L-Thyroxine Henning now what ! Help: Hi Well... - Thyroid UK

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L-Thyroxine Henning now what ! Help

Nellups profile image

Hi

Well after months now of trying to get my tabs here in UK (Northern Ireland) with the help three chemists chasing up the manufacture, Endo trying and Doctor, I have hit a stone wall😔

L-Thyroxine Hennings I have been on from living in France, is not licensed here so can’t not get them ! What do I do now? Worried about changing tablets as have settled well on these, on Levo lost lots of hair, felt ill all the time , panic attacks, etc etc. I know I can get them from Germany but with Brexit lurking how will this change? Would I have rights to see a doctor in France and get a prescription and meds?

Or do you knowable people know which are the better tablets to try and change to here to make life easier?

I have no Thyroid so need to get it right, and last results showed I don’t convert well to T 3

15 Replies
RedApple profile image
RedAppleAdministrator

Nellups,

You can get L-Thyroxine Henning despite the fact the manufacturers don't have a UK license to supply the NHS. Your doctor can stipulate them on your prescription under the 'Named Patient' basis, which would allow your local pharmacy to get them for you. thyroiduk.org/tuk/treatment...

However, many doctors go into panic mode about 'unlicensed' thyroid meds and simply won't oblige, despite the fact this medicine's safety is well established in Europe :(

Nellups profile image
Nellups in reply to RedApple

Have a feeling my Endo won’t as he signed me off to the doctor saying I would be fine on Levo 😔

RedApple profile image
RedAppleAdministrator in reply to Nellups

Ah but L-Thyroxine Henning is just a German brand of levo, so your GP would still be prescribing levo as per endo's advice. Worth going to your GP with the relevant info and asking him to prescribe under named patient basis.

My Endo mentioned that but said didn’t prescribe them as hard to get amounts balanced?

RedApple profile image
RedAppleAdministrator in reply to Nellups

You are less likely to get NDT on the NHS than L-Thyroxine Henning which is a German brand of levothyroxine.

RedApple profile image
RedAppleAdministrator

RFU, this comment seems to be in the wrong place as it doesn't relate to anything written in this thread?

RedApple profile image
RedAppleAdministrator

RFU, then the comment is in the wrong place in the thread. You've been on this forum long enough to know how to use Reply buttons!

You also should not repeatedly assert that "NDT has T1 T2 T3 t4 and calcitonin". No manufacturer of desiccated thyroid preparations ever makes such a claim in any of their ingredients or documentation, so why do you?

RedApple profile image
RedAppleAdministrator

"Its always been said way back that NDT has all those"

By whom?

On this forum, we try very hard to back up such claims with bona-fide documentation. Otherwise it's just Chinese whispers and is exactly why doctors dismiss patients with a sigh and raised eyebrows, when they utter such things! If you can't back it up, don't continue to state it please.

RedApple profile image
RedAppleAdministrator

That source is absolutely NOT an acceptable proof! I could set up a website and state it, but that doesn't make it true.

helvella profile image
helvellaAdministrator in reply to RedApple

There are no numbers - such as 1 nanogram of T1 per grain.

There is no evidence any T2, T1 or calcitonin that just might exist can actually get into the bloodstream and be delivered to cells.

People have been known to confuse monoiodotyrosine (MIT) and diiodotyrosine (DIT) - both of which are certainly present in animal thyroids and would likely still be present in desiccated thyroid - with T1 and T2.

Wow thanks everyone for the info👍🏻 If I don’t get any where with my normal meds, I will ask about NDT

Seeing Endo beginning of April

RedApple profile image
RedAppleAdministrator

RFU, Please do challenge Jayney at STTM. It is not doing thyroid patients any favours whatsoever to be making this claim. In fact it is disempowering because as I said previously, when we cannot back up our information with bonafide documentation, we are opening ourselves up to ridicule from our doctors.

I'm quite sure we would all be delighted if STTM were able to give genuine proof of their claim about NDT containing T1, T2, Calcitonin etc. And that these components of NDT are actually of real benefit to thyroid patients. But I for one am not holding my breath.

helvella profile image
helvellaAdministrator in reply to RedApple

I rather agree with this:

tiredthyroid.com/blog/2012/...

Also, I have been unable to find ANY reference to "T4 T3 T2 T1" and "thyroid" from a significantly long time ago - that is, when desiccated thyroid (as in Thyroid BP) was still used in the UK.

RedApple profile image
RedAppleAdministrator in reply to helvella

Well if you helvella , our resident expert research/info finder cannot find anything, then I think it's 99% certain it doesn't exist! :D

helvella profile image
helvellaAdministrator

3,3′-Diiodothyronine Production, a Major Pathway of Peripheral Iodothyronine Metabolism in Man

From the close agreement between the mean values for 3,3′-T2 PR in the euthyroid and HT4 group it is concluded that most, if not all of the 3,3′-T2 produced in normal humans is derived by extrathyroidal conversion from T3 and rT3.

ncbi.nlm.nih.gov/pmc/articl...

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