Letter from NHS Endocrinologist contains very positive recommendations!

[Abi-Abster]

Edit: For those who have asked: I’m in W Sussex, but the doc mentioned was a locum Endocrinologist, so I don’t know if I’ll even see him again - he said he wasn’t sure he’d be there in 6 months. Frustratingly!

- - - - - -

In my previous post (link below), you lovely folk kindly read through my blood test results and recommended what I should say at my then-imminent NHS endocrinology appointment.

After the event, I updated the same post to let you all know what happened during the appointment.

However, only today have I received the letter through the post from the locum endocrinologist who took my appointment. And it’s wonderful! I’ve attached a photo copy for your reference, with the letter only edited to take out a couple of identifying markers.

I‘ve just been crying with joy!

Firstly, because the locum endocrinologist wrote what he promised he would in order to support me;

Secondly, because it means hope for the rest of us: the more the message gets through to individual medics in the NHS the better our chances of T3 treatment overall.

Thirdly, I’ve had chronic health conditions for decades (over half my life) and, apart from recently being referred to - and treated by - an NHS Adult ADHD specialist (whose diagnosis of me aged 41 answered life-long questions about my daily challenges, and who also changed my life by prescribing ADHD meds to improve my cognitive functioning), there has been nobody in the medical profession able to help with the ME, Fibromyalgia and Transverse Myelitis. I’ve been on my own with all of it - even when last year the TM left me partially paralysed!

This is because there is no real treatment of these core health issues - only plasters for the symptoms. It’s also because medical science doesn’t understand any of it - or care enough to fund research into it. In turn, this is due in part to the stigma of invisible illnesses (sad but true), and there are lots more factors at play here that mean people in my situation don’t get the medical support they need.

Anyway. I’ve finally had *real, medicinal help* and support from the NHS for a concrete issue, and I’m absolutely blown away. Here’s hoping my GP follows through with the recommendations!

And thank you all for your help this far. I’ll keep you posted.

With thanks,

Abi

NB 1: Previous post -

healthunlocked.com/thyroidu...

[Kitten44]

That's amazing! If only all endos were that open minded and patient focused!

If you don't mind me asking, where abouts are you based?

You should write to TUK to name your endo to have him added to the list of good ones!

[knitwitty in reply to Kitten44]

Fantastic for you, what a good outcome.

Was thinking of asking exactly the same question, whereabouts in the country are you?

[Abi-Abster in reply to Kitten44]

I’m in Sussex, but he’s a locum Endocrinologist so goodness knows if I’ll even see him again!

[shaws Administrator in reply to Abi-Abster]

I'd only give his name by a Private Message as the Association he belongs to may take some action against him for prescribing T3 - even though you feel well on it. They have pursued doctors in the past for not prescribing levo but other options instead.

[Abi-Abster in reply to shaws]

Funnily enough, I was wondering if part of me being prescribed T3 was actually due to him being a locum, and therefore less concerned than a permanent member of staff about being pulled up on it...