I've posted on here about my TT I had done on May 8th this year my surgeon put me on 125 mg of levo on being discharged I had an app with him six weeks later where he observed hyper symptoms not anywhere as bad as they were before my op.He lowered my dose to 100 mg..about 3 weeks ago I was in terrible pain in my right side was taken to hospital had blood in my urine diagnosis I'd passed a kidney stone... Also my calcium levels were slightly raised and I was to inform my surgeon of this no further investigation required..I did pass the info on to my surgeon but he said he was ok with my calcium levels..this past fortnight my hyper (graves) symptoms have become worse my tremors are as bad as before my op,my sweating as returned I have loose bowls are not sleeping and are exhausted beyond belief and I'm vometing to..I have urine dip sticks at home and the past 2 days it has showed leukocytes a high level in my urine..I have no pain on urinating only a slight niggle pain in my right loin area I have taken buscopan as that's what I was given in A and E to help with pain on discharge..no stone was found in my urine and the gentleman on A&E said I'd prob passed it..does anyone on here know if levo can affect kidney function...I see my surgeon on the 19th of Aug for my six week bloods again..I have asked for all blood results and are just waiting to receive my blood results i,ll have done in Aug so I can post my results from the last 2 blood work..
Many thanks in advance for anybody who responds 👍🏻👍🏻
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birkie
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You have had such a hard time since your surgery. I feel for you.
If a person is not receiving enough thyroxine, this would affect the kidneys (it’s not the levo, but the absence of it) - not having enough hormone slows what is called the “glomerular filtration rate” of the kidneys. What this means is that the kidneys do not process the waste from the blood quickly enough. Apparently, if you are receiving too much levo, it can cause hyper symptoms that might affect the kidneys. You cannot be hyperthyroid because you no longer have a thyroid - but if you are over medicated, you can have hyper symptoms. It is not straightforward and really needs a doctor to sort it out.
I have also read that hypercalcemia - too much calcium - can cause some the same symptoms you are experiencing. So maybe your calcium needs to be checked again.
Your blood work will hopefully show what is going on. Maybe you are either receiving too much levo or not enough- or maybe you are not converting and need T3. The bloodwork will tell you that story along with your symptoms.
You may also have an infection (not sure if it’s the kidneys or elsewhere) and if you are finding white blood cells in your urine, this would call for further investigation. When I had kidney stones a few years ago, I developed a kidney infection and needed two courses of antibiotics to clear it up.
You can see there is no straightforward answer.
Since I am not a doctor, I can not say why you are experiencing all is this. If you are still so ill, I would go back to A&E - you don’t seem well at all. In the meantime, drink plenty of water - essential to keep kidneys clear - my left side was very sore for a few weeks after the stones were passed. However, I did not have any of the symptoms you are describing. Maybe you need a urologist or nephrologist to help here - and a referral might be in order.
When you get your bloodwork, make sure you get Tg for overall antibodies and the TRAb for your Graves as well.
I feel like most on here that gps and some consultants don't know much about the working of the thiyroid..and how it affects people differently ...they seem to umbrella symptoms and fail to get to the real problem..I know this because when I was diagnosed even before they knew it was graves they put me on carbimazole to which I had a really bad reaction but my GP insisted I keep on it..upshot I was rushed in to hospital told to come off the meds by a heart consultant then I had to wait over six weeks for my GP to consult a endo about what to do next..was then put on PTU to which I had another bad reaction because the meds did not work upshot was rushed to hospital in thyroid Storm!!! I'm now wondering with these symptoms with the kidney and my hyper symptoms being as bad as before my op that perhaps the levo is not for me..I've taken to my bed again as I'm exhausted like before..I nearly collapsed in my local town on tue and had to get a taxi home..i will be discussing this with my surgeon on the 19th of Aug and hope I get somewhere with him..
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested.
Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially with Graves or Hashimoto's
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
Is this how you do your tests?
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
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