My doctor keeps say I'm fine when I know I'm no... - Thyroid UK

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My doctor keeps say I'm fine when I know I'm not, my symptoms are fatigue, All the time dizziness, poor consentration, forgetfulness ect

Nelie1612 profile image
13 Replies

Can someone please help me understand my blood results please

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Nelie1612
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13 Replies
Marz profile image
Marz

Were you hoping for Thyroid results ? Cannot see any 🤩

Lalatoot profile image
Lalatoot

Nelie They have tested lots of things but not thyroid levels. The symptoms you describe could be because your thyroid hormone levels are wrong. Have you had TSH, Ft4 and Ft3 tested recently?

Nelie1612 profile image
Nelie1612 in reply to Lalatoot

Hi thanks for the reply January 6th I had them done

TSH 1.26 MU/. - 0.27-4.20

FT4 15.6 PM0L/L - 11.00-25.00

DR whot do ft3.

Marz profile image
Marz in reply to Nelie1612

It's low T3 that causes symptoms. As your T4 is low in range it suggests your T3 will be too.

Nelie1612 profile image
Nelie1612 in reply to Marz

Thank you

SlowDragon profile image
SlowDragonAdministrator in reply to Marz

Marz

She’s not on any levothyroxine

Marz profile image
Marz in reply to SlowDragon

Yes I read that earlier. I was referring to no FT3 result which would be low due to low T4. 😎

Lalatoot profile image
Lalatoot in reply to Nelie1612

If you are on thyroid medication you could manage with an increase in your dose.

SlowDragon profile image
SlowDragonAdministrator in reply to Nelie1612

These thyroid results are fine, for someone not on levothyroxine

SlowDragon profile image
SlowDragonAdministrator

Are you on Levothyroxine?

If so how much are you currently prescribed?

How long on this dose

Do you always get same brand of levothyroxine at each prescription?

No thyroid results there

B12 is likely too low if you are on levothyroxine

Folate - needs retesting

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's) diagnosed by raised Thyroid antibodies

Ask GP to test vitamin D and folate levels

Plus thyroid including thyroid antibodies

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

Last dose of Levothyroxine 24 hours prior to blood test. (taking delayed dose immediately after blood draw).

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Is this how you do your tests?

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If you can get GP to test vitamins and antibodies then cheapest option for just TSH, FT4 and FT3 £29 (via NHS private service )

monitormyhealth.org.uk/thyr...

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.

Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.

So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 is in top third of range and FT3 at least half way through range

NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.

nhs.uk/medicines/levothyrox...

Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)

All four vitamins need to be regularly tested and frequently need supplementing to maintain optimal levels

Nelie1612 profile image
Nelie1612

No I'm not on levo I've just b12 tablets and vitamin d3 tablets

Marz profile image
Marz in reply to Nelie1612

SlowDragon will not have seen your Reply as you forgot to click the Blue Reply button. Your two posts close together may cause confusion ...

Nelie1612 profile image
Nelie1612

Sorry

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