Diagnosis on here .

Hi everyone.

Hope everyone is ok .

So yesterday i had some results from a blood test i had done privately .

I was also on the same day having bloods done from the GP .

I have been feeling really very unwell for the last 5 years or so manefesting with benign heart rythm problems) tachy )and chronic ectopic beats shattering fatigue inflamed and swollen joints in feet and chronic pain etc ..i was repeatedly signed off from work (i was a support worker) due to burnout and all the physical probs.

I was diagnosed with fibromyalgia told i was in peri at 42 ,had borederline vitamin D deficiency (30) and that i was burnt out .

I havnt felt good since .

I have always felt suspicious of the diagnosis of fibro .I feel like its a very dismissive throw away almost condition that is being over diagnosed because its just the cheapest easiest thing.

I have always questioned all the normal thyroid tests.And after the last year of barely functioning at all ,never being able to get my vitamin D levels up even tjough i suppliment and having basically no life at all i did a private test.

So yesterday i had the results as i was on my way to have my bog standards done at the GP which show that all my antibodies are raised.

I remembered i subscribed here a couple of months ago so posted.

I was told here that the results show that i have hashimotos.

I dont question this as i know the people here know what they are talking about .

But i havnt slept too well as i feel quite shocked and upset to be honest knowing that its not a matter of "if" but when, my thyroid completely fails .

I dont really have anyone to discuss any of this with and dont see my own doctor for a few days to pick up their results .Im also dreading speaking to her,even though she is very lovely im dreading being told i "dont have this or that or that doesnt mean XYZ "..you all know the drill ..im also worried about what else my other bloods are gonna reveal this time 🙄 .Its been a one thing after another the last few years and im sure many of you here will be able to relate to that !

I am wondering if anyone here has been in the same boat ?and how you tackled things with your GP .?

i do think its a bit sad we have to pay loads of money to get the answers we already know deep down and need ,but are then left high and dry so to speak after you get the results ..

Also i read that a small proportion of people who have the antibodies dont ever go on to develop hypothyroid .i wonder what is the take on that here?

[cazmania7]

Hey bonsgirl. I didn’t have Hashis. I had Graves diseases. And from what I understand, both are autoimmune conditions that have been triggered by something.

I keep reading that gluten is a trigger for autoimmune conditions. I too have been unwell since 2015. The one thing I have not yet tried properly, that gets much mention is gluten. You probably are feeling foggy and unwell but can you try gluten free? Not saying it’ll cure you but many swear by it. I’m trying it next month!

The guys on here will give you advice and support. You have your thyroid which is great. Some of us have lost ours. But I do understand Hashis can be progressive and difficult.

I wish you well. Stick with us on here. I have hope thanks to this group!!

Have a good day and chin up ❤️😀

[Hidden in reply to cazmania7]

Thankyou Caz ..i really appreciate your reply ..cant deny im feeling a bit tearful today.I just feel so sorry for my kids wven though they are grown up we are close ..we have been through so much over the years and now they are watching their strong mum literally crumble month after month ..

I am feeling sorry for myself today and am gonna allow that for now .lol.

Yes i agree with you about the gluten and also like you ive decided this morning ..i have said for years that i feel really crap when ive been eating lots of bread ..it makes perfect sense now.It definitely makes all of my symptoms worse ..i bought a breadmaker recently and wondered if it was that making me feel sicker !..i love homemade bread 😪Also being a loose vegan ..its gonna be hard cutting even more stuff out ?but hey ho needs must !

So sorry about the graves ..that must have been a very scary diagnosis ?were you also unwell for a long time before you got answers ?

[cazmania7 in reply to Hidden]

It’s worth a try isn’t it. I guess planning will help a lot. I can’t remember what your levels are but being vegan might make some levels like iron and B12 lower than normal.

Chicken liver and pate is good for getting your iron up. I have paid for B12 shots by a woman who does Botox etc locally.

I’m still poorly but have added some T3 to my levothyroxcine which I hope will help me. I’ve felt dreadful since Friday May 1st 2015 and was told it was depression CFS. Neither of which I really subscribe to.

You can be tearful. It’s ok. If you are like me, you have lost your life as you know it. It’s really hard going. We will always be here though 😀

[cazmania7 in reply to Hidden]

I felt fine with Graves. It was after RAI and after going hypo I felt unwell

[Hidden in reply to cazmania7]

Ahhh thankyou oh god that sounds not good at all .

Definitely is worth a go yes ..i will do it as soon as ive eaten all the glutinous stuff i bought with my shopping yesterday lol .

We can maybe compare notes ..

And i dont subscribe either ...never have .

My iron is too high i have no idea why as yet although seasidesusie did reassure me a bit on that yesterday .

I have been low iron most of my mentstrual life until recently where its shot up for some reason .B12 is good enough D is pretty low as it always is .I just cant get it higher than around 40 .

Really wishing you luck that the med will help you feel better ..that would be great !

[cazmania7 in reply to Hidden]

High iron, that is strange! The guys in the forum are so knowledgeable. They will have a theory for every weird thing you may have.

If ever you want to tag any of them, in other words make sure they see your post type the at symbol before their username so for example @cazmania7 etc.

[Hidden in reply to cazmania7]

Awww thankyou Yes they do seem pretty on it !

Yes bit strange ..just another string to add to my miserable bow lol

Thankyou !

Ps definitely let me know how your gluten free experiment goes ..?i tjink i will start cuttinh bread from today and the rest can go next week ..

[Hidden]

Hi scrumbler ,thanks i posted all my results yesterday which was when i got the info ..obviously the private report doesnt go much into detail .

Thankyou i will watch that ..

I have never believed in "fibro"

What i mean is that i know it exists but i believe there are underlying causes which for some strange reason are being misdiagnosed or missed altogeather.

It is far too easy for doctors to put everything down to this random bunch of symptoms try and push you some drug ( which i always refuse) rather than you know ....do the relevent tests ?lol ..all about cost ..