Any advice would be welcomed xx

[melanieee]

I have changed from levothyroxine to thyroid s and am not feeling any better

[SeasideSusie Remembering]

melanieee

How long have you been on Thyroid S?

Are you increasing the dose slowly?

What is your current dose?

What are your latest results?

3 months ago your results showed some rather poor nutrient levels, have you started supplementing as suggested? What are your current levels?

Did you start a gluten free diet as you have Hashi's?

Did you get the thyroid ultrasound you were trying to arrange?

[melanieee in reply to SeasideSusie]

Hello 👋 I am on one grain and have been for a couple of months . Haven’t had any more bloods done yet as wanted to get these into my system . Also taking 10000 vit d a day plus magnesium and k2 and b12 as co factors . The gp won’t give me a thyroid scan as he says it’s not necessary 🥺 I went gluten free for 6 weeks and didn’t feel any difference at all . I don’t know whether to up to one and a half grains of the synthesis s . I did go up to two grains for a week a month ago and felt manic so I came back down to one grain . Xx

[SeasideSusie Remembering in reply to melanieee]

Also taking 10000 vit d a day plus magnesium and k2 and b12 as co factors

If you've been taking 10,000iu D3 daily since you posted your Medichecks results where it was suggested you follow the suggestion for loading doses, ie. 5,000iu 3 daily for 8 weeks then retest, then you have gone way, way beyond the normal loading doses of 300,000iu. It's essential to retest now because you may be heading into toxicity territory.

Check back on what I suggested previously

healthunlocked.com/thyroidu...

B12 is not a cofactor of D3, you should be taking that for your low B12. Are you also taking the B Complex, as recommended, to balance all the B vitamins?

I am on one grain and have been for a couple of months. I don’t know whether to up to one and a half grains of the synthesis s . I did go up to two grains for a week a month ago and felt manic so I came back down to one grain

If you went from 1 grain to 2 grains that was too much, 1/4 grain increases are suggested, leave at least 3 weeks before considering another increase. What I would do is wait for 6 weeks to have passed since you came back down to 1 grain (which may only be another 2 weeks), don't change your dose for now and retest everything with a Medichecks ULTRAVIT test again.

[melanieee in reply to SeasideSusie]

🥺🥺🥺 I am so confused 🤷‍♀️ I was advised on the Vit d site on fb so take 10000 a day for three months 😬😬 maybe I should come off all the sites and just speak to you 🥺🥺. I thought I was doing everything right . I feel dizzy and not with it and have really heavy bleeding and waiting for a hysterectomy so my mind isn’t focused properly .

I will go back over out conversation and see what I should be doing . I have bought that many pills I don’t know whether I am coming or going 🥺🥺thanks gain for all of your help xx

[SeasideSusie Remembering in reply to melanieee]

melanieee

The trouble with going on different sites is you will get conflicting advice. I don't do Facebook and have no knowledge of the Vit D site there.

My information comes from

1) For anyone with Vit D Deficiency:

NHS Clinical Knowledge Summary for treatment of Vit D deficiency which I quoted before

cks.nice.org.uk/vitamin-d-d...

"Treat for vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 25 nmol/L

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU]) given either as weekly or daily split doses, followed by lifelong maintenance treatment of about 800 IU a day. Higher doses of up to 2000 IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders.

Several treatment regimens are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

2) For anyone with too low a level, but not Vit D Deficiency, or after retesting following loading doses for Vit D Deficiency:

The Vit D Council vitamindcouncil.org/i-teste...

The Vit D Society vitamindsociety.org/

[jacrjacr in reply to melanieee]

when my level was low..i was told to take d3 - 5000mg 5- 7 days a week with k2 in it to protect arteries. for 6 weeks.., i also took b12 1000 under the tongue melts, and a b complex since b's work best together....and after blood test i take 5 days a week or 4 days a weeknow..it rose quickly...dr wants levels around 50-60

[silverfox7]

It can take time and I would always give this advice to anyone starting out-make sure everything else is in place first! Not being negative but are you aware for instance that one taking any form of T3 then you can not longer tell if you have good conversion asresults aren't read the same after T3 is added in. I've read no end of posts since I first joined and learnt so much more but two things stand out Asti why many are struggling, ont on a high enough dose-GP knowledge failure there, and not converting properly so both things need to be concidered first. That's not to say it's an instant fix but why complicate things if you have no need to? The most important thing I've learnt over recent years is how important optimal levels of minerals and vitamins are to get things working better. You can still address this in NDT so get Vit D, B12, folate and ferritin tested and get them optimal. You may find aswell that you need a lower dose of thyroid meds which can be important if you are buying them yourself. That also improves conversion issues, you just can't tell though anymore by comparing FT4 and FT3 readings. On FT4 readings these drop when you are adding in T3 so the only accurate reading is FT3 which should be high in its range and FT4 will lower but not by a set amount so it becomes an unreliable figure. TSH with be suppressed. So all is it lost but get those vits etc optimal and that will help you on your journey.

How have you made the switch to Thyroid S? I followed the STTM plan but it back died on me. Can't remember exactly what I did now as long time ago but I missed my sweet spot! I went up to 2 grains in 0.4 grains and then over to quarter grains as the suggestion was things can move so quickly then. I got up to 3 grain and felt good but wasn't getting to very good (I'd been put on NDT by the NHS many years ago and took it for around 4 years so I knew what to expect ). But I'd also timed this so that if things went haywire I had an appointment booked with my Endocrinologist. So I took the problem to him. The hospital always asks to give bloods a week earlier so that the facts are ready for my appointment date. So iwas overmedicated. Not surprised by that as I wasn't feeling any better though increasing but he told me to drop down to 1.75! I thought that too much but he qas spot m on! So take your increases slowly and then testafter being on a regular dose for a while as you did on Levo. Post your results and we can comment on them.

[Hidden]

It took me two years to get to the right amount of thyroid s. I now take two grains split into two one at 6am and the other at 2pm.

You should only raise by 1/4 grain at a time and then wait for two weeks to see how you feel and then increase by another 1/4 and so on. You should do bloods after 6 weeks on 1 grains and then see how things go. It takes time to sort out.

[Hidden]

Another thing is your body must take time to get use to the T3 in NDT there is no short fix. Retest you Vitamin D after 2-3 months to see if you level has increased to around 100, if it has you can lower your dosage.

[jacrjacr in reply to Hidden]

true....when i first started meds with t3 in them..i felt weird the first two mths....i had to split dose through out the day not to feel like i was getting a t3 high.....or headache....later i could take dose more at once