New T3 Private Script

[cazza1001]

Just got my new private 6 month script for T3 - paid a fortune last time … over £600 -

any safe and cheaper options yet ? And is it still not available on NHS ?

I have a endo who first prescribed it and then gave permission for my GP to issue it privately !!

thanks

[Hay2016]

What’s he written on the script? There are German pharmacies you can buy from and post the script to them but only if 50 or 100 of 20mcg on script. They are on the treatment pages of thyroid uk. There are also some uk Pharmacies but no idea on costs.

[McPammy]

Thybon 200. From Germany. €30.

[SlowDragon Administrator]

Prescription needs to read

Liothyronine 20mcg x 100 tablets

(Or multiples of 100)

This enable prescription to be used to order Thybon Henning 20mcg tablets from Germany

31euro plus 8euro p&p

thyroiduk.org.uk/tuk/treatm...

However if an NHS endocrinologist says you have clinical need for T3 you should be prescribed by NHS

Initial 3-6 months via hospital endocrinologist. Assuming this goes well, then cost and continuing care is transferred to GP

BTA guidelines

british-thyroid-association...

New NHS England Liothyronine guidelines November 2018

Note that it says test should be in morning BEFORE taking Levothyroxine

Also to test vitamin D, folate, B12 and ferritin

sps.nhs.uk/wp-content/uploa...

Dossier presented to Government November 2018

drive.google.com/file/d/1c2...

healthunlocked.com/thyroidu...

Liothyronine gender inequality

england.nhs.uk/wp-content/u...

Media coverage

thyroidtrust.org/media-cove...

medscape.com/viewarticle/90...

thetimes.co.uk/article/mill...

Recent debates in parliament

theyworkforyou.com/search/?...

Which CCG area are you in?

You can check prescribing rates in your CCG area here

openprescribing.net/analyse/

[cazza1001 in reply to SlowDragon]

wow - thanks so much SlowDragon … I live in Brighton - east sussex . So does my GP have to follow the RMOC guidance do you think - I'm a tad confused !

My endo is an NHS endo but I saw him privately over a year 5 times where he tried me on just levo and things only improved when he introduced 25mcg of T3 ( cytomel).

[SlowDragon Administrator in reply to cazza1001]

Brighton CCG currently has a complete ban on any NHS T3

bsuh.nhs.uk/wp-content/uplo...

theyworkforyou.com/wrans/?i...

Currently being challenged as against national guidelines

btf-thyroid.org/images/docu...

Contact Improve Thyroid Treatment campaign on Facebook, they may know more

Or LouiseRoberts might know - at Thyroid UK head office

Write to your MP too

Once this ban is overturned you need to see your endocrinologist via NHS referral, for transfer to NHS ongoing card and prescribing.

[cazza1001 in reply to SlowDragon]

thanks you so much

[cazza1001 in reply to SlowDragon]

as an aside - do we know WHY it is so expensive here … I'm guessing that the German pharmacy are not subsidising us so why cant we buy Thybon or Cytomel cheaper here on private prescription - I find it so baffling !!!

[SlowDragon Administrator in reply to cazza1001]

Exploitation of loophole in the law.

There was no mechanism to control price of single license generic medication.

The assumption was competition between brands would keep prices down

Single license generic medications have o competitors

Loophole now closed, but price only dropped slightly. Down from £258 to £204 per pack of 28

Competition & marketing authority are investigating

C&MA successfully took another case to court, but this was overturned on appeal

pharmatimes.com/news/pfizer...

gov.uk/government/news/cma-...

C&MA given permission to appeal against the appeal in Dec 2018.

Until this case is resolved they can't proceed with other cases

Recent media coverage on T3

mjauk.org/wp-content/upload...

T3 dossier presented to Parliament

drive.google.com/file/d/1c2...

Multiple debates in parliament.

theyworkforyou.com/search/?...

[SlowDragon Administrator in reply to cazza1001]

Thousands on here do get Thybon Henning on private prescription direct from Germany because NHS has stopped many patients getting T3

Obviously many can't afford to get private consultation and private prescription.

[cazza1001 in reply to SlowDragon]

my prescription is from my GP not so sure if its classified as private - shes just changed script to 20mcg to avoid any problems thou - thanks for all your help and info x

[helvella Administrator Thyroid UK in reply to cazza1001]

Is it on an FP10 prescription form? That is the standard NHS green prescription - though there are some variations for a number of reasons (e.g. Welsh ones have GIG and NHS).

If so, it is an NHS prescription. If not, it is a private one. More or less.

[Sveistre in reply to SlowDragon]

My prescription said “Liothyronine 10mg” and that’s it, no problem buying from Bennewitz pharmacy, even though tablets come as 20mg x100 a week ago bought 2 boxes without any problem

[SlowDragon Administrator in reply to Sveistre]

Interesting

[Sveistre in reply to SlowDragon]

This was my second script, the first was written the same - no problem aswell