Latest results

[Anniewoz1]

Good evening everyone

I’m now taking 2.5 grains of NDT.

The endo I’ve been seeing thinks I take 150 levo.

(I’m trying to decide how best to tell him the truth, I’m beginning to wish I’d stayed on levo as the guilt is causing more issues !)

Anyhow, latest results are :

January 2019

Free T4 12. 12-22

TSH 0.2. 0.27 - 4.2

He says my pulse is 84 pm

BP 110/70

She was clinically euthyroid

He asking for assay interference tests in 4 weeks.

Can anyone advise me ?

I’ve really messed up and no idea where to go from here.

[MaisieGray]

Why would you feel guilty, you've done nothing wrong. However, you have got yourself into a predicament whereby you've achieved test results that may be those typical of someone taking exogenous T3 in whatever form (can't say for sure as there is no FT3 result, but you've got the below range TSH and the very low/almost out of range FT4 typical presentation). Keeping shtum about self-medicating is only really possible if we stay under the radar and avoid NHS blood tests like the plague lol! Once we stick our head above the parapet, our infedelity becomes clear. 😉 So the results look, not unsurprisingly, odd, given you're supposed to be on mono-T4 therapy; and hence why he's retesting in 4 weeks to see if something was interfering with the test results this time (for instance, supplementing with biotin can skew some results depending on the assay method). So really, unless you want to withdraw from Endo management of your thyroid health, you've got to come clean with him.

[Anniewoz1 in reply to MaisieGray]

Thanks for your reply

You’ve hit the nail on the head .....

I need to come clean , or walk away

I was talked into seeing an endo and now wish I hadn’t given in to pressure.

It still amazes me, through all the tests and scans - not once has he tested or mentioned t3 !

Decisions to be made !

[Hidden in reply to Anniewoz1]

It is so difficult isn't it. We are afraid of offending medical people in case they won't give us what they need, yet desperate to begin to feel well again. It's as if "T3" is a naughty word, or the name of a banned substance! I got a similar reaction when I asked about T3 testing. I have already apparently caused offence (to an otherwise supportive member of the medical team by asking about possibility of having poor T4/T3 conversion or if I may have had a "Hyper swing", where dying thyroid cells release hormones into the bloodstream.

Although, unlike you, my T4 was near the top of the range and TSH down to 0.01. That was just on Levo, so I suppose there was a possibility of being overmedicated, except that I still felt hypo.

[Anniewoz1 in reply to Hidden]

Jnetti

It’s a total nightmare, I feel positively guilty !

Which is bonkers as all I’m trying to do is feel better !

[Hidden in reply to Anniewoz1]

Me too. You might find something I just posted helpful (called "I'm Worried") x

[jgelliss in reply to Anniewoz1]

I would also suggest to come clean with your Dr . Just explain that you feel so much better with the way your dosing . The Dr might just support you or he will show you the way to the door . Your well -being is what counts . Go with a good attitude and just stand your ground .

[Angel_of_the_North]

Why do you even need to see the endo if you are buying your own meds? But you do need a free T3 test. Your results, as far as they go, seem usual for someone on NDT.