Stupid question

[paul1978]

Hi guys

Sorry but I don’t have the answer so I thought I would ask

Can a person have hashimoto if they have had there thyroid completely removed?

Thanks

[greygoose]

As far as I know, no, they can't. The Hashi's disappears with the thyroid.

[LouiseM46]

Maybe other auto immune conditions are present also,but the effect and damage to thyroid will be gone

[shaws Administrator]

If you've no thyroid gland at all, I hope you are - at the very least - on a combination dose of T4/T3 and if not improving on T3 alone.

There's no information of your thyroid journey on your Profile - only your name.

[paul1978 in reply to shaws]

Thanks I will update my profile.

I am only on Levo

Never had full bloods done. Only TSH and T4

TSH 4.3 and T4 was 19

Just put my dose up to 200 so need to wait will feb for my next bloods.

I am so hypo at the mo and very unwell. Mainly with right flank pain

Lost 2 stone in 6 weeks

Can’t sleep

Constipated

Cold

Chills

Numb hands

Ect

[SeasideSusie Remembering in reply to paul1978]

Never had full bloods done. Only TSH and T4

I am so hypo at the mo and very unwell. Mainly with right flank pain

Why not get the full testing done with a private test as suggested a few times in previous posts. That way you'll have a full picture.

Blue Horizon Thyroid Plus Eleven - but you've now missed the 20% discount they were offering up to the end of December

bluehorizonmedicals.co.uk/t...

Medichecks Thyroid Check UltraVit - code THYROIDUK gives 10% discount if it's not on special offer

medichecks.com/thyroid-func...

[paul1978 in reply to SeasideSusie]

Thank you. They put my meds up in dec to 200 and I have been told to wait 6 weeks

Should I just get them done early?

[SeasideSusie Remembering in reply to paul1978]

No, you need to wait 6 weeks after a dose change before retesting. It's just that if you were going to do the test anyway, you could have saved money on Blue Horizon test.

[paul1978 in reply to SeasideSusie]

Should I just do it to see if T4 is converting to T3 ? Just worried it’s not converting with me having bowel issues

[SeasideSusie Remembering in reply to paul1978]

I would wait. It takes 6 weeks for the full effects of any dose change. The results you would get from doing the test now will most likely be different from the results if you do the test at the suggested time.

All covered in replies in this post

healthunlocked.com/thyroidu...

[shaws Administrator]

The reason you feel awful is that you are on too low a dose because your TSH is too high and the aim is a TSH of 1 or lower. Most GPs think that if our TSH reaches 'in range' - even the top of the range - that we're on sufficient dose. Not if it is above 1.

One of our deceased Advisers only took one blood test for the initital diagnosis and thereafter it was all about the patient's clinical symptoms. He'd never prescribe levothyroxine! Only NDT or T3 for his thyroid resistant patients.

He either prescribed NDT (natural dessicated thyroid hormones that contain all of the hormones a healthy gland would produce and it used to be prescribed by the NHS as that was the original replacement before levo was brought in and has overtaken options. Or T3 - This Adviser said that it was through corruption (i.e. doctors and endos paid to prescribe levothyroxine along with the blood tests) that levo became the No.1 prescription for hypothyroidism.

Levothyroxine is T4 alone. It is an inactive hormone and has to convert to T3 and it is T3 that is needed in our millions of T3 receptor cells in order for our body to function and brain and heart need the most.

The problem in UK is that most doctors are not so well trained nowadays and consider a TSH 'somewhere' in the range to be adequate. They also know no clinical symptoms but will give prescriptions for the 'symptom' rather than an increase in thyroid hormones. So I'd tick off the ones you have as the aim is none at all.

thyroiduk.org.uk/tuk/about_...

Blood tests only tell us the numbers but doesn't tell us the symptoms. It is the symptoms that should be the priority and the relief thereof. Doctors have no clue about symptoms.

[MaisieGray]

"Total thyroidectomy eliminates anti-thyroid peroxidase antibodies and improves health-related quality of life in patients with Hashimoto’s disease" - The findings come from an observational study by Ivar Guldvog, MD, Telemark Hospital Trust, Norway, of 97 patients followed for 7 years, and from a 150-patient randomised, prospective trial, in which 68 patients had reached a follow-up of 18 months. 97 patients were given a total thyroidectomy, and after 36 months, the anti-thyroidperoxidase (TPO) levels returned to normal levels in a majority of the patients and symptoms improved in 75% of the patients. These patients remained symptom-free after 7 years. Over that time, antibody levels continued to fall and symptoms continued to improve. In the other 25%, reduction in anti-TPO levels was delayed.

In February 2012, the study began with 1 group randomised to have their thyroid completely removed, and a control group randomised to receive optimal medical treatment. Participants in the trial had to have anti-TPO levels of more than 1,000 IU/litre; had to be in a state of hypothyroidism requiring thyroxin substitution; and had to have other symptom complaints, such as extreme fatigue or muscle pain. After just 6 months, anti-TPO levels in the thyroidectomy group plummeted from about 2,500 IU per/litre to less than 500, and continued declining through the latest reported follow-up at 18 months. Those in the control group, which started with a higher anti-TPO level of about 3,200 IU/litre, saw a decline far less dramatic, and anti-TPO remained near 2,500 after 18 months. On SF36 health-related quality of life parameters such as physical function, social function, and vitality, those in the thyroidectomy group improved across the board, almost reaching the level seen in the general Norwegian population, while no improvement was seen in the control group. Chronic fatigue showed significant improvement from baseline to 18-month follow-up in the thyroidectomy group (P < .001), while changes in the control group were not significant.