My typing has got progressively worse, especially recently. If I try to type without correction it comes out like this, and that's on a good day! If it ry to tjype without correction it5 comes out like this, and that's on a gooddday! If tired it's much worse. It seems to be caused by either missing keys or pressing two together.
Strangely, having a hot flush (had them for years and don't seem directly connected) sometimes makes me feel better. Or feeling better brings on a flush - not sure which.
I get episodes - especially when tired - of rather sudden inability to concentrate and coordinate other actions too, sometimes having slight breathlessness as well. It's like my brain has a problem initiating or controlling movements properly. For example, I visited a friend's church over Easter and tried to help her arrange leaflets for order of service etc that she had to give out. There were only three pieces of paper of different sizes and colours, that had to be laid on top of each other. Deciding which one to pick up was hard enough, picking it up and placing it was even harder - agonisingly slow and with tremendous effort. When OK I could have done it in a quarter of the time.
After about an hour I began to feel better again, and even helped to hoover after the service!
Another time I felt so uncoordinated that to walk across the room without wobbling or even falling seemed impossible.
I know that a lot of this could be due to being hypothyroid, but is there perhaps something else going on as well? I don't seem to have any hand tremor or any other hyper symptoms, though my TSH is "Too low" and I had to decrease Levo in January and another decrease threatened if it doesn't come up sufficiently by the next test in June.
If you use a separate keyboard of the type used for desktop PCs, maybe you need a new keyboard...
Yes, your typing may be to blame - but in my experience the space bar is always one of the first to go, and doubled characters could also be caused by a worn-out and/or dirty keyboard.
You could search on Youtube for "How to clean a keyboard". You never know, it might help.
I'm using a large print keyboard because of slight cataracts (spilled coffee on the previous one!) bought a couple of months ago. It's definitely a coordination problem, not keyboard. The problem began several years ago, when I was using a normal keyboard, and has got gradually worse. But it seems to have got quite a lot worse these last 2-3 weeks.
Your Vitamin D3 is a bit low and is recommended to be 100 - 150. I don't know much about active B12, but would think it should be a bit higher. A serum B12 is recommended to be above 500, but most seem to think it should be about 1,000 if you are hypothyroid. Good that you are supplementing B12 and B-Complex. Your folate looks good.
‘Active’ vit B12 is the metabolically active portion of the total serum vit B12. Three carrier proteins are involved in the transport of Vitamin B12 around the body – Intrinsic Factor (IF), transcobalamin (TC) and haptocorrin (HC).When transcobalamin and haptocorrin bind Vitamin B12 the resulting complexes are known as holotranscobalamin (HoloTC) and holohaptocorrin (HoloHC).
Holotranscobalamin represents only 10-30% of the Vitamin B12 circulating in the blood but is the ONLY form of Vitamin B12 that is taken up and used by cells of the body, hence it’s other name, Active B12.
Thank you, that's very interesting. I'm taking 100mcg of B12 plus a B complex containing only 25 mcg. Would it be safe to increase that to 200 with the same amount of the complex?
I meant to add that apparently Active-B12 has a shorter circulating half-life compared to holohaptocorrin, so when overall levels start to fall, the effect of losing the Active B12 portion is, in a sense, disproportionate to the overall depletion of serum B12.
Sorry Hidden I'm no good with dosing levels, hopefully SeasideSusie will add her greater knowledge on that.
Regarding your overall symptoms, I had / have very similar, and in my case was diagnosed with essential tremor (which, again in my case, is so much more than just shaky hands, and I had to have brain MRI to rule out other conditions). Worth asking the question, if only to rule it out.
Amazing how it all works so intricately and precisely to get what's needed safely to where it's needed! Wonder if that means you shouldn't take B12 with acid food or drink?
Your Active B12 level is pretty good, it's when it's below 70 that testing for B12 deficiency is suggested.
What are the B12 and B Complex supplements you are currently using? It might be worth getting a B Complex containing 400mcg methylcobalamin and that should boost your B12 level, I have found that it maintains my good level of B12.
I have a large bottle (250 tablets) of Holland & Barrett, bought before I knew it wasn't the best for quality and price. It only has 25mcg B12. Recently also ordered some Health Plus B12 (100mcg) through Dolphin Fitness. That was a special offer of 3 bottles of 90 tablets each!
That is cyanocobalamin and the recommended form is methylcobalamin which is the active form. Cyanocobalamin has to be converted into methylcobalamin and not everyone can do that. Also, for best absorption, sublingual lozenges are best.
A good B Complex will contain a balance of B1 (thiamin), B2 (riboflavin), B3 (niacin), B5 (pantothenic acid), B6 (pyridoxine), B7 (biotin), B9 (folate), B12 (methylcobalamin). Your H&B one contains B1, 2, 3 and 12 if it is this one hollandandbarrett.com/shop/...
Neither of your supplements are the best quality and the amounts of ingredients are quite small. I have no idea how effective they will be.
Thanks. Hopefully I will know better next time. Will have to copy your post and file it for when needed. Just counted them - I have 99 tablets left of the complex. Less than 4 months to go!
Or Jarrow B-right is popular choice, but is large capsule
If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before any blood tests, as biotin can falsely affect test results
Thanks. I don't have any swallowing problems at the moment and find capsules easier than tablets, so may try the Jarrow. I have Folate on prescription, but the last test they were almost at the top of range (Ferritin was over as I was taking iron supplements as well), so have stopped taking them.
What annoys me is that here I am saving the NHS money by not renewing prescriptions I don't need, (or useless ones like 800iu of D3) and still have to get private blood tests as well!
Yes, should have said folic acid. Either way the folate level was near top of range
Hi have you had a holiday away from computers and found you improved in focus only for it to decline again on return to exposure , try having a break or changing screen filter ,try a few days with sunglasses on .it's how I manage unfortunately.
Tam x
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I certainly feel better if I have the energy to do something else for a change. Just about to try some gardening!
But that doesn't solve the inability to coordinate when having one of those episodes. I am almost certain they are hypothyroid symptoms, (similar to what happened when I first became really ill, though not nearly as bad) but convincing the medics of that when my TSH is so low is another matter
Fresh air fixes a lot and is poorly covered with hashimotos got to shake out the excess anxiety that causes further symptoms. U have episodes too ? Have you read my posts ? Nice to meet you.
Tam x
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Episodes of anxiety, you mean? Not really, although it's rather a horrible feeling when brain and body refuse to work properly.
I've read some of your posts, but can't remember any details now, sorry! Put it down to age and hypothyroid brain. Will have to look you up. Send me a pm sometime if you want to chat.
But now I'm going to do some gardening. Rain forecast tomorrow! x
Yes I ment the loss of function you describe could be due to your environmental changes and your own bodies sensitivity to this , keep a mood and fatigue diary it's easier to notice what you should and shouldn't be around due to our own bodies sensitivities . A food diary cutting out processed foods was a massive learning curve and I'm only trying to help you from what you have written here . I don't know your full facts to work with but if you Listen carefully on this site you can and will save yourself .
Tam x
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I do make a note of when I'm not feeling too brilliant and any relevant things about the day, what I've been doing etc.
Not sure what you mean about environment. It's been raining today but we've had some sunshine as well and a blackbird is singing his heart out in the back. Which usually makes everyone feel more cheerful unless you work nights and have to go to bed!
Yesterday was sunny but I feel better today than yesterday! The main difference seems to be I spent less time on the computer today, so probably that's got something to do with it too.
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That's fab to hear that you were able to settle enough to actually hear the birds , I sit in the conseratory all the time doors open apart from 5-8pm listening to the birds is amazing , natural and that's what I'm sharing with you , keep up with the blog it will be interesting. I'm depending on you lol .
I second Slow Dragon and Seaside Susie's advice on getting some better B vitamins. Tablets that companies like Igennus make have made a huge difference to me as they not only have the 'right' sort if B12, but also my favourite forms of folate and B6 ( as p5p). In fact, I don't really get on with pyridoxine as it gives me similar issues with 'clunky' feeling extremities (numb fingers and toes) ... It may be something to do with the theory that many of us with Hashi's and some other autoimmune illnesses have an underlying MTHFR gene defect which makes it harder for us to convert the synthetic vitamins into their active forms.
I suspect many of us have some degree of MTFHR gene variation
I find Igennus were significant improvement on others I have tried
Oh never heard of that or looked into genetics, don't think I will but looks like you wrote *motherf****r* it sounds it , will have a mooch now and thanks see you learn something new every day I hope .
Tam xx( we are all over 18 I apologise for bad language if offended it was just a joke amongst friends ) x
I worked for several years in a care home for folk with mental illnesses. Most were nice people. One lovely man with schizophrenia used to say "Hello you old B..." But to him it was just a friendly greeting so no point taking offence. H
To be honest I'm not keen on M...F... but will let you off this time
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