Hashimoto.voice project looking for participants

[lynmynott]

A little reminder of a project that needs participants:

You may remember the Hashimoto Heart project last year which was successful in helping Hashimoto's patients. They have asked us to tell you about their very interesting new project:

"Hashimoto.Help, located a Brightlands Health Campus, The Netherlands, now wants to test the idea that autoimmune disease, in particular Hashimoto's thyroiditis, can be early detected via voice.

The human voice is intricately linked with the endocrine system of the people. The science provides considerable evidence on the effect of the hormones on voice. Thyroid hormone receptors have been identified in the laryngeal tissue and the thyroid hormone plays an important role in the development of the larynx. Patients with autoimmune disease have increased likelihood of voice symptoms when compared with a control population with non-autoimmune disease.

The aim of the Hashimoto.Voice project is threefold:

•Increase awareness of Hashimoto's disease by informing high risk groups online (prevalence, risk groups, symptoms, diagnosis, complications and treatment).

•Offer an easy online diagnosis tool for self-detection of thyroid disorder, in order to reduce misdiagnosis and late diagnosis.

•Shorten the time-frame that people suffer from symptoms and/or think they could be suffering from thyroid disorder until they get confirmed diagnosis, by auto generated test reports with information for the health professionals

For our study we need samples of native English speaking individuals.

What do you need to do to support Hashimoto.Voice project?

Share just 10-15 minutes of your time which can make a difference.

Go to hashimoto.help/hashimotos-v... and follow the steps:

• read loud a small piece of text which is provided online and record;

• indicate if you are: 1) a healthy individual (no autoimmune disease, no thyroid disease), 2) have some non-specific symptoms (e.g. subclinical Hashimoto’s), or 3) diagnosed with Hashimoto thyroiditis;

• upload the audio file online as a contribution to the project or send via email to: [e-mail]

If you send us the sample by email, along with your bank details, as a thank you, 15 euros will be transferred to your PayPal or bank account.

If you upload your audio sample online, we’ll not be able to identify you in order to transfer the 15 euros so we will need your email address and bank details in order to make a transfer.

You may decide to make the audio files yourself and send them to us. If you prefer, you can donate the the money to Thyroid UK for the wonderful it is doing.

For those who want to send the audio file via email, read the following text aloud and record. Send your audio file to [e-mail]

Who’s more important?

A very long time ago, all the parts of the body decided to get together and have a little meeting. They wanted to decide once and for all, which body part was more important.

The eyes were the first to speak. They said, “We see everything. We know what’s coming. Without us, you’d be wandering through life without seeing the beauty all around.

The ears jumped in and said, “That’s crazy, we’re so much more important than you. Without us, you’d never be able to hear music or the sound of a baby crying.

Then the mouth started to speak, and it said, “You’re both wrong. Everything comes through my door. Without me, you’d never be able to eat or drink.

The nose was quiet up to this point, listening to what the other body parts had to say. Finally it jumped in and said, “ Have you ever smelled a rose in full bloom? Or the incredible scent of freshly baked cookies? Clearly, I’m way more important than all of you.

The body parts went on and on like this all day and night until they were absolutely exhausted and had nothing left to say.

Then finally they heard a voice that was both soft like a whisper, and loud like thunder. It was the heart speaking. It said, “My dear brothers and sisters, we are all family, all equal, all important. The body parts knew that the heart was telling the truth, they were filled with joy and peace, and they never argued again.

Please, indicate in your email one of the following:

1) I am a healthy individual (no autoimmune disease, no thyroid disease)

2) I am suffering with some non-specific symptoms but haven’t been diagnosed with Hashimoto’s (e.g. subclinical Hashimoto’s)

3) I am diagnosed with Hashimoto thyroiditis

Thank you for your support!"

[NWA6]

This was very interesting. I just sent them my audio. My voice is one of the first things to go when I’m symptomic. The croakiness is very annoying!!

[Katepots]

Thanks Lyn I shall do this right now. My voice is more gravelly with my Hashimoto’s so this is all very interesting.

[Nefatiti40]

Hi there

I took 75 mcg of thyroxine for about 20 years and in recent years did not feel very good on it and needed to take adrenal supplements as well for about 10 years after a period of intense stress affected my adrenals. I am now taking natural dessicated thyroid from Thailand and am feeling better and more energetic on it. We are all different though and so I can't recommend what is good for you and many people feel ok on thyroxine.

[Whatamess2]

Thank you for inviting me to be part of this research. I have just sent my voice recording by email.

I have had over the years a lot of problems with voice issues such as losing my voice. In fact I have just had a particularly bad patch where I have lost my voice 4 times over 3 months. My doctor is sending me to ENT to have a look at my voice box to see if there are any problems.

Looking forward to the results of the reasearch.

[Noelnoel]

Just found your year old post. Is the Hashimoto’s project still running?

[lynmynott Partner Thyroid UK in reply to Noelnoel]

No, I'm afraid it is finished.

[Noelnoel in reply to lynmynott]

Thank you