"Is there coconut in desiccated thyroid?" - Thyroid UK

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"Is there coconut in desiccated thyroid?"

Limbolass profile image
12 Replies

That's what my doctor asked me today! Hahaha.

Had a medication review and I asked him if he knew what NDT was, he replied, "Yes, I know of it, is there coconut in it?"

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Limbolass profile image
Limbolass
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12 Replies
greygoose profile image
greygoose

lolllllllll Dessicated coconut! lol It's not a cake!

JumpJiving profile image
JumpJiving

Coconut sorbet is one of my favorite things. Not sure NDT sorbet would be quite the same, but maybe worth a try ;-)

SmallBlueThing profile image
SmallBlueThing

Shy a coconut at his head, producing a satisfying "clock". (In our imaginations only, of course.)

Lora7 profile image
Lora7

Did he not know that years ago before drug companies manufactured Thyroxine NDT was the only treatment available for patients? I know not all Doctors are like this but after many years of dealing with them I now feel reluctant to ask them for help with my thyroid condition because they seem to know nothing about it (shakes head!)

Limbolass profile image
Limbolass in reply to Lora7

Obviously he didn't. He was quite young but I doubt that matters anyway. I've now been asked to do another medication review as they don't have a record of me doing one back in the summer just before I posted this. May have to go back on the rubbish stuff as my usual NDT supply is no more :(

helvella profile image
helvellaAdministratorThyroid UK

Do bear in mind that in formal contexts, desiccated thyroid is often called Desiccated Thyroid Extract (DTE) or one of a few other terms. I can quite understand at least a GP never having come across the term natural desiccated thyroid.

The word "natural" added might make it sound like something else.

And given the recent discussion about olive oil and liothyronine, perhaps the thought of coconut flour or fat being used is not so far fetched?

(But if a confusion with desiccated coconut then, yes, a howler.)

MaisieGray profile image
MaisieGray in reply to helvella

Amongst those taking LDN, particularly in the US where personally-compounded meds are more readily available, people are (to my mind) having the most bizarre substances compounded in their LDN, and when I was in one group it seemed like they were spotting things in their kitchen cupboards and thinking, ooh, I'll have my LDN made up with that. Considering that unless a specific action is required, an excipient generally needs to be inert, it's mind-boggling what some are asking to be included in their tablets and capsules. So coconut would be unsurprising in that milieu.

penny profile image
penny

There’s only one coconut in that conversation!

SmallBlueThing profile image
SmallBlueThing in reply to penny

Visions of him performing at weekends in a subpar Kid Creole tribute band :-D

Lora7 profile image
Lora7 in reply to SmallBlueThing

I love that group lol

youtube.com/watch?v=mRO9aBA...

Lora7 profile image
Lora7 in reply to Lora7

I will remove this video if its inappropriate for this site but sometimes you have to laugh about some of the things people say to you about thyroid disease.

Oh dear! Is he sure he didn't get a mate to sit his exams for him?. Write out 100 times: "Desiccated thyroid extract is not desiccated coconut. My patient is not a cake."

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