My Dr wrote a referral via email to the endocrine clinic in my local N.H.S hospital. I was turned down due to the department not having treated any one in Bristol for my illness, and other excuses NOT to see me.
SMS (save my soul) can somebody help me with a letter to the endos.I shall be more than grateful .
Presumably you mean because you suspect your hypothyroidism is due to autoimmune thyroid disease (Hashimoto's) .....in which case vast majority of patients with primary hypothyroidism the cause is autoimmune
First step is to get FULL Thyroid and vitamin testing
As advised in previous post
healthunlocked.com/thyroidu...
Full testing will show your current FT4 and FT3 levels...essential as you seem to be now taking T3 alongside Levothyroxine
Getting vitamins tested and supplement to bring to optimal levels
If you have Hashimoto's then trying strictly gluten free diet and/or dairy free frequently helps or is essential too
Finding an NHS endocrinologist prepared to prescribe T3 is tricky, but not impossible
Have you emailed for the list of recommended thyroid specialist endocrinologists who will prescribe T3 from Dionne at Thyroid Uk?
thyroiduk.org.uk/tuk/About_...
Have you considered DIO2 gene test?
thyroiduk.org.uk/tuk/testin...
If you test positive for DIO2 gene variation it can help get T3 prescribed in some CCG areas....others remain opposed
Hello S.D .
Thank you for making contact with me. Pretty certain to have Hashimoto's. I have my results back for testing for some vitamin levels. TSH, FT4, FT3 and more. I am not as yet able to read acronyms although Helvella has given us some insight to them.
DIO1, 2 and 3 enzymes mean nothing to me other than it has something to do with management of the deiodinase - 2 enzyme . Why is this related to the thyroid and how could it help me return my health back to the way it was ?
Your question: Have you emailed for the list of recommended thyroid specialist endocrinologists who will prescribe T3 from Dionne at Thyroid Uk?
My answer: No I haven't. Is that a link to the site?
What is CCG
?
Thanks for the tip on a diet of gluten free nosh.
CCG is new name for your local health authority. The holders of the purse and budget planning.
Email for Dionne is in the link I gave you in first reply
Getting full Thyroid and vitamin testing privately is your next step to see exactly what your FT4 and FT3 levels are, plus tests BOTH TPO and TG thyroid antibodies
Roughly 20% of thyroid patients have DIO2 gene variation.
If you read the link about DIO2 gene test it explains why many people need the addition of small dose of T3
"Firstly, you need to know that everyone inherits two copies of each gene, one from their mother and one from their father.
To explain this paper briefly, the DIO2 gene activates tri-iodothyronine (T3) and the researchers found that a tiny fault in this gene could mean that although the body gets enough T3, the brain doesn’t.
The researchers found that patients on levothyroxine (T4) alone felt worse if the faulty DIO2 gene was inherited through one parent and worse still if they inherited the faulty gene from both parents.
The patients on this study were given T4 only for a set period and then combination treatment of both T4 and T3. The patients who had normal genes did not feel any different on combination treatment. However, those who had one faulty gene felt better on the combination treatment and those with both faulty genes felt better still.
This means that there is a possibility that patients who are on levothyroxine alone and still have symptoms may improve with the addition of T3.
Thanks again for such a welcomed reply. Advice taken but must look up DIO2 no idea what it is or what it signifies.
Approximately 20% of thyroid patients have DIO2 genetic variation meaning they need addition of small dose of T3 alongside Levothyroxine
It's becoming more recognised....but still test not available on NHS ....apart from in Kent
Assuming you tested positive for this relatively common gene variation it's good scientific proof that you would benefit from trial of T3 on NHS
First step is to get full Thyroid and vitamin testing via Medichecks or Blue Horizon
Getting thyroid dose and vitamins optimal is first step
Perhaps consider DIO2 gene test later next year
WOW! you're amazing for all your knowledge on this subject and more. Can't thank you enough really. x
Only recovered my health with help from this fantastic forum. More on my profile
Many of us "difficult" Thyroid patients turn out to be DIO2 positive
OK I'll check it out for sure DI02
For clarity, the gene that affects T4 to T3 conversion is called DIO2 - that is, three letters and a number. Not D102 - a letter and three numbers. Not DI02 - two letters and two numbers.
The name comes from the enzyme that this gene affects which is a deiodinase. It removes an iodine atom from a thyroid hormone molecule - it deiodinates it.
On this forum we probably understand, but if you wish to look it up anywhere, it might help to get it right. If you are discussing with a doctor, and get it wrong, you are providing an excuse for them to dismiss what you say.
(More strictly, two single-nucleotide polymorphisms (SNPs) on the DIO2 gene, rs225014 and rs225015.)
academic.oup.com/jcem/artic...
The Wiki article provides a basic introduction as to what a single-nucleotide polymorphism (SNP) is and why it can be important:
en.wikipedia.org/wiki/Singl...
For clarity, the gene that affects T4 to T3 conversion is called DIO2 - that is, three letters and a number. Not D102 - a letter and three numbers. Not DI02 - two letters and two numbers.
Got it , thanx. I understand the three letters and one number. Thanks for explaining this to me.
On this forum we probably understand, but if you wish to look it up anywhere, it might help to get it right. If you are discussing with a doctor, and get it wrong, you are providing an excuse for them to dismiss what you say.
^ Excellent piece of advice. I need all the relative information to set my self up to succeed NOT fail when asking my doctor to refer me to an endo.
Everything you give me is saved for later when I prepare notes and place facts down on paper .
Can You Tell Me the Answer to This?
If you see a private endo, can you get an NHS prescription for T3?
When to see another endo
Should I push to see an endo
What happens when you see an Endocrinologist?
