Hi just wondering if anyone else has joint pain I am on 100 thyroxine, which I have been taking for yrs ( i was on 120 but came of it myself as I am nearly 70 and it’s surrpose to be less than 100 for older people really) I have pain in my shoulder down my arm in my left wrist and really bad in my foot and ankle , I can’t walk on it, i can but every step hurts, I had a test but my thyroid is fine so they say) ...I had this years ago and I thought I had Fibromyalgia,as my hands and feet got really hot and I hurt all over , it’s not as bad as then but it really making me feel down ,as I can’t go walking , go to the gym, takes my friends dog for a walk , or drive ... , I did go to the doctors, but as usual they give you painkillers, but it’s not curing it ...anyone else had this thank you x
Joint acke: Hi just wondering if anyone else has... - Thyroid UK
Joint acke
Hello Tippytwo
If you didn't have these pains when you were on the higher dose of Levothyroxine I think it would be worth reversing your decision of reducing your dose simply because of your age.
I'm 72 and dosing to relieve symptoms that were my constant companion and debilitating when on too low a dose of thyroid hormone replacement. We need what we need, and I certainly will not be reducing my medication because of my age.
I believe you should get back out there and enjoy your life being active and social, rather than become housebound for no other reason than you have reduced your thyroid hormone medication because of you are getting older - aren't we all !!!
i was on 120 but came of it myself as I am nearly 70 and it’s surrpose to be less than 100 for older people really
Who told you that? I'm 71 and I take more than 100mcg Levo without question, my prescription is for 150mcg.
I had a test but my thyroid is fine so they say
You can't take their word for it. You're only fine if you feel fine. They're just going by the fact that your test results are probably somewhere within the reference range. Always ask for a print out of your results of any test that you have, here in the UK it is our legal right to have our results and it's the best way to monitor ourselves and not rely on GPs who often don't realise that "in range" doesn't mean "optimal".
If I were you I'd get your nutrient levels tested - Vit D, B12, folate and ferritin, these are often low when you have hypothyroidism and low Vit D can cause muscle and joint aches and pains.
If your GP wont do them then consider private testing with Medichecks or Blue Horizon, frequently mentioned here.
Hi it says on the leaflet about the elderly , that by the way anyway , just shows you it can’t be right as I had one when I was on 150, 120, now 100, and still they say I am ‘ok’ so the blood samples must be wrong , yes I will,ask them about other tests thank you 😊
If by the leaflet, you mean the PIL, I've just checked another one randomly, and it states that for Adults the daily dose may be 100-200 micrograms; for the over 50 years of age the daily dose may be 50-200 micrograms daily; for the over 50 years with heart problems the starting dose and increases will be lower and slower but the daily dose will usually be 50-200 micrograms. So for both the younger and the older adults, and the older adults with heart issues, the possible upper parameter is 200 mcg in all cases. (But that's not an absolute maximum of course, it could be more). There was no need to reduce your meds simply because of age - you need what you need, and if that is less or more than those numbers, then so be it.
Ah thank you ,but whatever doses I take my blood samples all appear normal
Normal simply means, in medic-speak, within the reference interval. It doesn't mean right for you, or optimal. I once spent a whole appointment correcting a locum GP every time he referred to 'normal' range or 'normal' result, to make the point, but I doubted it had any effect. But I digress. For instance, if a lab uses the reference range 12 - 22 say, to measure FT4, that means the interval is 10, and anywhere within that will be classed as normal - but you might be very unwell if yours was say, 12, and very much better if it was say, 21; but both would be 'normal'. To properly manage our health, we need to ensure that we obtain a printed copy of every test result as it's carried out, so that we know exactly what the numbers are, not the nonsense of "normal".
Ah thank you , think I will have to go back and see what they say, probably br fogged off with stuff I don’t understand...🤔
Simply ask the receptionist to print off which ever results you're interested in, and then post them in a new thread here for folks to comment on, if you would like their input. There's no need to see the GP, just call in to reception and ask for your last thyroid function tests, or what ever you want. You don't have to enter into a dialogue with them, or give a reason, because you are simply entitled to the info by law - the Data Protection Act 2018 and the EU Data Protection Regulation. 🙂
Right will do that thank you 👍😊
When you are undermedicated fluid can gather in soft tissue causing pain. When I was very undermedicated I had particar probs with a painful bunion and finger joints. Currently it is my knee joints that are painful.
Ah ok , may have a private test then thanks
First step is to get copies of last Thyroid test from receptionist at GP's
Come back with new post once you get results and ranges
Likely only TSH was tested
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised or if on too small dose of Levothyroxine
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Hi I have the same issue thyroid are normal antibodies high no tx joint ache and hot don’t know what else I can do no one does anything just take pain meds
Dperez1223
If you have high thyroid antibodies this means you have autoimmune thyroid disease
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also EXTREMELY important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Suggest you start a post with your most recent blood test results and ranges. Members can advise on next steps
Strictly gluten free diet often helps many with Hashimoto's
Getting vitamins tested and supplementing to bring to optimal can help reduce symptoms
Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels
Low vitamin levels affect Thyroid hormone working
Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
While still eating high gluten diet ask GP for coeliac blood test first or buy test online for under £20, just to rule it out first
Assuming test is negative you can immediately go on strictly gluten free diet
Anxiety is common hypothyroid symptom. Also common with gluten intolerance
(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially)
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
chriskresser.com/the-gluten...
amymyersmd.com/2018/04/3-re...
thyroidpharmacist.com/artic...
scdlifestyle.com/2014/08/th...
drknews.com/changing-your-d...
restartmed.com/hashimotos-g...
Yes my tsh are all normal that’s why he won’t give my medication but are eye twitching aches fatigue a sign of thyroid and also I have 2 small nodules on left thyroid... I asked dr if there are symptoms he says no so I’m confused one dr says it can be fibromyalgia one says MS I’m freaking out my Vitamin D are low taking supplements and also magnesium feel like I’m losing my mind need some feedback thanks
What are your actual results and ranges for TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to test vitamin D, folate, ferritin and B12
Vitamin D 25
T/4 6.2
T/3 86
TSH 1.010
Vitamin B 574
Ferritin 35
These are from June 2019
TPO AB 276 these are from 2018
THYRO ANTIBODY 80.9
Folate 12.5 just confused as to what am I suppose to do
Dr says just to monitor nothing much to do so just wondering if my symptoms are related to thyroid antibodies even thought the other blood work are normal
Can you add the ranges (figures in brackets after each result)
Every lab has different ranges
What are the units on vitamin D .....nmol or ng/ml?
That’s all I am doing, but hope to get in to see the Doctor sometime, we have to phone before 8.00, to get an appointment,
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