Been taking Thybon Henning from German for about 20 days in 3x 5mg doses starting at 7.30am Sometimes take sublingually And they taste chalky. Is that as it should be?
Not sure if I feel better! Sounds like not as bad as many posting here but is there anything obvious that I should notice? Please!
Kandahar
T3 is meant to be swallowed with a glass of water, not taken sublingually.
You have started on too high a dose.
Have you reduced your Levothyroxine?
What are your latest thyroid test results (including reference ranges) that made you think you need T3?
Dear SeasideSusie
Thanks for bit about not taking t3 sublingually. Thought I read to do so on this site.
Dose was suggested by endo after referral by GP because finally listened to me complaining. Settled on Levo 125 after about eight years and still not feeling right – two stone gained over 12 years with husband becoming increasingly mentally and physically disabled. Now 74and until then always weighed around 7stone 10 and 8stone since teens. 5.3 high and 36, 22, 37 so not skinny! Hysterectomy in 1979 by kept ovaries.
Often v lethargic, no get up and go, terrible brain fog and loss of ability to speak coherently (!) and find words (great for a journalist/editor), eyebrow loss, brittle nails, lump and tickling throat (told acid reflux when never experience indigestion etc). In 90s told had alkaline stomach and given form of hydrochloric acid to make body absorb nutrients to feed nervous system. Was suffering from chemical allergies mostly and allergist told me was very low on magnesium and fats and gave intravenous and injections for B12. Many symptoms similar to those now – bad brain fog, what allergist called facial migraines and lack of energy.
Endo picked up on throat, lack of coherence, lethargy etc. Seems like one of the good ones! He went by my feelings and not sure he looked at bloods. Those in October showed TSH 2.45mU/L and said 'when stable on replacement should be detectable, not elevated and ideally within the lower half of normal reference range. Older people ideally within lower half of normal reference range (0.27 -4.2) They didn't test t4 or 3 or anything else helpful except ferritin 226ug/L, folate 9.3, B12 457ng/L. Cholesterols was only given at 7.3mmol/L with no breakdown. I only took Ezetimibe during previous 5 months, leaving off Rosuvastatin. They want me back on it! But, listening to grey goose, I've stopped both.
Have asked endo by email about blood tests and when and when or if try raising t3 or going on to NDT. Not replied yet but hoping to ask similar of GP today and if will do the tests everyone seems to suggest are needed. Fingers crossed.
Started to write all background, because have been unwell of and on for half my life and wonder how much is connected because so many symptoms have been going on since 1976! But not completed yet. Seem to have given quite al lot here. Sorry!
Allhelp gratefully received.
luv K
You really need to test TSH, FT4 and FT3 all at the same time. As long as TSH is down to about 1, then the FT4 and FT3 can tell you whether you need T3 (if conversion is poor), whether you need to lower dose of Levo (if FT4 is close to top of range), and then you start by adding in 5mcg (or 6.25 if self sourced T3). Increasing T3 should be done gradually, 5mcg at a time, keeping an eye on test results, FT3 is always needed when taking T3.
Absolutely essential to test thyroid antibodies and vitamin levels too, this should have been done BEFORE starting on T3
Bloods should be retested 6-8 weeks after change in dose
For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12
Low vitamin levels are extremely common, especially if Thyroid antibodies are raised
Recommended on here that all thyroid blood tests should ideally be done as early as possible in morning and fasting. Last Levothyroxine dose should be 24 hours prior to test, (taking delayed dose immediately after blood draw). This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)
If/when also on T3, make sure to take last dose 8-12 hours prior to test
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or all vitamins
thyroiduk.org.uk/tuk/testin...
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random
NHS rarely tests FT3, so you may have to always get private testing
As SeasideSusie says, normally recommended to start on just 2 x 5mcg , but best stick on 3x 5mcg now
Come back with new post once you get results and ranges
GP said only tests 10 weeks after change of dose. Also said today that even if lab is ask for ft3 test it’s often not done! Unbelievable that a lab could get away with that. GP also said that because my cholesterol is very high, he doesn’t think balancing the thyroid will make it all reduce. What does anyone know about this, please ?
High cholesterol is linked to being hypothyroid
Getting thyroid levels optimal is first step
Starting T3 tomorrow..any hints or tips? 
Bloods in the morning
Is my ferritin too low?
Switching from Morning to Night Advice
