Borderline under active Thyroid: I have been told... - Thyroid UK

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Borderline under active Thyroid

Ladybex profile image

I have been told I’m borderline under active thyroid ... waiting to see Endo Consultant...

is it true you don’t have to take medication for this? Should I be on. Special Diet ...

thank you

10 Replies
SlowDragon profile image

Your other posts suggest you have endometriosis.

This is often linked to autoimmune thyroid disease (also called Hashimoto's)

For full Thyroid evaluation you need TSH, FT4 and FT3 plus both TPO and TG thyroid antibodies tested. Also extremely important to test vitamin D, folate, ferritin and B12

Low vitamin levels are extremely common, especially if Thyroid antibodies are raised

All thyroid blood tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, best not mentioned to GP or phlebotomist)

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have special offers, Medichecks usually have offers on Thursdays, Blue Horizon its more random

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

Link about antibodies and Hashimoto's

List of hypothyroid symptoms

NICE guidelines saying how to initiate and increase. Standard starter dose is 50mcg. Dose is increased slowly in 25mcg steps, retesting 6-8 weeks later each time

If hypothyroid and not treated, it becomes harder and harder to start on Levothyroxine as vitamin levels drop, and adrenal system is increasingly stressed

According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies

Ideally ask GP for coeliac blood test first

You will find thousands of posts about gluten intolerance on here. Many of us have been astonished at the difference

The conventional medicine way is wait and wait for blood tests to show fully blown Hashimoto a other autoimmune diseases. The natural complementary holistic way is to prevent or stop it from happening.

Dr Isabella Wentz explains this in her books and series.

Yes being gluten dairy and soy free and getting rid of all toxins - cosmetics, laundry products, microwave, hair dye, toiletries, plastics, air fresheners -

Then it’s possible to stop the autoimmune attack on your thyroid

If you have no symptoms, you might not need replacement hormones, but most people do as the NHS diagnose very late in the disease process. Taking replacement hormones can help prevent things getting worse.

Ladybex You were given lots of advice on the subject of medicating when not yet being diagnosed with overt hypothyroidism, in response to your post about a month ago. It might be helpful to read through the thread again

Ladybex profile image
Ladybex in reply to MaisieGray

Thanks Maisie but first I was told under active thyroid... then I was told borderline and now waiting on more blood tests and appointment with consultant. GP UNSURE 😐

MaisieGray profile image
MaisieGray in reply to Ladybex

When things start going wrong, whether from an autoimmune or idiopathic cause, and the thyroid's functioning is impaired to whatever degree; differentiating between an extreme of normal / borderline / sub-optimal / slightly above or below range / overt etc etc are all just shades of grey. It's a sliding scale and some people will feel dreadful being just a bit "off", whilst others will feel great despite extremes of blood test results. I shouldn't worry about labels; better to do a lot of reading on the subject so that you can present an informed rational case to the Endo, for treatment (if that's what you feel you need).

I’ve been on thyroid meds for 6 years currently on 300 mg levothyroxine and never been referred to a endo u must have a good go to be referring you to one

Sea kelp for normal thyroid function.

Ladybex profile image
Ladybex in reply to Angelic69

Thank you 😊

SlowDragon profile image
SlowDragonAdministrator in reply to Angelic69

Kelp or iodine is NEVER recommended for anyone with autoimmune thyroid disease

It can make things much worse

Hope Ladybex you did not follow this suggestion

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