Hi, all. I have Hashimoto’s and notice that occasionally I get a brief pain in the front of my neck, seemingly where my thyroid is. It isn’t very painful but it’s noticeable and it never lasts long. I have had a recent thyroid ultrasound and no nodules and my doctor just kind of dismissed it as nothing. I should add- it does seem to be somewhat linked to a higher than “normal” tsh since I had it when I was first diagnosed and just starting medication and now it has flared up after my most recent visit to the endo when my tsh was a little high (5. something). (Note added later: My endo has increased my levo dose but this was just recently done so I am probably still hypo).
Thanks!
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thyroidmom84
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As you have Hashimoto's.......How much Levothyroxine are you currently taking and how long at this dose?
If your TSH is 5 you are most likely very under medicated
The aim of Levothyroxine is to increase the dose slowly in 25mcg steps upwards until TSH is under 2 (many need TSH significantly under one) and most important is that FT4 in top third of range and FT3 at least half way in range
NHS guidelines on Levothyroxine including that most patients eventually need somewhere between 100mcg and 200mcg Levothyroxine.
Also what foods to avoid (eg recommended to avoid calcium rich foods at least four hours from taking Levo)
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to regularly retest vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if you have autoimmune thyroid disease (Hashimoto's)
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and before eating or drinking anything other than water .
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
About 90% of all primary hypothyroidism in Uk is due to Hashimoto's.
Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten.
Hi, thank you for the reply. I may not have explained very clearly but yes, my tsh is high right now and my doctor has increased my dose. The way I meant to phrase it is- does anyone have this as a symptom when they are hypothyroid?
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