Hi all long post coming up just trying to give as much info as possible to see if I can get some help!
Back in 2009 I had an accident while dancing and was dropped in my head. I badly damaged my neck. With in a year of this happening my health deteriorated massively my arms wouldn’t work properly, my lower back went, my ribs were in severe pain, my sleep went out the window, every joint and muscle hurt.
I was eventually diagnosed with fibromyalgia. During this time my sister who is 16 years older then me also became very poorly and symptoms were very similar to mine.
Eventually my sister was diagnosed with an underactive thyroid and Hashimoto disease through a private doctor. I went to see the same doctor my Vit D was at 18 and he diagnosed me with adrenal fatigue due to very low cortisol.
I tested both conditions and got some improvements but still suffered desperate fatigue and flair ups.
I went to see Dr Petefield he diagnosed me there and then with Hashimotos and an underactive thyroid. Despite my TSH only being at 2.2 he prescribed me something natural as he is not a prescribing doctor which I had a bad reaction too.
During this time I became a single mum and could not afford to go back to doctor P. My sister recommended maybe I try some low dose levothyroxin from which I had great results I lost 24lbs, I was sleeping, pain levels were substantially lower and my bowels were working! I then felt like I was going over active so I stopped taking it especially as my own gp wasn’t very supportive of it despite the great results. I crashed fairly rapidly after stopping it.
My symptoms were all too much yet again so I went back to the Levo 25mg a day. Literally straight away energy levels were better pain was less but by day 6 of being on it I was agitated and sweating, I dropped it by 12.5 mg and the same thing happened.
Now the weight is coming back I’m constantly tired my neck ankle and wrists keep going, my upper back burns with not much activity.
All I really know is when my tsh is at 2.2 I don’t feel well at all. My periods ruin my life I suffer with PMDD I have 2 good weeks sometimes 1 good week and the rest with horrible symptoms like weigh gain, agitation, depression, pain and insomnia. The NHS are not helping me. I can’t afford to go private and I’m really hoping someone here has been through something similar? I know some of you will get cross at the fact I even went near Levo with my 2.2 tsh but I’d like to to take into account how desperate I as a single mum with very little help on hand..
I really appreciate any advice given TIA