Im lost: Hi all, I’m new to this and I feel so... - Thyroid UK

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Im lost

Dipper86
Dipper86

Hi all, I’m new to this and I feel so lost. This is a little long winded so I apologies in advance.

Basically, I was told I have goitre and autoimmune thyroid disease a couple of years ago after having an ultrasound scan on my thyroid gland. Everything has been.....ok, although every time I’ve been to a hospital for either kids admitted to a&e or general appointments, I always have a doctor point out my goitre and ask me about it, they always seem shocked that I’m not on any mediation yet, one doctor even told my partner that he should find another wife because things will get bad :/

Anyway, this past year has been challenging, my anxiety has been terrible, I’ve had physical pains from it, irritatable to the point of snapping at my loved ones for the silliest of things, (my partner having tv too loud or one of the kids accidentally bumping into me) I just shouted at them for it, when it’s no big deal. I have a shaky hand, palpitations, mood swings, I’ve lost weight even though I’m eating as much as I always do, I can’t get warm, I’m always so so tired (even when walking I feel I could just curl up and sleep), I have muscle and joint pain, unable to concentrate (my family notice when the “lose me” and give up finishing the conversation) and I feel like I’m just falling apart at the age of 32. I just don’t feel right and I’m sick of people thinking it’s in my head and that I’ll get over it.

Recently seen my doctor about the anxiety and was given citolopram? (Spelling maybe wrong) however after taking them for two and a half weeks, I’ve taken myself off them as they were making my symptoms worse and I was feeling suicidal. I had my routine bloods done, I was convinced that my hormone levels had changed but they’re “normal”, liver function normal, amongst them all, the only thing that came back low was iron and vit D, which I’m taking supplements for now. I was given a pelvis scan to check me over because my menstal cycles are irregular and thankfully everything is normal there.

My anxiety has settled, however my muscle and joint pain, mood swings, palpitations etc are all still there, is there any way these tests can be wrong or are there any other test that can be done? I never make a fuss but I feel like my doctor will get sick of me and people will just see me as a moaner, which I feel I’m becoming. Even my kids have noticed a change in me and that breaks my heart.

8 Replies
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Is there any way the tests can be wrong? There's always that possibility, yes. But, there's an even greater possibility that your doctor just doesn't know how to interpret them. Or is even doing the wrong tests - or not all the right ones. Do you get print-outs of your results? If you live in the UK, it is your legal right to have one. And, IMO, it is essential to do so. You need to know exactly what was tested, and exactly what the results were. You may not understand them at first, but you will learn to. Post them here, and someone will explain. So, if you haven't got a copy of your latest test results, ring the surgery and ask the receptionist to print them out for you. Then, post the results and the ranges on here. :)

Dipper86
Dipper86
in reply to greygoose

I will do that today. Thank you so much for the reply. I will post back once I have them. Thank you

greygoose
greygoose
in reply to Dipper86

You're welcome. :)

Dipper86
Dipper86
in reply to greygoose

I have put up a new post with my TSH results. Thanks again

You've had good advice from GG, and I hope you manage to get your results. Sounds like you're not on any replacement even though you've had autoimmune thyroid disease confirmed. Your symptoms sound very much like thyroid illness.

When you get your results, I suggest you post them as a brand new thread, because more people will see it.

Thank you. I’ve not managed to get to my docs yet as my sons has been struck with the sickness bug. I’ll get there by Friday though thankfully. No, I’m on no replacement at all

Good luck with getting them! Hopefully you'll be able to get some good advice.

I’ve finally got my results and posted in new post. Thank you

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