Dr refusing to do anything at mo

[Hkm2281]

I posted on her a week ago. I had a GP appointment on fri but hes not wanting to do anything as yet with my blood test results. He has said my heart is beating fast so given me propranolol but said to wait for a couple of months and have another blood test to see if it has changed. Should I ask to see another Gp

[Den1987UK]

Yes I would see another GP and get a second opinion. The results seem off so could explain the problems I know I had bad anxiety and depression fast heart rate and pulse and high blood pressure but mine is under active hypothyroidism before increasing my medication to 100 mg and it sounds like you too could have thyroid problems your T4?is high indicating Hyperthyroidism which could explain some things. Also what is your iodine level at?

[greygoose in reply to Den1987UK]

You shouldn't always take blood test results at face-value, if all the right tests haven't been done. And, what's her iodine level got to do with it?

[Den1987UK in reply to greygoose]

Hello grey goose good afternoon well I read that high iodine and T4 could be hyperthyroidism but it’s hard to say I agree with you the tests ain’t everything and the tests have not been done fully yet. I have the same problems with blood tests even flu can’t help the results much. Every time I get an infection it throws the white blood cells off sky high and they the doctors think the worst. I remember being referred to hospital by my gp for suspected Sepsis because of high blood pressure and heart rate and pulse done blood tests at the hospital nothing was found only an infection somewhere but did not know where and the doctors and nurses were concerned but in the end said I had dehydration so put me on a drip even though I drank 1.5 litre bottle of water a day. Said to drink 2 to 2.5 litres of water a day and gave me antibiotics. Funny what the doctor said to me I look perfectly fine to him yeah right this was when I smoked blood was so thick and had to take at least a pint to lower the haemocrit down. I spent a whole day in hospital not good but I knew hopefully I was in good hands. Because of smoking I now have hypertension high blood pressure at 32 not good but glad I quit.

[greygoose in reply to Den1987UK]

It's rather rare to have high iodine, I believe. But, high iodine is anti-thyroid, so not sure it would cause hyperthyroidism.

[Den1987UK in reply to greygoose]

Hello grey goose yep I agree who would ever think that one little butterfly shaped gland in your neck is so small yet does so so much to keep us alive and going.

[Batty1 in reply to greygoose]

What's considered high iodine? On my labs my iodine is very high on the tippy top of normal almost over the edge. Just curious since no doctor mentioned this.

[greygoose in reply to Batty1]

If you're on thyroid hormone replacement, it's not surprising that your iodine is highish. You get 64 mcg iodine with every 100 mcg T4. But, as you don't have a thyroid, it's not likely to affect you in any way.

[SeasideSusie Remembering]

Hkm2281

Those are the same results that you posted in an earlier thread a couple of weeks ago and comments were made, it might be helpful to re-read the replies:

healthunlocked.com/thyroidu...

Those results, at that time, were showing that your thyroid was overactive to have such high FT3 and FT4.

To know if you have Graves Disease (overactive thyroid) you need the antibodies testing TSI and TRAb.

To know if it's actually Hashimoto's - autoimmune thyroid disease which destroys the thyroid and leads to underactive (hypothyroidism) but frequently starts with a overactive episode, you need the antibodies testing TPO and Tg.

2 months is too long to wait, you need those antibodies testing to see what's going on. See a different GP urgently and don't accept any thyroid medication (eg Carbimazole) until you have an answer as to whether you may have Graves or Hashimoto's. You may need to see an endocrinologist to get the Graves antibodies tested.

If you are female, take a male (partner/friend) into the consultation with you, this often gets things moving when a female patient is fobbed off.

[greygoose]

Have you had your antibodies tested? That looks to me like a Hashi's 'hyper' swing. If that's the case, then there's not much he can do except wait. You do not want to take anti-thyroid medication unless you're absolutely certain you need it, and I don't think you do. Your FT4 will come down by itself in time, so he's right to tell you to go back for another test in a couple of months. It's wrong to rush into things without knowing exactly what you're dealing with, and for that you need the right blood tests. So, if you've never had your antibodies tested, that is the next test and you should insist on it.

[Lalatoot in reply to greygoose]

Balanced and thoughtful reply as usual grey goose. Happy New Year.

[greygoose in reply to Lalatoot]

Thank you. Happy New Year to you, too.

[Hkm2281 in reply to greygoose]

Thank you for your reply. I'll just wait another few months its not going to make any difference, like you say it'll probably just sort itself out. He obviously doesn't seem too concerned so it can't be anything to worry about.

[SlowDragon Administrator in reply to Hkm2281]

You do need to see (different) GP and get further testing

It's not acceptable to be left like this. You should be referred to thyroid specialist endocrinologist

It's important to know if you have Hashimoto's or Graves' disease before starting on carbimazole

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested for Hashimoto's (and Graves' disease)

Also EXTREMELY important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common with Hashimoto's or Graves

Ask GP to test vitamin levels

You may need to get full Thyroid testing privately as NHS refuses to test TG antibodies if TPO antibodies are negative

Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies

thyroiduk.org.uk/tuk/testin...

For thyroid including antibodies and vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies

thyroiduk.org.uk/tuk/about_...

Private testing for suspected Graves - TSI or TRab antibodies

medichecks.com/thyroid-func...

[greygoose in reply to Hkm2281]

No, I didn't say it would sort itself out. Thyroids don't tend to sort themselves out. Something has raised your FT4 level, and what you need to do is find out what. And, the first thing to do is get your Hashi's antibodies tested.

Your doctor isn't concerned because he obviously doesn't know enough about it to be concerned. If he knew anything about it, he would be testing your antibodies. So, I echo the replies of the others: see someone else. Someone who knows enough to test the antibodies.

[Lora7again]

I refused to take propranalol because of the side effects

here is a link about the drug

nhs.uk/medicines/propranolol/