At Last: Had an endo appointment yesterday and he... - Thyroid UK

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At Last

purple64 profile image
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Had an endo appointment yesterday and he admitted that research into Graves' disease is so under funded that there is very little that is known about it. Pleased that his outlook is to continue with medication rather than drastic measures. Plus I actually saw the same dr as last time so that was a bonus. So outcome of appointment keep taking the pills and see you in 6 months 😂

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purple64
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8 Replies
Greekchick profile image
Greekchick

Hi there! What are you taking? How is it working for you?

purple64 profile image
purple64 in reply to Greekchick

Hi I take 5 mg of Carbimazole at the moment. Apparently levels are ok but antibodies are still high but he thinks I will go into remission eventually.

Greekchick profile image
Greekchick in reply to purple64

I’m so glad to hear that the carbimazole is working for you. I was in remission a long time without Tapazole - and then on Tapazole for 2 years - and then became resistant.

Wishing you remission and sending good thoughts!

purple64 profile image
purple64 in reply to Greekchick

Out of curiosity do you get shooting pains in hands and feet🤔

Greekchick profile image
Greekchick in reply to purple64

Hi there,

No, I did not - when do these happen? Is it when you take meds or other times?

purple64 profile image
purple64 in reply to Greekchick

No it's not related to meds it's random.

Greekchick profile image
Greekchick in reply to purple64

🤔 not sure then. Wish I could be more help. Check with doctor - sometimes that can be related to spinal issues (disk compression at a particular level of spine) - but I am not a doctor - so it’s jut based on my own back issues. Worth asking about though. All the best.

purple64 profile image
purple64 in reply to Greekchick

Thank you. There are so many bizarre symptoms but will get it checked out next time I see my doctor.

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