Interested in other peoples experiences.

[Dodge7]

Hello! I have graves and am interested in hearing about what other people have gone through with this disease. I am also able to offer support and advice from having this condition long term.

[shaws Administrator]

Welcome to our forum and I'm sorry you had to have a thyroidectomy.

Also you are very young - 19 - but I'm glad you seem to be doing fine on your thyroid hormone replacements.

What thyroid hormone replacement do you take and dose?

You may do the following but, just in case, I will give the information we advise when new to the forum.

All blood tests have to be at the earliest possible, fasting (you can drink water) and allow a gap of 24 hours between last dose of hormones and the test and take afterwards.

Are all your vitamins/minerals at an optimum, i.e. B12, Vit D, iron, ferritin and folate.

[Dodge7 in reply to shaws]

No vitamins as my calcium levels are OK I'm on 150mg of thyroxine but my levels are extremely high right now so it'll probably be lower soon.

[shaws Administrator in reply to Dodge7]

Your Endocrinologist should aim for a TSH of around 1 and that both Frees, i.e. T4 and T3 are optimum (i.e. near top of range). Some of us cannot convert T4 (inactive hormone) into T3. It is T3 that is needed in all of our T3 receptor cells and brain and heart contain the most.