Firstly thanks grey dragon for advising spray vitamin D its banished the sleeping sickness which is great!
Endo suggested that I could have Parkinson's. So I joined the sister site and frightened myself to death.
Having put all my symptoms individually into Google plus each ailment they all came back as being valid for both. Except missing eyebrows isn't connected with Parkinson's. Or perhaps I'm suffering from both....
Has anybody been misdiagnosed for either of these? It appears to me that both are metabolic and very similar in the early stages.
I hope I've only got one of them and I know which that is!
Darty 3
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Darty3
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Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
Is this how you did the test?
If so....
GP only looking at TSH - it's often very unreliable on Levothyroxine
Total T4 very low - suggests you need dose increase
FT4 near top of range
FT3 likely too low
Vitamin D was too low - sounds like you have been improving this
I would say you need trial of T3
Alternatively a dose increase in Levothyroxine
Dr Toft, past president of the British Thyroid Association and leading endocrinologist, states in Pulse Magazine,
"The appropriate dose of levothyroxine is that which restores euthyroidism and serum TSH to the lower part of the reference range - 0.2-0.5mU/l.
In this case, free thyroxine is likely to be in the upper part of its reference range or even slightly elevated – 18-22pmol/l.
Most patients will feel well in that circumstance. But some need a higher dose of levothyroxine to suppress serum TSH and then the serum-free T4 concentration will be elevated at around 24-28pmol/l.
This 'exogenous subclinical hyperthyroidism' is not dangerous as long as serum T3 is unequivocally normal – that is, serum total around T3 1.7nmol/l (reference range 1.0-2.2nmol/l)."
You can obtain a copy of the articles from Thyroid UK email print it and highlight question 6 to show your doctor please email Dionne at
tukadmin@thyroiduk.org
Professor Toft recent article saying, T3 may be necessary for many otherwise we need high FT4 and suppressed TSH in order to have high enough FT3
New NHS England Liothyronine guidelines November 2018 clearly state on pages 8 & 12 that TSH should be between 0.4-1.5 when treated with just Levothyroxine
Note that it says test should be in morning BEFORE taking Levo thyroxine
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw).
If/when also on T3, make sure to take last dose 8-12 hours prior to test, even if this means adjusting time or splitting of dose day before test
If FT3 and FT4 are within range then we are not over treated
So sorry to SlowDragon and GreyGoose for hybridising you both, my short term memory is shot! Sorry also for the delay in responding but we suffer from remote rural broadband which means it is comeday goday!
I am still on 100mg levo and did the blood test as instructed. Thanks also for the reading to give me confidence to go back to the doctor.
I also realize that the itching and blepharitis are also hypothyroid symptoms. And that altered gait can be too so fingers crossed that it is not Parkinson's but it was diagnosed by a good thyroid Endo
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It's SlowDragon you want, not greygoose. Or even slowgoose… 
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