nutritionist told me sometimes you have to change thyroid meds like a pair of shoes and find the right fit. It took me years to find the right medication and the right dose and some weeks I wonder if I should tweak it some more and it does require a lot of patience. Also following the nutritional recommendations of the thyroid pharmacist or Isabella Wentz has really helped. I take multiple supplements along with Betaine with HCl stomach acid to help digest my food and help me process the nutrition from it. Hang in there you won’t feel better necessarily overnight but you will feel better. Be patient with yourself and kind to yourself and allow yourself to recover it is an illness.

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