Bad day symptoms ( Graves )

[Lauren85]

Good evening,

What’s everyone’s symptoms when having a bad day with Graves’ disease?? I’m only asking as Iv felt rubbish all weekend. My symptoms are feeling tired, rapid heartbeat when walking up stairs, out of breath. And feel nauseous. Iv had no motivation what so ever. So annoying as it’s my birthday today and Iv stayed indoors 😬

[Fruitandnutcase]

One of my worst day was early on. I was diagnosed at the end of November, started in 20mcg carbimazole then and it was increased to 40 mcg in the New Year so the carb really hadn’t kicked in at that point and I couldn’t take beta blockers because I have asthma

So, my worst day was when my other half decided I could host a Christmas soirée for all of our neighbours because the couple who usually did it were pushed to find a slot for it, so he thought I could do it. At that po8nt I realised that although he made all the right sympathetic noises if he thought that I could do something like host a Christmas soirée then he hadn’t a clue. Needless to say me hosting the neighbours didn’t happen!

In the end they hosted it and I went to it. I felt totally ignored by my other half so I went home - it was only next door - I was tired, fed up and generally grumpy about other half having more fun than I was having.

Mrs Next Door was one of those people who raised her eyebrows about how ill I was feeling and was never sympathetic - not that I wanted sympathy, I just didn’t want her judging what she saw as my so called ‘illness’ so I got fed up with that and generally feeling rubbish which was why I went home - well Graves isn’t really all that obvious is it!

Hours later - well maybe an hour - my other half noticed I had gone and came back - it seemed to me that he wasn’t sympathetic enough (!!! ) so I lost it big time and ended up having the screaming abdabs with him. I yelled and cried - hysterical probably fits the bill - I don’t think my pulse has ever been that fast in my life, by the time I was finished my heart was pounding and I felt absolutely dreadful. The worst I have ever felt really.

It was definitely not my finest hour considering I was in my sixties! I should have known better.

Generally until I saw my endo at the end of February and got started on the replace part of my block and replace treatment I felt like you.

I’d say to get as much rest as you possibly can, delegate everything you can, ignore as much as you can and just be kind to yourself and a bit or a lot selfish. Do things that you want to do, not things you think you ought to do and throw in some high strength p, slow release vitamin C if you can - that was my pharmacist’s advice and I always took that. You’re really quite ill, your thyroid affects every part of your body.

Believe it or not you will feel better eventually, it just takes a while. Good luck with it all.

[Buddy195 Administrator]

Hi Lauren,

So sorry that you feel unwell on your special day. I do hope you can celebrate later on, when you feel better. 🤞🎂🎁

I’ve had lots of rubbish days with thyroid trouble- I’ve noticed I feel worse when my thyroid medication and my vitamins aren’t optimal. I definitely have palpitations and dizziness when under medicated. When were you last tested for thyroid and vitamins and what were the results/ ranges?

You are doing the right thing taking it easy if you feel poorly. Rest is very important.

[pennyannie]

Hey there Lauren

I think your weekend symptoms were linked to the hidden " expectations " Graves Disease can " drive you " to.

I may sound strange but all I know is that " looking forward " can backfire :

I'm likely to overthink everything which can leave me exhausted, and then not able to enjoy whatever it was that put this pressure on me in the first place !!!

It's as though the Graves has " high jacked " the pleasure I thought I might like to have ??

I'm with Graves, post RAI in 2005 .

I deeply regret this RAI treatment, but didn't know any different at the time :

I now self medicating as I can't access the full thyroid hormone replacements from the NHS :

I'm much improved, but still have to " manage " these lingering Graves symptoms that don't show up in blood tests leading doctors to think " anti depressants " !!!