Blood results help: Here I am again.6 weeks after... - Thyroid UK

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Blood results help

Bibisbibi profile image
14 Replies

Here I am again.6 weeks after my half thyroid removed,my gp has done only theses blood tests despite me asking him to do for vitamin levels and full thyroid test.they said all is normal.what is your opinion?many thanks.

Ps:I am sorry the photo is not great but I am at work and not easy to take a better image.if you need a better one I might be able to have one in the afternoon.

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Bibisbibi
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14 Replies
SlowDragon profile image
SlowDragonAdministrator

Do you know what was your TSH before thyroidectomy?

Just testing TSH is completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies or if thyroid levels are dropping

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )

monitormyhealth.org.uk/thyr...

Come back with new post once you get results

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

Thank you slowdragon for your quick response. My tsh was 2.81 before my surgery.my plan is to start taking a small dose levo for a month and test full thyroid and vitamins privately.should I be concerned about my scrp that is 7 and my lymphocyte count that is 0.86.Gp writes its acceptable but I want to make sure.many thanks again

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

Recommend you get FULL thyroid and vitamin testing BEFORE considering starting on any levothyroxine

Starting on too low a dose can make symptoms worse anyway

If vitamin levels are low, work on improving and then retest thyroid

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

Thank you

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

Ideally you need to get GP on your side and prescribing levothyroxine.

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

I know that but he said everything is normal for him

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

Yes...I understand

Get full thyroid and vitamin testing....come back with new post ....

If vitamins are very low improving these to optimal frequently increases TSH so you can get official recognition ...instead of the standard “computer says no” .....if they looked at patient and their symptoms instead of computer screen ....might be while different ball game

If you have high thyroid antibodies....then you need starting on levothyroxine

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

I have high thyroid antibodies ,I know that already.and do you mean I should wait till my tsh is elevated to get noticed by my gp?to be honest I wouldn't be bothered at the moment if I didn't want to proceed to my last embryo transfer,wich was responsible for all tests I have done in the first place and wich has postponed until I had my surgery. Of course my health is first but if I can't make the gp to listen straight away I will find another way.

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

So you need to see GP and remind them that before any pregnancy TSH needs to be under 2.5

TTC

verywellhealth.com/infertil...

Pregnancy guidelines

thyroiduk.org.uk/tuk/about_...

gp-update.co.uk/files/docs/...

thyroiduk.org.uk/tuk/guidel...

See pages 7&8

btf-thyroid.org/Handlers/Do...

Also this

gp-update.co.uk/Latest-Upda...

So if you have high thyroid antibodies this confirms that you have autoimmune thyroid disease also called Hashimoto’s

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten intolerance. Second most common is lactose intolerance

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find strictly gluten free diet reduces symptoms, sometimes significantly. Either due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first

Assuming test is negative you can immediately go on strictly gluten free diet

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)

Trying strictly gluten free diet for 3-6 months

If no noticeable improvement, reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

restartmed.com/hashimotos-g...

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

Thank you so much for the time you gave to reply.very useful information. When medichecks had black Friday offers I have purchased tsh and t4 tests so I need to figure out if I will buy a new one including t3 and vitamins or just the ones I don't have. As for my guts,I have ibs wich is triggered from lactose as I noticed but even that I'm not ready to completely go free🙈.

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

Sounds like you have gluten intolerance. Lactose intolerance may improve once strictly gluten free

coeliac.org.uk/information-...

Suggest you ask Medichecks to exchange TSH and Ft4 test for Thyroid plus ultra vitamin test

(TSH plus Ft4 test is pretty useless )

Always do ALL thyroid blood tests as early as possible in morning before eating or drinking anything other than water

What vitamin supplements are you currently taking?

Remember to stop taking any supplements that contain biotin a week before ALL blood tests. (Eg vitamin B complex) Biotin can falsely affect test results

Bibisbibi profile image
Bibisbibi in reply toSlowDragon

Medichecks won't exchange this I'm afraid cause the cancellation period has gone.many thanks for all your responses and time you took to reply.

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

Before TTC essential to test folate and B12

Important these are at good levels (but not too high either)

SlowDragon profile image
SlowDragonAdministrator in reply toBibisbibi

If TTC guidelines are CLEAR

TSH should be under 2.5 before TTC

verywellhealth.com/infertil...

Pregnancy guidelines

thyroiduk.org.uk/tuk/about_...

gp-update.co.uk/files/docs/...

Hypothyroidism in pregnancy

It is important to adequately manage hypothyroidism in pregnancy (BMJ 2007;335:300).

There is an increased rate of early and late obstetric complications with both overt and subclinical hypothyroidism, hence the rationale for treating all in this group.

Untreated hypothyroidism can also affect the neurodevelopment of the foetus.

Pregnancy can trigger the progression of subclinical hypothyroidism to overt hypothyroidism and can increase levothyroxine requirements.

Adequate treatment of hypothyroidism during pregnancy reduces complication rates.

Refer women with overt and subclinical hypothyroidism for shared obstetric care. Aim for TSH 0.4–2.5 mu/l.

Increase usual levothyroxine dose by 30% once pregnancy is confirmed.

Monitor TSH at least once each trimester.

If hypothyroidism is diagnosed during pregnancy, specialist assessment is advised to aim to correct TSH as quickly as possible.

Should we screen for hypothyroidism in pregnancy?

thyroiduk.org.uk/tuk/guidel...

See pages 7&8 - essential to increase levothyroxine immediately pregnancy is confirmed

btf-thyroid.org/Handlers/Do...

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