So it’s been 6mths since I’ve been on T4/3 combo. After 11yrs on T4 only and never optimal I’m now feeling really ‘normal’ Normal is awesome, I wish everyone could feel this way, which is what’s supposed to happen when we get treated.
The last few years I’ve had my lashes and brows done. Even though I’m dark haired, I was born blonde and then went dark at around 4/5yrs. My eyebrows and body hair remained light/blonde. I had been having lashes put in because my lashes were so sparse but then became allergic. My eyebrows much like my hair have always been thick and plentiful (something I hid from Gps and Endos lest they think I’m not really hypo). Anyway, my story is that I hadn’t been to my lash girl for 2mths because I’ve been so busy (I’ve got a job and gone back to college since being optimally treated) My lash girl was just so shocked at how long my lashes have become. Twice the length!
I know it’s shallow and if you’re hypo it’ll be last on a long list of grievances but for me it’s the icing on the cake to feel good 🤗
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Thank you. I have spent the last year all but housebound and feeling very poorly at times. Just about to take my first 5mcg of t3 at the weekend on a combo trial. Great to hear that it can work.
Oooo how fabulous Lalatoot! All the best going forward! I’ve just had my teeth done too as the were ground down (I believe again some way related to hypo) and now I’m looking at getting my eyelids done as there is a lot of skin. They have always been full and puffy since childhood but now that they aren’t they are loose!!
T3 for me has been amazing! I really hope that it’s the same for you 🤗
Thank you. I am badly needing to go to the dentist too but have not had the energy or the feeling of wellbeing to tackle that. It has been 8 months since I managed to go to a hairdresser so to get my hair trimmed will be fab!
I did say to the endo that I was hoping for a t3 miracle - she laughed and said she couldn't promise that!
5cg of T3 is a very small dose. I do hope endo will consider increasing dose. You are probably aware that most CCGs are banning this due to cost and this may be why they have given you such a low starting dose?! I really hope it works for you. I am now on T3 only and feeling good on it.
Thank you. My endo wants to start me on 20mcg so I have prescriptions for 3 months at that dose. I have read on here about building up slowly as I am sensitive to changes so that's what I am doing. I am lucky in that I live in Scotland and endos can prescribe it though it is still not easy to get them to.
Struggling a bit this week. I am sensitive to hormones. First 3 weeks of a change are usually not too bad so been okay. But now the body is wondering what on earth is going on so feeling sick. It is weird because so many symptoms have gone and I feel better physically. If it weren't for the hormonal sickness it would be fab! It will pass. I have a couple more increases so will be going slowly with those.
Wow that’s great! I dream of having the outer third of my brows returning. Think I may need combination of T3/4 in the future, so it’s lovely to hear such positive news NWA6.
Your good news will be uplifting to those still struggling to find an improvement in their health. Sometimes it takes so long you get fed up and think you'll never get better and trial and error at times, you can but you do need sensitive and knowledgeable doctors or if not them, members are very helpful and knowledgeable.
That’s brill! Not just about the lashes, which is a great sign, but that you now feel normal. I’m so excited for the day I’ll be able to say that. Little flashes here and there are nice though
That’s great I’m really happy for you wow after 11 years you must have been so used to feeling unwell by then. Can you tell us a bit more about your road to recovery? I’ve been diagnosed as hypo for about 6 years. Like you, on t4 only and just so far from normal or well. Hope one day I can get better too. Did you get prescribed t3? I’m so worried to source my own without a doctor....no idea why though as doctors have given me some terrible advice in the past!! xxx
Hey Purpledreamer. I am prescribed T3 privately and T4 on NHS but I do also source my own too. Some is back up incase the Dr’s change their minds and because I need a higher dose than they’re willing to prescribe.
You are right I was so used to feeling unwell. I think it started in my teenage years, it was always underlying. But I was at last diagnosed 11yrs ago. I’ve always pushed for more Levo and the GP’s have always been arses about it. They hate me, they really do because every 6mths I’d be back in telling them I felt rubbish. Finally last year things started getting worse over a 6mth period and I became housebound earlier this year. This was actually a blessing as I had to just stop everything. Stop pretending that I could cope, I couldn’t, my family took over and I lived in my own bubble for 4mths. The only thing I did was try and google everything I could about Hashimotos and find answers. It was these forum members who helped and gave me the most knowledge to understand why I wasn’t getting better as the GP’s promised. Looking back over my life I’ve always felt tired as if everything was soo much effort. I’ve had a lot of things said about me, some of it none too kind which has led me to never feel good enough. I’ve kept myself in a nice little family bubble to protect myself from trying too hard and getting exhausted. I’ve also had extreme mood swings, depression and low self esteem. The only person who knew who I was was my husband of 25yrs. Now that I am optimally treated he sees such a difference and said he’s so lucky that he’s now got twice the woman he signed up with 😂
I can’t begin to let people know how happy I am. Such clarity, such even temper. It’s amazing. The only thing I’m nervous about is that my sources dry up, my private Endo retires or pops his cloggs 😬. I need to start my challenge to the NHS who did take over prescribing for one month and then the Local prescribing team said that couldn’t carry on but my life is just so full atm. I started a new job, first real job in 14yrs. I have done a couple of jobs or volunteering but could never stick it out. I go to college one day a week and of course I still have 4 teenagers to grow 🤗
I wish Everyone on this forum could have my same success and I just hope it continues. I have another lifetime of ‘no thyriod function’ to go. I can’t even fathom no being well again 😞
Great news. I have been sick for almost 25 years and I have been feeling sicker and sicker over the years. I am hoping I get a miracle too. Do you mind sharing how much T4 and T3 you are taking.
Gosh that’s so interesting! I’ve just taken a look at your profile and it looks like a lot of hard work has gone into this. Good luck to you I hope it continues for you and Thankyou for sharing. Keep us posted! 🤗
Hey dragonfly76. Sorry this was missed 3wks ago! 😬 I’ve never had my adrenals checked. Just added T3. I’m surprised everyday that I wake up and feel ‘normal’. I’m reading so much about people’s struggles with adding T3 and get the balance of meds right and I wonder ‘how did I introduce it in one day and it be successful?’ I just don’t know 🤷♀️ I wish I knew more about it all so that I could pass on the magic formula!😞
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TSH supressed
Hair loss and high T3
feeling down in the dumps..
At my wits end! Any advice would be much appreciated.
