Hey went to doctors this morning to ask if consultant had transferred my T3 to him but unlucky me, she hasn't she just requested for my levo to continue with my gp and for me to continue picking my T3 from the hospital pharmacy.Doctor said that to buy pack off 28 T3 private would cost £200 he also said (as all of you already probably know)..that the hospital has a contract with suppliers who provide the cheapest brand. Well Q.E does anyway. Feel so tired and exhausted at work, so fed up! Hate this feeling. So my doctor said he will give me some Lansoprazole 30mg gastro-resistant capsules to help stop the heartburn and stomach burning. More tablets great anyone know any natural herbs I can take ..lol.. (besides cannabis)..🤣 have to laugh other wise I'd be crying..😪 anyway that's the update for today think you moving forward but you hit yet another brick wall..
More meds.. : Hey went to doctors this morning to... - Thyroid UK
More meds..
Heartburn and bloating is often gluten intolerance
Adding T3 will have reduced your TSH. This can make some hypothyroid symptoms worse ....at same time others improve
As you have Hashimoto's it's essential to regularly test vitamin D, folate, ferritin and B12
We need good vitamin levels for ANY thyroid hormones to be effective....that includes T3
As outlined in detail in previous post
healthunlocked.com/thyroidu...
When were vitamin levels last tested
What supplements are you currently taking
Add you now on strictly gluten free diet?
How much was Levothyroxine reduced when T3 was added?
It may be symptoms are due to FT4 now being too low. Many endocrinologists tend to reduce Levothyroxine far too much. Often it only needs reducing tiny amont, or not at all
Most hypothyroid patients have low stomach acid
Omeprazole will lower stomach acid even further and can low vitamin levels futher too
Thousands of posts on here about how to increase stomach acid
First step is to get full Thyroid and vitamin test
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also important to test vitamin D, folate, ferritin and B12
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
Hey, my heartburn started as soon as I started my T3 (Teva brand) trailed by endo two weeks ago, initially I started last week monday till Friday, but I stopped as heartburn started same day and reduced rapidly when stopped T3. was told on here its probably the fillers they use in the tablets (no heartburn or stomach reflux) previously, as I mentioned in my older posts the T3 I managed to get privately before the endo agreed to trial me. worked miracles no side effects feeling great loved it. I started on 12mcg of T3 with 100mcg of t4 (as originally I was taking 100mg alternative 125mg t4) (prescribed by gp). Then slowly on to 25mg of T3 and 75 t4 and then 50t4 and 50t3 no issues what so ever felt like a new person altert energised no aches pains no coldness no brain fog. 💃 then as they say all good things come to an end. 😔 soon as run out of T3 unipharma brand, the next day all symptoms come back! so decided to prove a point to endo told her I trailed it and it worked, that's when she agreed. She said to take 75 t4 and half of T3 (which she assumed it would be 25mg) but pharmacy only did 20mg. But as you know the day I took them alday was good then evening the side effects kicked in severely.(heartburn n reflux and lasted the whole week whilst on t3 when stopped on the friday it reduced rapidly straight away no word of a lie. so after aweeks rest of T3 and feeling low again I went to doc and told him, he gave me lansoprazole so this morning round 6 I took lansoprazole, then at 8 took 50mg t4 and 20 t3 had good day at work, just very slight heartburn. Sorry for long message but I thought if i explained to you properly then you would get better understanding of what's been going on.
You ask if I stopped gluten totally to be honest no, reduced it massively to see if it is that but no, but tbh I've never really had issues with it and didnt make much of a difference when reduced.
You ask when last bt was about 3 months ago. I put results up on here.
just received a letter to have bloods done in a weeks time.
You ask wt vits I'm taking? Doctor is already prescribing D3 and I've added vit c, b12, b, and magnesium all I need is ferritin.
I take all vitz Before bedtime as reduces pains in legs. But will request what you just said on next test from doc as hes really good atm.
You ask if I do my bt like you recommend yes I do as you did say in some older posts, and that has stuck with me..😊. I do listen lol..and by your recommendation I did the blood test by medi check and put results up few months ago.once again thank you for that. I cannot afford the full one but when I can I will definitely be doing it. Will keep trying the lansoprazole before taking T3 n t4 see how I get on for a week. Thankyou ever so much for the advice and info. Really appreciate it. Will follow it and update soon. X
So you have been taking 25mcg uni Pharma....but now on 20mcg Teva
Exactly Same dose of Levothyroxine ?
Is that correct?
If so you have reduced dose by 5mcg and this may be causing some of the problems
I have never tried Teva.
I started on uni Pharma and changed successfully to Mercury pharma. (But I was on 18.75 - 3/4 tablet per day and went up to 20mcg Mercury Pharma )
I now take Morningside Healthcare. It seems perhaps slightly stronger than MP and is blister packed
Remember to stop taking any supplements with biotin a week before testing, as biotin can falsely affect test results.
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
Yes as the hospital pharmacy dont do 25mcg and they telling me Teva is the only brand they can get hold off. Cost wise. On here alot of people said they'd had issues with Teva brand too.
I guess you not had any side effects of any of the other brands?
If I'm going for blood test I will not have anything normally just water in the morning but day before will eat light food as reading on here and advice from Admins I'm alot more careful now well when I can remember things my brain fog wipes my memory...lol
I've also requested genetic testing and lucky for me my gp sent the request they wrote to me and said a appointment will get sent soon.3 of my siblings have underactive thyroid, many years later to when I was diagnosed. Only my oldest brother isnt effected by thyroid atm. But I've requested this testing for cancer as mom and sis have had it and now older sis has cancer. Think it will be peace of mind to know if I have both faulty Gene's. Probley why we all suffering from thyroid disorders.
Thank you for advice really appreciate it as still alot of people don't understand and when you cant discuss it, it's so depressing. So thank you 😊
Do bear in mind that a lot of the posts about problems/issues with Teva are regarding their levothyroxine rather than their liothyronine, though there are some about their liothyronine as well.
A lot of threads appear to have confusion about whether they mean levothyroxine or liothyronine.
The problem in their levothyroxine seems likely to be mannitol. Their liothyrinine does not contain mannitol.
Yeah I realised that going through posts again. All my levothyroxine hasn't really made an impact in my health been taking them since was 19 am now 44 my lifes never been normal. only the brand I have now mercurypharma is a little better then any before but I feel I definitely need T3 as I know my T4 doesnt convert into T3. First time tried T3 unipharma brand felt great and everything i moaned about feeling cold and tired and brain fog decreased rapidly, but when started the trial with endo felt good but not as good as previous T3. heartburn and stomach reflux coldness started and stayed till I stopped. All last week I've had to take lansoprazole hour before t4 and T3 so I could try and have normal day. Never really been borderline always up or down doesnt help with having graves and hashimoto's. But thank you for advice and response.
Ask pharmacy to prescribe Morningside or Mercury Pharma brand of Liothyronine
They cost EXACTLY same as Teva T3
All 3 brands are 20mcg. And all cost within pennies of each other - currently £206 per 28 tablets
Alternatively self source more Uni Pharma. But Greek T3 is now very difficult to get
I did speak to pharmacy they said they couldn't as they have contracts with a certain company, But as we all know that's just B.S, it's just all about budgeting. But I left a message with endo's secretary explaining what's happened. So hopefully she will get in touch tomorrow as she said.
My next bloodtest is due in November so will request to get the vitz one done.
Thank you once again for your support..😊🙏
Just a though but have you tested for H Pylori?
What's that? I will look into it but would really appreciate if you could explain. Thank you.😊
Helicobacter Pylori - a very common bacterial infection of the stomach which has been implicated in gastritis and stomach ulcers.
en.wikipedia.org/wiki/Helic...
It can be treated with antibiotics. You'll find loads of info on the subject online.
GP has been stopped from prescribing my T3 and Clonazepam
does anyone get t3 on NHS
As predicted! No T3 from NHS Endo
Thyroid meds
GP chat-NDT, Antibodies and more...
