Palpatations

[Scottccs]

Palpatations- Hi Guys been getting palpatations and feeling too warm whilst trying to sleep and not getting much sleep due to my heart seems to be racing. I think something has peaked with my thyroid. Anybody had something similar and any advice or help please.

[Marz]

Did you follow through on the advice given to you 5 months ago by SlowDragon ? Sometimes low Iron can cause palpitations. Do you have any results to share ? - difficult to suggest anything without more information ...

Adrenals ? Do you have Hashimotos ?

[Scottccs in reply to Marz]

Yeh sorry I have underactive thyroid and I take 125 mg levothyroxine . I have not had any further tests done other than the standard nhs bloods

[Marz in reply to Scottccs]

healthunlocked.com/thyroidu...

This is your previous post in the above link - which I have read. Yes I know you have an under-active thyroid. NHS blood tests can involve the tests mentioned in your earlier post - do you have copies of results with ranges of the NHS tests you have had done ?

[SlowDragon Administrator]

Email Dionne at Thyroid Uk after Jan 3rd for list of recommended thyroid specialists.

[e-mail]

Meanwhile organise getting FULL Thyroid and vitamin testing. Either can try through GP, but they often can't or won't order FT3 or both TPO and TG thyroid antibodies

Absolutely essential to test vitamins, FT3 and thyroid antibodies

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

All thyroid blood tests should ideally be done as early as possible in morning and fasting. Do not take Levothyroxine dose in the 24 hours prior to test, delay and take immediately after blood draw. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

Over 90,000 members on here, vast majority also have to get private testing to make progress

NHS only tests TSH or TSH and FT4. This is completely inadequate

low vitamins prevent thyroid hormones working well, tend to cause low TSH and high FT4, even if patient remains hypo. Extremely common to need to supplement some or all of these regularly to maintain adequate levels. Important to test vitamins FIRST before supplementing

See if GP will test

[jgelliss]

I'm so sorry your having to deal with palpitations . Palpitations can be both hypo/hyper symptoms . Your T4 (Levo) may have fillers that might cause you to experience palpitations as well . Switching brands can make a huge difference . Tracking your lab results with FT3 FT4 can be very telling and very helpful . Low iron/ ferritin can be a culprit for palpitations .

Low T3 is can cause palpitations too . The heart has T3 receptor sights as does muscles and heart muscles are not any different .

Meanwhile you might want to take magnesium , fish oil they help with palpitations . You might also want to do Adrenal/Cortisol via saliva testing . DHEA-S is via BW.

Wishing you fast and satisfactory resolutions .

[shaws Administrator]

I had constant palpitations when on levothyroxine (pulse at times over 100+) the most severe when asleep. My heart burst into activity at any time, whether on bus, train, shopping and was quite distressing because you don't know why this is happening.

I had to call ambulances at times.

The cardiologist was also puzzled and was considering putting an implant in heart but when I added T3 to T4 and then T3 alone I haven't had palpitations since nor needed to see cardiologist..

[Scottccs in reply to shaws]

Thanks for your reply - may I ask how did you get prescribed T3 was that through the endocrinologist or through your GP.

[shaws Administrator in reply to Scottccs]

The endocrinologist originally prescribed T4/T3 then the GP prescribed for me until they were stopped but I've been fortunate to source my own. Although this year it has been very difficult and practically impossible.

The cost to the NHS jumped from a reasonable amount to an excessive price (600% increase I believe) that the NHS couldn't sustain prescribing and it was a perfect excuse to remove it. Those who were prescribed had no warning and shocked at the decision.

There is now a case before the House of Lords - many who couldn't believe that a hormone of necessity was removed at all.

[shaws Administrator]

Some people do add T3 to T4 but some don't improve as they hoped.

There is also NDT - natural dessicated thyroid hormones that contain all the hormones a healthy gland would do and members also source their own now. It is made from pigs' thyroid glands. It also used to be prescribed by the NHS. It seemed to suit many because it isn't a synthetic hormone and levothyroxine is. NDT also contains T3,T4, T3, T2, T1 and calcitonin.