Help please! My 13 year old has hair loss and a... - Thyroid UK

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Help please! My 13 year old has hair loss and a TSH of 2.8

HashiHolly profile image
8 Replies

My 13 year old daughter is losing heaps of hair and while she started getting her period late last year she's had three but now hasn't had one in nearly four months. I took her to a GP last week and insisted she have her thyroid checked but of course he only checked her TSH. But her TSH came back at 2.8 and mine came back as 0.49 (range 0.5 - 5). My antibodies were 388 but of course he refused to check hers. I think our TSH indicates we both have cause for concern??? Any thoughts greatly appreciated.

Hashi Holly - who is seriously worried my daughter may be at risk of getting Hashimotos :(

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HashiHolly
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jimh111 profile image
jimh111

Did they check other things like anaemia or bullying?

HashiHolly profile image
HashiHolly in reply to jimh111

I asked him to check her iron levels plus both our thyroid levels as my poor girl has Hashimotos on both sides of the family tree and all he tested for was our TSH and for some reason he tested her for the Coeliac gene - which came back positive. But according to the nurse who read me the results over the phone "the doctor doesn't need to see you again at this point in time". Time for a second opinion! And thankfully - no bullying at her school. It's a bizarrely supportive Arts school - the kids are wonderful :)

NWA6 profile image
NWA6

Hey HashiHolly. When our kids get I’ll it’s sooo frustrating that we have to rely on GP’s to help us. This is when I don’t think that our NHS system works. We’re usually fobbed of with XY and Z. I really feel for you, I’m going through a similar scenario myself and I get the feeling that I’m viewed as a ‘pushy’ mum who’s looking for something where there is nothing. And we’re told to wait and see or use CAMHS (which is next to useless and severely under funded)it’s all just a sh*t show and I don’t know what the answers are 😔

There are companies who do under 18’s blood tests but the finger prick tests are a struggle. And then the Gp’s won’t do anything with the test results because the TSH is in range (my daughters FT3 was well below range and they still said wait and see)

In some respects I do understand that because it’s her first blood test and it could be a blip but in the meantime I’m here trying to mother a teenager who’s miserable, suicidal and failing A Levels after being a highly successful high schooler.

Are you on medication?

HashiHolly profile image
HashiHolly in reply to NWA6

Hope you find the right support for you and your daughter. I can only imagine the struggles you're facing. I'm not on any medication because I keep being told that everything is within the ranges but when I come on this site everything inmdicates that we feel better if we're in the upper half of the ranges whereas my results are always towards the bottom of the ranges. Best wishes with your healing journey and thanks for commenting - Holly

Hay2016 profile image
Hay2016

Hi definitely get ferritin/ full blood count tested. My daughter was 16 and tired, breathless etc. Her tsh was over 3 but ferritin was 8. That’s now been brought back up and her tsh dropped to more in line with normal but I will be testing it again in a few months.

HashiHolly profile image
HashiHolly in reply to Hay2016

Thank you for the advice - I'm going to find a doctor who will check things out properly. What a waste of time and money - not to mention the stress of her first blood test - grrr! :)

jimh111 profile image
jimh111

Anaemia is a small possibility as it could be that she was marginal and then the blood loss with periods made it worse. I'm not sure it would have such a great effect, I don't know much about this but it seems a possibility that is easily discounted. Also, they should check her female hormone levels to see why her periods have stopped.

silverfox7 profile image
silverfox7

Being undermedicated has most probably stopped her periods. It has mine years ago and the doctor hadn't a clue!

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